Resources
Toolbox
People with cancer and their families need help with the practical and emotional issues of the disease. Search our comprehensive list of resources for agencies and non-profit organizations for information on specific cancers, patient and survivor issues, financial help, and integrative therapies.
S - Spanish Materials Available
General Cancer Information and Support
American Cancer Society (ACS) S
800-ACS-2345 (800-227-2345)
www.cancer.org
A voluntary organization that offers a variety of services to patients and their families. The ACS also supports research, provides printed materials, and conducts educational programs.
American Cancer Society Cancer Action Network Inc.
www.acscan.org
A voluntary organization that offers a variety of services to patients and their families. The ACS also supports research, provides printed materials, and conducts educational programs.
American Institute for Cancer Research (AICR) S
800-843-8114
www.aicr.org
Provides information about cancer prevention, particularly through diet and nutrition. They offer a toll-free nutrition hotline, pen pal support network, and funding of research grants.
American Society of Clinical Oncology (ASCO)
703-299-0150
www.asco.org
Contains more than 40,000 pages of information, including: cancer resources on the Internet, finding an oncologist, and up-to-date information about cancer policy issues.
American Society for Therapeutic Radiology and Oncology
800-962-7876
www.astro.org
ASTRO provides up-to-date cancer research, brochures and videos to patients and patient advocates, and has a directory where patients can locate radiation oncologists in their area. A new Web site, www.rtanswers.org includes disease-specific information on cancers commonly treated with radiation, descriptions of the radiation treatment team, explanations of external beam radiation therapy and brachytherapy, clinical trials information, and details on side effects.
Anderson Network
800-345-6324
www.mdanderson.org/andersonnetwork
Along with providing educational forums and a quarterly newsletter, the Anderson Network offers a patient-matching program and support for caregivers.
The Angiogenesis Foundation
866-54-ANGIO (26446)
www.angio.org
Provides patients with information on angiogenesis, antiangiogenic treatments and clinical trials. Their mission is to help bring about new treatment for patients based on medicines that control blood vessel growth.
Asian and Pacific Islander Cancer Education Materials (APICEM)
www.cancer.org/apicem
A searchable online database of Asian language cancer materials. Co-sponsored by The Asian American Network for Cancer Awareness, Research and Training (AANCART) and the American Cancer Society (ACS), the program is designed to help Asians and Pacific Islanders with limited English-speaking abilities gain access to information on how to reduce their risks of cancer.
Association of Cancer Online Resources
www.acor.org
Provides resources for cancer patients wanting to find others with similar cancers. Also has information about most kinds of cancer.
Bloch Cancer Hotline S
800-433-0464
www.blochcancer.org
Matches newly diagnosed cancer patients with trained, home-based volunteers who have been treated for the same type of cancer. Information at hotline@hrblock.com.
Cancer411.org
877-226-2741
www.cancer411.org
Provides database on clinical trials that lists all ongoing cancer trials. Also offers news articles and other patient resources.
Cancer and Careers S
www.cancerandcareers.org
Provides a free workbook, educational resources, support and information for both cancer patients and survivors, as well as coworkers, managers, CEOs and human resources personnel about cancer patients and survivors working through their treatment and returning to work.
CancerCare, Inc. S
800-813-HOPE (800-813-4673)
www.cancercare.org
A national nonprofit agency that offers free support, information, financial assistance, and practical help to people with cancer and their loved ones. Services are available in person, over the phone, and through the agency's website.
Cancer Control PLANET(Plan, Link, Act, Network with Evidence-based Tools)
cancercontrolplanet.cancer.gov
Developed as a joint effort between the National Cancer Institute and the American Cancer Society, among others, this site offers new tools for cancer control planning, implementation, and evaluation.
Cancer Hope Network
877-HOPENET (877-467-3638)
www.cancerhopenetwork.org
The Cancer Hope Network provides individual support to cancer patients and their families by matching them with trained volunteers who have undergone and recovered from a similar cancer experience.
Cancer Information and Counseling Line (CICL)
800-525-3777
www.amc.org
A free service provided by AMC Cancer Research Center, professional counselors provide up-to-date medical information, emotional support through short-term counseling, and resource referrals to callers nationwide (8:30 a.m. - 5 p.m. MST).
Cancervive
800-486-2873
www.cancervive.org
Helps cancer survivors overcome the challenges of “life after cancer.” In addition to support groups, they provide educational materials, insurance information and assistance and advocacy.
CANCER101
www.cancer101.org
Provides newly diagnosed patients with organizational tools and planners.
CaringBridge
www.caringbridge.org
651-452-7940
A free Internet service that provides personalized web pages to help keep friends and family informed of life events. It also allows visitors to post encouraging messages and support on individualized password-protected websites.
The Center for
Cancer Support & Education
781-648-0312
www.centerforcancer.org
Empowers and supports people touched by cancer, their caregivers and loved ones, by offering resources to enhance life as they move forward.
The C.H.A.I.N Fund
www.thechainfund.com
Assists cancer patients while they are out of work.
ChemoCare.com
www.chemocare.com
ChemoCare.com is a web resource developed by cancer survivor/figure skater Scott Hamilton in conjunction with the Cleveland Clinic. Provides the latest information about chemotherapy to patients, their families, friends and caregivers. It is designed to alleviate patient concerns about chemotherapy and outline everything they need to know in the following sections: What is Chemotherapy?; Chemotherapy Drugs; Managing Side Effects; Eating Well During Chemotherapy; and Before and After Chemo.
