BY KATHY LATOUR | JUNE 8, 2009
I had one of those lunches yesterday. You know the ones I mean if you make yourself available to the newly diagnosed like I have for the past 23 years. Not that any of these meetings are easy, but this one was particularly hard because it was with a former student of mine from Southern Methodist University.
The last time I saw her we were in Washington, D.C. at the first inaugural of George W. Bush. She was part of a group of students that I was overseeing as they took it all in – the parties, the politics, the fact that the country was being run by 20somethings. She graduated in 2002 and I had lost touch – like I have with many of my former students until they look me up for advice, a job tip, or just to say hello.
This reunion was different. She has just been diagnosed with breast cancer – at age 29. Over the years, I've heard from many of my former students when mothers or grandmothers were diagnosed, but this is the first time it was a former student. How can this be? She is too young, just as I was when I was 37 and facing my diagnosis. And what do I say? Luckily, she has gotten really good medicine so far – a gynecologist paid close attention to her when she said her father's sister had been diagnosed with breast cancer at 48. The same gynecologist didn't try to placate her when a lump appeared in her breast in April – two months after she married her honey of five years. I applaud this doc who didn't say, "You are too young to get breast cancer." Instead she said, "get thee to a breast surgeon," giving her the name of one of the top guys in the city.
He felt certain it was a benign condition called a fibroid adenoma, but said he would feel better taking it out. So he did. And surprise – cancer.
She has since learned that she has the BRCA 2 gene – probably from her dad, although the rest of the family has yet to be tested.
She is handling it as well as can be expected, but it really was hard to hear her talk about her wedding and plans for babies.
"I finally was able to look at the wedding pictures last week," she told me. "I looked at that girl in the picture and had a hard time remembering her and how she felt about life."
I hate this disease.
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COMMENTS
Thanks for sharing this important story, Kathy.
Over the 18 years of my survivorship, I've heard (too) many stories about young women with breast cancer that highlight how the patient was diagnosed with advanced disease because the first doctor(s) said, "You are too young for cancer."
Yes, these stories serve a valuable function by waking up people to the reality that young people can get cancer, too. Unfortunately, when some people hear negative stories, instead of feeling motivated (as hoped by the storyteller), these people's fear of cancer escalates. If they develop a lump, their fear makes it more difficult to report the lump to their physician or to pursue a second opinion if their first doctor says, "You are too young for cancer."
I don't hear too many of the stories about young women who were diagnosed in a timely fashion. Stories like yours today are just as important, if not more important: They demonstrate how early detection preserves as much control over one's health as possible.
So thanks. And best wishes helping your former student through this new challenge in her life. She's lucky to have you.
With hope,
Wendy
- Posted by Wendy S. Harpham, MD 6/8/09 10:00 AM
Please direct this young woman to the Facing Our Risk of Cancer Empowered (FORCE) web site at http://facingourrisk.org. This site is an invaluable source of information and support for persons impacted by hereditary breast and ovarian cancer - often, but not always, BRCA-related. The community message boards especially provide an inexhaustible source of information, individual experiences, and recommendations often from other women facing the same situation.
Jody
- Posted by Jody 6/15/09 6:36 PM
Another resource - Young Survival Coalition (youngsurvival.org) - The people I met there got me through a lot. I was diagnosed with breast cancer at 27 just three months after my wedding. I can certainly relate to this woman's story.
- Posted by Jennifer 6/22/09 3:27 PM