A walk down memory lane - My steps through colorectal cancer advocacy
Wednesday, March 14, 2012
Most of my life I wasn't even aware that colorectal cancer existed. At 31, that innocence vanished and with it began my journey into the world of stage 4 colon cancer. Only one chemotherapy existed then and it wasn't expected to do much good. I was fortunate to find the ACOR (ACOR.org) listserv and another survivor, Shelly Weiler, who encouraged me to begin treatment. I did. I have since benefited from the research that was rampant for colon cancer. New drugs were developed and I received them first as single agents (one at a time) and then in the varying combinations that are used today. My tumors were responsive and slow growing at first. Research stagnated and my luck changed as the tumors in my liver began to grow uncontrollably. It seemed that nothing could stop them and we were fortunate to find out about radioembolization, or SIR-Spheres, which shrunk my tumors and allowed me to begin systemic therapy once again. Friends knew of my journey and I began to hear about the power of advocacy. Timid and quiet, it was foreign to me. But as I watched others making creating change I felt like I should, too. In 2006, I joined One Voice Against Cancer to take colorectal cancer awareness to Capitol Hill for the first time and at the same time discovered Fight Colorectal Cancer (fightcolorectalcancer.org). I was terrified that trip and spent much of the training in tears. There were other wonderful Texans that took me under their wing, though, and helped me to share my story. I had the opportunity to meet my representative during that trip, Jeb Hensarling, and to share that I was able to stand on the Capitol steps and walk into his office because of research. I told him I wanted to watch my daughters grow up and that without more research, I wouldn't be able to do that. When I left, I knew my words had made an impact. Our stories make a difference. No one should experience the helplessness and hopelessness of colorectal cancer. It is preventable, treatable and beatable. Taking action is easy: fightcolorectalcancer.org/policy/take_action_this_march. My story makes a difference. Your story can make a difference, too. So I challenge you - be the difference!
More from Suzanne Lindley
I can remember every waking moment feeling like an incredible dream for months afterward. During those moments I was so much in love I couldn't imagine or believe that anything could bring more happiness. I wanted that feeling to last into our rocking chair days.
1 month ago
'Happy birthday' messages greeted me from around the globe. Because of cancer, my life has been touched by friends far and wide, around the country and across the ocean.
1 month ago
It doesn't get any easier to say goodbye to a friend and it brings close the reality that though we are living better, and longer with advanced cancer, that there is still no cure.
2 months ago
The gift of the moment is not lost in my thoughts.
4 months ago
Some friends meet in unexpected ways. They come into your life during times when you least expect them.
5 months ago