Coalition of National
Cancer Cooperative Groups
www.CancerTrialsHelp.org
This site contains a search engine to find cancer clinical trials closest to your home, comprehensive self-study guide, patient discussion forum and helpful information for patients and caregivers.
Commission on Cancer
312-202-5085
www.facs.org/cancer/
The Commission on Cancer (CoC) is a consortium of professional organizations dedicated to improving survival and quality of life for cancer patients through standard-setting, prevention, research, education, and the monitoring of comprehensive quality care.
Exceptional Cancer Patients
814-337-8192
www.ecap-online.org
Provides emotional support and education for people living with cancer and other life-threatening illnesses.
Fighting Chance
www.fightingchance.org
A network of individuals who have been touched by cancer who can offer support and understanding. Offers Coping with Cancer on the East End: A Practical Resource Guide for free.
Fertile Hope
888-994-4673
www.fertilehope.org
A nonprofit organization dedicated to helping cancer patients with fertility issues.
FindCancerExperts
www.findcancerexperts.com
A referral source for those who want a second opinion on a biopsy diagnosis of cancer.
Gilda's Club, Inc.
888-GILDA-4U (888-445-3248)
www.gildasclub.org
Provides social and emotional support to cancer patients, their families, and friends. Lectures, workshops, networking groups, special events, and a children's program are available. Open in 14 cities.
Group Loop
888-793-WELL (9355)
www.grouploop.org
Group Loop is a program by The Wellness Community that provides online support for teens with cancer and their parents.
International Cancer Alliance (ICA)
800-ICARE-61 (800-422-7361)
www.icare.org
Provides a free Cancer Therapy Review, which includes information on a specific type of cancer (description and staging, treatment, diagnostic tests and clinical trials). Cancer Breakthroughs report is sent quarterly.
Lance Armstrong Foundation
512-236-8820
www.livestrong.org
Helps people with cancer and their loved ones live strong through advocacy, education, public health and research, as well as the LIVESTRONG Resource for Cancer Survivors.
Lifeline Air Ambulance, Inc.
800-492-5433
www.air-lifeline.com
Lifeline Air Ambulance provides worldwide emergency and routine air ambulance services.
Lotsa Helping
Hands
www.lotsahelpinghands.com
Provides a simple way for friends, family, colleagues and neighbors to pitch in with meals delivery, rides and other tasks necessary for life to run smoothly during a crisis. It uses a free easy-to-use, private group calendar, specifically designed for organizing helpers.
Mautner Project, The National Lesbian Health Organization S
202-332-5536
www.mautnerproject.org
Provides transportation to and from treatment, legal assistance, support groups, bereavement counseling, education, and a smoking cessation program.
MetaCancer Foundation
www.metacancer.org
info@metacancer.org
The mission of The MetaCancer Foundation is to provide online psychosocial services, resources, and inspiration for survivors and caregivers living with metastatic cancer.
National Cancer Institute (NCI) S
800-4-CANCER
(800-422-6237)
www.cancer.gov
bethesdatrials.cancer.gov
An excellent and comprehensive site for people wanting to know more about cancer, including cancer prevention, definitions, clinical trial information, recipes, links to cancer centers, and a whole lot more.The NCI's Center for Cancer Research also publishes a free quarterly e-newsletter, the BethesdaTrials News, designed to help community physicians stay informed of investigational approaches, including clinical trials, to treating, diagnosing and preventing cancer.
National Coalition
for Cancer Survivorship S
877-622-7937
www.canceradvocacy.org
Offers support to cancer survivors and their loved ones. Provides information and resources on cancer support, advocacy and quality-of-life issues.
National Collegiate Cancer
Foundation
www.collegiatecancer.org
Provide services and support to college students who are cancer survivors. NCCF's goal is to make the life of these students, a little easier by providing the right resources and support to help them establish a "will win" attitude.
National Comprehensive
Cancer Network (NCCN)
215-690-0300
www.nccn.org
A non-profit alliance of 20 of the world's leading cancer centers, dedicated to improving the quality and effectiveness of care provided to cancer patients. NCCN develops resources that present valuable information to the numerous stakeholders in the health care delivery system. The primary goal of all NCCN initiatives is to improve the quality, effectiveness and efficiency of oncology practice. To order patient guidelines call 888-909-NCCN (6226).
N.W. Andrology
& Cryobank
www.NWCryoBank.com
Sperm donor bank which lists profiles of donors and samples for infertility treatment.
OncoLink
www.oncolink.com
Resources for patients, families and health care workers that is written by doctors, nurses, other health professionals and survivors.
Cancer.Net (formerly People Living With Cancer) S
703-797-1914
www.cancer.net/patient/About+Us
Links all ASCO information and materials in addition to giving other communication access to people with all kinds of cancer.
Patrick Dempsey Center for Cancer Hope and Healing
877-336-7287
www.dempseycenter.org
Provides education, support and wellness services to enhance the quality of life for individuals, families and communities touched by cancer. Services include support groups, educational programs and videos, financial counseling, an information hotline, and integrative medicine services.
Planet Cancer
www.planetcancer.org
Website for young adults with cancer. A place to share insights, explore fears, or laugh with others.
Pine Street Foundation
415-455-5878
www.pinestreetfoundation.org
Website that provides information on evidence-based research on integrative care. Publishes a quarterly newsletter called Avenues.
