Getting Through Survivor Guilt

Survivors work through feelings of anger, anxiety, and depression that are often rooted in guilt.

KATHY LATOUR
PUBLISHED: AUGUST 31, 2010
Talk about this article with other patients, caregivers, and advocates in the General Discussions CURE discussion group.
In 2009, Hodgkin lymphoma survivor Rich Davila met Eric Cohen, RN, OCN, the program manager of Life with Cancer in Fairfax, Virginia. Davila wanted to volunteer with the cancer support program to honor the memory of his “chemo buddy,” Kelly Linderman, who died in 2007.

When Cohen casually queried Davila to see how much Davila knew about the program, Davila immediately began explaining why he hadn’t kept up with Linderman after her cancer recurred. Cohen listened, recognizing that Davila was struggling with overwhelming guilt. 

“The poor guy asked me a simple question and I dumped all over him,” Davila recalls.

Little studied, survivor guilt brings with it a host of issues that can cause depression, anger, and self-blame that may even compromise health. 

Davila and Linderman were both treated for Hodgkin lymphoma in 1999, when he was 33 and she was 31. The two bonded, creating a closeness that continued after treatment as they did volunteer work and fundraised for the Leukemia & Lymphoma Society. Then their lives diverged in 2000 when Davila met his wife at the same time Linderman’s cancer recurred. 

Davila found himself pulling back further from Linderman with each milestone he reached—first marriage and then parenthood, an especially joyful event after having been told treatment would make him sterile. “I got all the things we both wanted out of life, and for me to watch her not get them was hard,” Davila says.  “Just as badly as I wanted them for myself, I wanted them for her.”   

Daily calls became monthly as Davila struggled with sharing his good news when Linderman was facing repeated recurrences. Then, in 2007, it became clear Linderman was dying. “Then we got back together and talked about how guilty I felt,” he says. She said, ‘That’s ridiculous.’” 

I got all the things we both wanted out of life, and for me to watch her not get them was hard.

Cohen says he sees survivor guilt such as Davila’s in all age groups and around many issues. 

For those who find they carry one of the identifiable cancer oncogenes comes the guilt that their children may also have inherited the predisposition to cancer. For example, women or men who carry either the  BRCA1 or BRCA2 oncogene pass on a 50 percent chance that their children will inherit the gene and the increased possibility of cancer that accompanies it.

Cohen tells of the young woman who discovered she carried the BRCA1 gene when she was the first in her family to be diagnosed with breast cancer. Her mother and sister were later diagnosed; both died.

“She has been struggling with why she is here when she didn’t have kids like her sister, and she lost her mom,” he says.

Publicity of survivors such as Lance Armstrong has also created guilt for those who don’t feel they are doing cancer “right” or with the stamina Armstrong showed. “For someone who is really driven, he is a good model,” Cohen says. “But if they aren’t, there is a danger there.”

Talk about this article with other patients, caregivers, and advocates in the General Discussions CURE discussion group.
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