Pregnant with Cancer Network
800-743-4471
www.pregnantwithcancer.org
Connects women who have been diagnosed with cancer during preganancy with other women who have been through a similar situation.
R. A. Bloch Cancer Foundation, Inc.
800-433-0464
www.blochcancer.org
The foundation matches newly diagnosed cancer patients with trained, home-based volunteers who have been treated for the same type of cancer. Informational materials, and a list of institutions that offer second opinions also available.
RTSupportDoc.com
www.RTSupportDoc.com
This website is dedicated to helping people undergoing radiation therapy, where you'll learn more about cancer, radiation therapy and can sign up for a monthy newsletter.
I'm Too Young For This!
www.ImTooYoungForThis.org
877-735-4673
I'm Too Young For This is a global support community for young adults affected by cancer who get busy living and rock on. We use music to make it hip to be a survivor and talk about stupid cancer by providing 'one-stop' access to hard to find resources, peer support and social networks.
Strength
for Caring
www.strengthforcaring.com
The first national program for cancer caregivers to address both the physical and psychosocial health needs of the patient and caregiver. Free workshops which are facilitated by trained nurses and social workers areheld at health care facilities and advocacy organizations across the United States. The website includescaregiving tips andresources, information about cancer side effects, caregiving training videos and an updated listing of Strength for Caring programs in local communities.
Team
Survivor
www.teamsurvivor.org
Team Survivor provides free exercise and health education programs for women with a past or present diagnosis of cancer. Our fun and supportive programs offer women the opportunity to reclaim their fitness, gain a sense of accomplishment, build a social support system and achieve renewed comfort with their bodies and their health. Our programs are open to women of all ages and fitness levels, in all stages of cancer treatment and recovery.
There With Care
303-447-CARE (2273)
www.therewithcare.org
There With Care is a non-profit organization that provides a range of services for families facing critical illness in order to ease the burden of life's day-to-day obligations during a medical crisis.
Ulman
Cancer Fund for Young Adults
888-393-FUND (3863)
www.ulmanfund.org
Provides support programs, education and resources to young adults, and their families and friends, who are affected by cancer and to promote awareness and prevention of cancer.
Vital Options and “The Group Room”
Cancer Radio Talk Show
800-GRP-ROOM (800-477-7666)
www.vitaloptions.org
Sponsors a weekly syndicated call-in cancer radio talk show called “The Group Room.” Listeners can participate in the show during its broadcast every Sunday from 4 p.m.-6 p.m., EST. A live web simulcast available on the website.
The Wellness Community
888-793-WELL (888-793-9355)
www.thewellnesscommunity.org
Provides free psychological and emotional support to cancer patients and their families. They offer support groups on stress reduction and cancer education workshops, nutrition guidance, exercise sessions, and social events.
Women's Cancer
Network (WCN)
www.wcn.org
The WCN is an interactive web site dedicated to informing women around the world about gynecologic cancer. Their goal is to assist women who have developed cancer, as well as their families, to understand more about the disease, learn about treatment options, and gain access to new or experimental therapies. WCN provides news updates, a risk assessment survey, a doctor finder tool, information on various cancers affecting women and more.
Childhood Cancer
Bear Necessities Pediatric Cancer Foundation
312-836-2327
www.bearnecessities.org
Bear Necessities Pediatric Cancer Foundation is a national organization whose mission is to provide hope and support to those who are touched by pediatric cancer. It provides research funding, family support programs and educational pamphlets.
Cancer Warriors, Inc.
www.cancerwarriors.org
The mission of Cancer Warriors, Inc. is to encourage and support children, siblings and caregivers during treatment for childhood cancer. This organization raises funds for childhood cancer research while also promoting awareness and education about the devastating diagnosis of childhood cancer.
CancerCare
for Kids
800-813-HOPE (800-813-4673)
www.cancercareforkids.org
Cancer Care for Kids helps families throughout the United States through its online and telephone support groups, telephone education workshops and through the information available on its website. Counseling and educational programs are offered at Cancer Care locations in New York City, New Jersey, Long Island and Connecticut.
Candlelighters
Childhood Cancer Foundation (CCCF)
800-366-CCCF (800-366-2223)
www.candlelighters.org
A nonprofit organization that provides information, peer support, and advocacy. A financial aid list has organizations to which eligible families may apply for assistance.
Children's Brain Tumor Foundation
(CBTF)
866-228-4673
www.cbtf.org
Comprehensive site offering educational information, tips for hospital stays and going home, school issues, summer camps and more.
Children's Cause for Cancer Advocacy (CCCA)
301-562-2765
www.childrenscause.org
CCCA works as a national catalyst to stimulate drug discovery and development for childhood cancers, to expand resources for research and treatment, and to address the needs and concerns of survivors.
Children's Oncology Camping Association International (C.O.C.A)
515-491-4999
www.coca-intl.org
C.O.C.A. International consists of more than 65 member camps in the U.S. as well as several camps outside of the U.S. such as Canada, Australia, New Zealand, and Europe. The goal is to enhance the lives of children with cancer and to have a forum for for member camps to share their experiences and ideas.
Curing Kids'
Cancer Inc.
866-933-CURE (2873)
www.curingkidscancer.org
At the end of a sports season, team parents typically chip in money for a coach's gift. Instead, donate those funds to Coaches Curing Kids Cancer to help support pediatric cancer research. This is a wonderful new way for children to help other children while honoring their coaches.
CureSearch S
800-458-6223
www.curesearch.org
A collaboration of the largest childhood cancer research organization, the Children's Oncology Group and the National Childhood Cancer Foundation. The organization supports research conducted by a network of institutions on the cancers of infants, children, and young adults.
Eagle
Mount
www.eaglemount.org
Eagle Mount offers a therapeutic recreation program, which includes golf, swimming, skiing and other activities, including camps for children with cancer.
Hope Street Kids
800-227-2732
www.hopestreetkids.org
Hope Street Kids' mission is to eliminate childhood cancer through research, advocacy and education. The organization was founded in 1999 by Congresswoman Deborah Pryce and Randy Walker after they lost their 9-year-old daughter, Caroline, to neuroblastoma.
Kids Konnected
800-899-2866
www.kidskonnected.org
Offers a variety of support services free to children, ages 3-18, who have a parent with cancer or who have lost a parent to cancer.
Pediatric Brain Tumor Foundation (PBTF)
800-253-6530
www.pbtfus.org
The mission of the PBTF is to increase public awareness, aid in early detection and treatment, provide educational and emotional support to patients and families and find the cause and cure of pediatric brain tumors by supporting research.
Starlight Starbright Children's Foundation
310-479-1212
www.starlight.org
The foundation is dedicated to improving the quality of life of seriously ill children by providing educational and entertaining family activities and creating programs that inspire seriously ill children, helping them cope with a prolonged illness.
Wonders &
Worries S
512-329-5757
www.wondersandworries.org
Provides therapeutic programs for children and their families coping with chronic or life-threatening illness.
The Childhood Brain Tumor Foundation
877-217-4166
www.childhoodbraintumor.org
Provides informational materials on childhood brain tumors including news articles, upcoming educational events, webcasts and presentations, newsletters and a resource list.
The National Children's Cancer Society
314-241-1600
www.children-cancer.com
The mission of the National Children's Cancer Society is to improve the quality of life for children with cancer and their families by providing financial and in-kind assistance, advocacy, support services and education.
Complementary Therapies
Annie Appleseed Project
www.annieappleseedproject.org
A nonprofit corporation that provides information, education, advocacy and awareness for people with cancer, family and friends interested in complementary and alternative medicine (CAM) and natural therapies from the patient perspective.
About Herbs, Botanicals & Other Products
www.mskcc.org/mskcc/html/11570.cfm
Web site led by an oncology-trained pharmacist that provides information about herbs and other products, including a clinical summary for each agent and details about adverse side effects, interactions and potential benefits or problems.
Center for Mind-Body
Medicine
202-966-7338
www.cmbm.org
Combines modern science with ancient healing. Addresses the mental, emotional, social, physical and spiritual sides of health and illness.
National Center for Complementary and Alternative Medicine (NCCAM)
888-644-6226
www.nccam.nih.gov
Provides the latest news, research, events and clinical trials in complementary medicine.
Smith Farm Center
for Healing and the Arts
202-483-8600
www.SmithFarm.com
Provides free and financially assisted retreats, workshops, support groups and nutrition programs for adults living with cancer, their caregivers and the healthcare professionals who serve them.
Drug and Medication Assistance
National
Council on the Aging
www.benefitscheckup.org
Finds programs that may pay the cost of prescriptions and healthcare services for people age 55 and older.
NeedyMeds
www.needymeds.com
Information on patient-assistance programs designed to help those who can't afford their medicines.
Pharmaceutical Research
and Manufacturers of America (PhRMA)
202-835-3400
www.phrma.org
www.innovation.org
Directory of patient-assistance programs offered by pharmaceutical companies.
Hospice & Palliative Care
Center to Advance Palliative Care (CAPC)
www.getpalliativecare.org
Valuable information for patients and families coping with serious, complex illness including a palliative care provider directory, a definition and detailed description of what palliative care is, direct links to palliative care-related organizations and more.
Hospice Education Institute
800-331-1620
www.hospiceworld.org
Helps patients and their families find support services in their communities. They offer information about hospice and palliative care and can refer cancer patients and their families to local hospice and palliative care programs.
National Association for Home Care & Hospice
202-547-7424
www.nahc.org
Provides information on how to choose home care and hospice care providers.
National
Hospice and Palliative Care Organization (NHPCO) S
800-658-8898
www.caringinfo.org
The NHPCO is an association of programs that provide hospice and palliative care.
Pain
Alliance of State Pain Initiatives
608-265-4013
http://aspi.wisc.edu
Provides leadership and advocacy for state and regional pain initiatives.
American Pain Foundation
888-615-7246
www.painfoundation.org
Features a Pain Action Guide and offers informational material, support and advocacy.
Partners Against Pain
www.partnersagainstpain.com
Includes news updates, pain control guides for patients, support groups, resources and additional information for healthcare professionals.
Patient Advocacy
Cancer Legal Resource Center
213-THE-CLRC (743-2572)
www.disabilityrightslegalcenter.org/about/cancerlegalresource.cfm
Provides information on cancer-related legal issues for cancer survivors, their
families, and others impacted by the disease.
Legal Resource Guide for Cancer Patients
www.tyla.org/cancer_guide
The Guide covers legal issues concerning privacy, informed consent, insurance, clinical trials, employment law, disability, liability, guardianship, estate planning, and end of life decisions. This Guide is intended to be an informative resource upon which cancer patients and their family members and friends can rely to answer legal questions.
National
Asian Women's Health Organization (NAWHO)
415-989-9747
www.nawho.org
NAWHO is working to improve the health status of Asian women and families through research, education, leadership and public policy programs. Resources for Asian women in English, Cantonese, Laotian, Vietnamese and Korean.
Patient Advocate Foundation (PAF)
800-532-5274
www.patientadvocate.org
The PAF provides education, legal counseling, and referrals to cancer patients and survivors concerning managed care, insurance, financial issues, job discrimination, and debt crisis matters.
LiveStrong Survivorship Centers
Abramson Cancer Center of the University of Pennsylvania
800-789-7366
www.penncancer.org
Dana-Farber Cancer Institute
617-632-5100
www.dana-farber.org/pat/surviving/adult-onset
Fred Hutchinson Cancer Research Center
206-667-2814
www.fhcrc.org/patient/support/survivorship
Memorial Sloan-Kettering Cancer Center
212-639-2581
www.mskcc.org/mskcc/html/64918.cfm
Ohio State University Comprehensive Cancer Center
800-293-5066
www.jamesline.com
UCLA’s Jonsson Comprehensive Cancer Center
310-825-9781
www.cancer.ucla.edu
University of Colorado Cancer Center
303-239-3397
www.uccc.info
University of North Carolina Lineberger Comprehensive Cancer Center
919-966-7230
http://cancer.med.unc.edu/patient/support/carolinawell
Travel and Housing
Air Charity Network
800-446-1231
www.angelflightamerica.org
Network of 5,000 pilots who provide transportation to patients traveling for treatment.
Corporate Angel Network,
Inc.
866-328-1313
www.corpangelnetwork.org
CAN finds free air transportation (on corporate planes) for cancer patients who need medical treatment. Patients must be ambulatory.
Joe's House
877-JOES HOUSE (563-7468)
www.joeshouse.org
A nationwide housing guide for patients and families when they travel for treatment. Directories of various places to stay near cancer treatment centers is available via the website or toll-free number.
National Association
of Hospital Hospitality Houses
800-542-9730
www.nahhh.org
Provides accommodations for families and patients receiving medical treatment away from home. Rates typically range from $5-$15 per day (sometimes free).
National Patient Travel Center
800-296-1217
www.patienttravel.org
Locates the best available travel options for patients. Help available 24 hours.
Bladder
Bladder Cancer WebCafé
www.blcwebcafe.org
Dedicated to the latest in bladder cancer treatments, clinical trials and alternatives. Includes e-mail support.
Bladder Cancer Advocacy Network
888-901-BCAN (888-901-2226)
www.bcan.org
BCAN, the Bladder Cancer Advocacy Network, is the first national advocacy organization dedicated to improving public awareness of bladder cancer, and increasing research directedtowards the diagnosis, treatment and cure of the disease. Founded in May 2005, BCAN is a cooperative effort among bladder cancer survivors, their families and caregivers, and the medical community.
Brain Tumors
American Brain Tumor
Association
800-886-2282
www.abta.org
Offers free publications, educational programs, support group lists, physician list, pen pal program and social service consultations by telephone.
BrainSurgery
health.groups.yahoo.com/group/Brainsurgery
Website and mail list that provide a place for patients with brain tumors and related conditions to communicate. The site also helps to raise awareness, provides educational resources and raises funds for research.
The Brain Tumor
Foundation
www.braintumorfoundation.org
Raises awareness about the importance of early detection and offers peer supportgroups, a worldwide referral network for treatment, conferences, seminars and outreach events.
The Brain Tumor Society
800-770 8287
www.tbts.org
Provides supportive services, educational resources, news, events and clinical trial information for patients, families and healthcare providers.
National Brain Tumor Foundation (NBTF) S
800-934-CURE (800-934-2873)
www.braintumor.org
Provides patients and their families with information on how to cope with their brain tumors.
Bone Marrow Transplants and Donors
Blood & Marrow
Transplant Resources
414-352-3219
www.bmtresources.org
Provides resources, educational material and support for those having or considering a bone marrow or stem cell transplant.
National
Bone Marrow Transplant Link S
800-LINK-BMT (800-546-5268)
www.nbmtlink.org
Operates a 24-hour, toll-free number and provides peer support to bone marrow transplant (BMT) patients and their families. It serves as an information center for prospective BMT patientsas well as a resource for health professionals.
National Marrow Donor Program® (NMDP)
800-MARROW-2 (800-627-7692)
www.marrow.org
Funded by the federal government to improve the effectiveness of the search for bone marrow donors. It keeps a registry of potential bone marrow donors and provides free information on bone marrow transplantation. It also provides patient advocacy aid by helping patients and families with information on insurance and other financial matters, identifying groups and resources for housing and transportation needs and free patient education materials.
Breast Cancer
1in9: The Long Island Breast Cancer Action Coalition
516-374-3190
www.1in9.org
Hewlett House is a project of 1 in 9. It is a comprehensive, non-residential, independent, community learning resource center for cancer concerns, providing emotional and psychosocial support, outreach, and education and information services to people with cancer, their families and friends. Support Groups and Classes are offered at no cost.
Andre Center
303-388-2441
www.andrecenter.org
Its primary goal is to offer credible information on treatment options, coaching help with decisions, assistance with navigating the healthcare system and connections to needed resources. We also act as a resource to referring physicians and the treatment team by supportinancerg effective communication between providers.
Breastcancer.org
www.breastcancer.org
A nonprofit website dedicated to providing the most reliable and complete information available.
Circus of Cancer
www.circusofcancer.org
Provides ideas for how friends and family can show concern and encouragement for someone dealing with breast cancer.
FORCE: Facing Our Risk of Cancer
Empowered
866-824-RISK (7475)
www.facingourrisk.org
Provides support, information, and resources for women at high risk for breast and ovarian cancer.
Health and Human Services
877-696-6775
www.hhs.gov/breastcancer
Provides educational information on breast cancer.
HER2 Support Group
760-602-9178
www.her2support.org
Resource for women who have been diagnosed with HER2-positive breast cancer.
Inflammatory Breast Cancer Research Foundation
877-786-7422
www.ibcresearch.org
Provides education, background, active participation in research and links to clinical trial information.
JACOB International
(Jews Against Cancer of the Breast)
561-394-9100
www.jacobintl.org
Provides awareness of the high risk of hereditary breast and ovarian cancer among Ashkenazi Jewish women and the benefits of genetic testing. The site offers information about BRCA 1 and 2 mutations and genetic testing, medical and spiritual resources and tools to assess one's risk through their family medical history.
Living Beyond Breast Cancer
610-645-4567
www.lbbc.org
Provides educational materials, a calendar of events, a quarterly newsletter, a Young Survivors Network, and a toll-free helpline at 800-753-5222.
Living With It
www.livingwithit.org
Designed as a support program for women with breast cancer and provides education, diet and exercise tips, personal stories, financial advice and more.
Men Against Breast Cancer
866-547-6222
www.menagainstbreastcancer.org
Targets and mobilizes men to be active participants in the fight to eradicate breast cancer and to provide support to men whose families are impacted by breast cancer.
Pink-Link
310-995-5204
www.pink-link.org
Includes an online searchable database of women affected by breast cancer, as well as friends and co-survivors; a tribute page, educational resources, a forum and a personal journal you can keep private or show with other members.
REACH Global
561-394-9100
www.reachglobal.org
Provides awareness of the risk of hereditary breast and ovarian cancer among women and the benefits of genetic testing. The site offers information about BRCA 1 and 2 mutations and genetic testing, medical and spiritual resources and tools to assess one's risk through their family medical history.
Sharsheret
866-474-2774
www.sharsheret.org
Connects young Jewish women recently diagnosed with breast cancer with volunteers.
Sisters Network, Inc.
866-781-1808
www.sistersnetworkinc.org
Seeks to increase local and national attention to the impact that breast cancer has in the African-American community. All chapters are run by breast cancer survivors and receive volunteer assistance.
Susan G. Komen for the Cure S
800-I'M AWARE (800-462-9273)
www.komen.org
A toll-free breast cancer helpline (1-800-I'M AWARE®) is answered by trained volunteers whose lives have been personally touched by breast cancer. Breast health and breast cancer materials are available.
Breast Cancer Network of Strength S
(formerly Y-ME National Breast Cancer Organization, Inc.)
800-221-2141 (English)
800-986-9505 (Spanish)
www.networkofstrength.org
Breast Cancer Network of Strength serves women with breast cancer and their families through their national hotline (available 24 hours a day), open-door groups, early detection workshops, and support programs.
Young Survival Coalition
877-972-1011
www.youngsurvival.org
The only international network of breast cancersurvivors and supporters dedicated to the issues of women under 40 who are diagnosed with breast cancer.
Carcinoid Cancer
Carcinoid Cancer Foundation,
Inc.
888-722-3132
www.carcinoid.org
Provides education, support groups, transcripts of lectures and nutrition resources.
Caring for Carcinoid
Foundation
857-222-5492
www.caringforcarcinoid.org
Dedicated to finding a cure for carcinoid cancer by funding leading scientists to unlock the genetic causes of carcinoid and develop novel, targeted therapies.
Colorectal Cancer
C3: Colorectal Cancer Coalition
877-427-2111
www.fightcolorectalcancer.org
A national organization whose mission is to eliminate suffering and death due to colorectal cancer. C3 pushes for research to improve screening, diagnosis and treatment of colorectal cancer; for policy decisions that make the most effective colorectal cancer prevention and treatment available to all; and for increased awareness that colorectal cancer is preventable, treatable and beatable.
Colorectal CareLine
Sponsored by Patient Advocate Foundation and Amgen Oncology
866-657-8634
www.colorectalcareline.org
National toll-free telephone hotline designed to offer assistance to colorectal cancer patients and healthcare providers seeking educational resources, direct assistance with access to care issues and/or financial aid for select patient needs, including lodging, transportation, childcare and other expenses associated with out-of-town treatment.
Colon
Cancer Alliance
877-422-2030
www.ccalliance.org
Offers patient support, a resource center, news, research, advocacy and events.
United Ostomy Associations of America
800-826-0826
www.uoaa.org
Helps ostomy patients through mutual aid and emotional support. It provides information to patients and the public
Esophageal Cancer
Esophageal Cancer
Awareness Association
www.ECaware.org
Esophageal Cancer Awareness Association, Inc. is an organization promoting worldwide understanding and support for esophageal cancer patients and caregivers.
GIST
GIST Support International
www.gistsupport.org
This organization is dedicated to the support of GIST patients,
families and friends and the ongoing research required to treat
and cure gastrointestinal stromal tumors.
The Life Raft
Group
www.liferaftgroup.org
The Life Raft Group is a non-profit, Internet-based organization providing support through education and research to patients with gastrointestinal stromal tumors.
Gynecological Cancers
Gynecologic Cancer
Foundation
www.thegcf.org
Encourages public awareness of gynecologic cancer prevention, early diagnosis and proper treatment as well as supports research and training related to gynecologic cancers such as ovarian, uterine, vaginal, vulvar, endometrial, fallopian tube and cervical cancers.
Sandy Rollman Ovarian Cancer Foundation
877-730-1100
www.sandyovarian.org
A non-profit organization that is committed to finding an early detection test for ovarian cancer, to funding improved treatments for the disease, and to developing educational programs to educate the public and physicians about ovarian cancer.
Vulva Awareness Campaign Organization
www.vaco.co.uk
carolvaco2003@yahoo.co.uk
Organization provides a community listserv, educational resources, support and assistance for women who have been through vulval cancer, radical vulvectomy and groin node dissecton, VIN, vaginal cancer, Pagets disease of the vulva, HPV and vulval surgery.
Head and Neck Cancer
Support for People With Oral and Head and Neck Cancer
800-377-0928
www.spohnc.org
Provides education, support, a “Survivor to Survivor” network, clinical trials and a newsletter.
The Yul Brynner
Head and Neck Cancer Foundation
843-792-6624
www.headandneck.org
Provides resources, education and support for patients with head and neck cancers. Includes a discussion forum and information on clinical trials with study listings.
Kidney Cancer
Kidney
Cancer Association
800-850-9132
www.kidney.org
Supports research, offers printed materials about the diagnosis and treatment of kidney cancer, sponsors support groups, and provides physician referral information.
Liver Cancer
YES
877-937-7478
www.beatlivertumors.org
Provides education and support for people with liver tumors. YES programs include a toll free survivor line, a friend for the journey, tele-groups, teleconferences, a newsletter and treatment and advocacy updates.
Lung Cancer
Lung
Cancer Alliance
www.lungcanceralliance.org
The Lung Cancer Alliance offers programs designed to help improve the quality of life of people with lung cancer and their families. Programs include education about the disease, psychosocial support, and advocacy about issues that concern lung cancer survivors.
Lung Cancer Caring
Ambassadors Program (LCCAP)
770-451-4749
www.lungcancercap.org
Provides information and encouragement for people living with lung cancer and raises lung cancer awareness.
Lung
Cancer Support Community
866-392-7328
lchelp.org
Offers an online community via message boards and live chats, provides educational resources and promotes the BreatheDEEP! Campaign, which raises awareness and funds for lung cancer research.
LungCancer.org
877-646-5864
www.lungcancer.org
Offers education, resources, clinical trial information, support groups, teleconferences, quarterly e-newsletter, personal stories and news updates.
The LUNGevity
Foundation
773-769-6060
www.lungevity.org
The LUNGevity Foundation partners with the world's foremost physicians and research scientists to fund innovative research designed to detect, treat and cure lung cancer.
Melanoma
Melanoma International Foundation
866-463-6663
www.melanomaintl.org
Educates public on prevention and early detection of melanoma, coordinates local screening and education programs and serves patients and their families by operating a toll-free patient/family hotline for those battling melanoma.
Melanoma Patients'
Information Page
www.mpip.org
Features a community bulletin board, research links, and the latest news in melanoma.
The Melanoma Research
Foundation (MRF)
800-MRF-1290
www.melanoma.org
A non-profit foundation founded and maintained by melanoma patients, their families and caregivers and friends whose mission is to promote research, education and advocacy and to find a cure for melanoma.
The Skin Cancer Foundation
800-754-6490
www.skincancer.org
Works to increase public awareness and teach people how to recognize the early signs of skin cancer. They conduct public and medical education programs.
Myelodysplastic Syndromes
Aplastic Anemia
& MDS International Foundation, Inc.
800-747-2820
www.aamds.org
As the oldest and largest patient advocate and support organization for bone marrow diseases, it provides free educational brochures on various topics including managing treatment decisions, bone marrow failure disease, clinical trials and iron chelation.
Myeloma, Leukemia and Lymphoma
Cutaneous Lymphoma
Foundation
248-644-9014
www.clfoundation.org
An independent, non-profit patient advocacy organization dedicated to supporting patients with cutaneous lymphomas by promoting awareness and education, advancing patient care and facilitating research.
International
Myeloma Foundation (IMF) S
800-452-CURE (800-452-2873)
www.myeloma.org
Supports education, treatment, and research for multiple myeloma. They provide a toll-free hotline, seminars, and educational materials for patients and their families.
The Leukemia and Lymphoma Society S
800-955-4572
www.lls.org
The Leukemia & Lymphoma Society® is the world's largest voluntary health organization dedicated to funding blood cancer research and providing education and patient services. The Society's mission is to cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families. The society provides patient financial aid for specified treatment expenses and transportation, family support groups, First Connection (a professionally supervised peer support program), referrals and school re-entry materials. The Society's Information Resource Center (IRC) provides patients, families and healthcare professionals with the latest information on leukemia, lymphoma and myeloma.
Lymphoma Research Foundation (LRF)
800-500-9976
www.lymphoma.org
LRF provides a free information helpline, up-to-date educational materials, peer support, educational programs and financial assistance for patients. S
Patients Against
Lymphoma
800-500-9976
www.lymphomation.org
A non-profit foundation providing support and timely access to evidence-based information about lymphomas and related treatments. Helps patients and physicians locate clinical trials for lymphoma, and provide query tools to assist in locating published articles on outcomes, safety and mechanisms for investigational agents. Also includes a free information helpline, up-to-date educational materials, peer support, educational programs and financial assistance.
Multiple Myeloma Research Foundation (MMRF)
203-972-1250
www.multiplemyeloma.org
Supports research grants and professional and patient symposia on multiple myeloma and related blood cancers. MMRF publishes a quarterly newsletter, and provides referrals and information packets free of charge to patients and family members. Also includes the Multiple Myleoma Research Line in collaboration with the National Comprehensive Cancer Network (NCCN), which provides physicians access to NCCN expert faculty to answer questions on specific clinical issues related to the management of multiple myeloma at 866-528-NCCN (6226) or through e-mail at multiplemyeloma@nccn.org.
Ovarian Cancer
National
Ovarian Cancer Coalition (NOCC) S
888-OVARIAN (888-682-7426)
www.ovarian.org
NOCC raises awareness about ovarian cancer and promotes education about the disease. They also offer support groups, a database of gynecologic oncologists searchable by state and educational materials.
Ovarian Cancer National Alliance (OCNA)
S
202-331-1332
www.ovariancancer.org
Works to increase public and professional understanding of ovarian cancer and to advocate for research. The Alliance distributes materials and sponsors an annual advocacy conference for survivors and families.
REACH Global
561-394-9100
www.reachglobal.org
Provides awareness of the risk of hereditary breast and ovarian cancer among women and the benefits of genetic testing. The site offers information about BRCA 1 and 2 mutations and genetic testing, medical and spiritual resources and tools to assess one's risk through their family medical history.
SHARE: Self-help for
Women with Breast or Ovarian Cancer S
866-891-2392
www.sharecancersupport.org
Provides support groups, educational forums, wellness programs, events, newsletter, and toll-free hotline. All services provided are free.
Pancreatic Cancer
Pancreatic
Cancer Action Network (PanCAN) S
877-2-PANCAN
(877-272-6226)
www.pancan.org
A nonprofit advocacy organization that educates health professionals and the general public about pancreatic cancer to increase awareness of the disease. Information about support networks, clinical trials, and reimbursement for care also available.
Prostate Cancer
Malecare
Prostate Cancer Support
212-844-8369
www.malecare.com
A national nonprofit organization providing a multilingual website with timely news, as well as doctor- and patient-authored articles on prostate cancer. Malecare also offers in-person and online support groups, including a special group and articles specific for gay men with prostate cancer.
Prostate Cancer Foundation
1-800-757-CURE (2873)
www.prostatecancerfoundation.org
The Prostate Cancer Foundation funds high-impact research to find better treatments and a cure for prostate cancer.
Prostate Cancer
Research Institute
www.pcri.org
Non-profit organization dedicated to empowering those with prostate cancer, offering education, treatment options, side effects and testing. They also provide a helpline at 1-800-641-7274. Also has a quarterly newsletter and Prostate Cancer Climbs.
The Prostate Net
888-477-6763
www.prostate-online.com
The Prostate Net provides information on treatment options, research, news, support and advocacy.
US®TOO!
International, Inc. S
800-80-US TOO (800-808-7866)
www.ustoo.org
A prostate cancer support group organization. Goals of US TOO! are to educate men newly diagnosed with prostate cancer, offer support groups, and provide the latest information about treatment for this disease.
Sarcoma
Alliance
Against Alveolar Soft Part Sarcoma
www.alveolarspsarcoma.net
A website developed to communicate information about a very rare type of cancer called alveolar soft part sarcoma plus information about a charitable foundation that is being formed to promote advocacy and research to benefit patients.
LMSarcoma Direct Research Foundation
www.lmsdr.org/index
Our mission is to assure the development of the means to cure and control the disease leiomyosarcoma and to improve the quality of life for those with this disease until the cure is found. LMSarcoma Direct Research Foundation was created to bridge the gap between leiomyosarcoma researchers and leiomyosarcoma patients.
Liddy Shriver
Sarcoma Initiative
www.sarcomahelp.org
Supports people with sarcoma, increases public awareness of sarcoma and the lack of young adults in cancer-based clinical trials and raises funds for sarcoma-related research.Distributes a newsletter to patients and caregivers.
The
Sarcoma Alliance
415-381-7236
www.sarcomaalliance.org
Provides education, support, and guidance in finding medical providers,
treatment options and various other information sources.
Sarcoma Foundation of America
301-253-8687
www.curesarcoma.org
Dedicated to raising funds for sarcoma research, local patient networking and support.
Thyroid Cancer
ThyCa: Thyroid Cancer Survivors' Association
877-588-7904
www.thyca.org
Provides support, education, and communication for thyroid cancer survivors, their families and friends.
The organizations listed have supplied information to CURE that was accurate at the time of publication. CURE does not evaluate or in any other way endorse the organizations listed. There is no cost for listing, which is at the discretion of the editors.
If you wish to add your group to the Toolbox, please send information to elizabethw@curetoday.com.
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