Second Chance: When Grandparents Become the Caregivers

When grandparents become caregivers, family dynamics can change.

DON VAUGHAN
PUBLISHED: SEPTEMBER 18, 2013
Talk about this article with other patients, caregivers, and advocates in the General Discussions CURE discussion group.
When Norma Jean Jackson’s 12-year-old grandson, Tavontate Little, complained of a protruding left eyeball, his doctors originally thought it might be a sinus problem. But an imaging scan revealed a tumor. After he received a diagnosis of mesenchymal chondrosarcoma in late March, Jackson, of Plaquemine, La., didn’t hesitate to step up as his caregiver. Because his mother worked full-time, it was easier for Jackson to assume most of her grandson’s caregiving needs during treatment, she says.

Jackson accompanied her grandson to his appointments at Our Lady of the Lake Regional Medical Center in Baton Rouge, where he received his initial diagnosis, then to St. Jude Children’s Research Hospital in Memphis, Tenn. There, Little received chemotherapy to shrink the tumor behind his eye. He then had surgery to remove the growth at Le Bonheur Children’s Hospital, also in Memphis. He returned to St. Jude in June for six weeks of radiation treatment with his grandmother again at his side.

Jackson says she has adapted well to her role as caregiver. Throughout her grandson’s chemotherapy treatments, Jackson had to clean and irrigate the central line in his chest daily. She also had to watch for mouth sores and constipation, and make sure he was eating right. The most challenging part, she notes, was watching him undergo various scans and biopsies. “That was hard,” she acknowledges. “But he wasn’t scared. He handled it better than I did.”

Jackson is one of a growing number of grandparents nationwide who have some degree of guardianship over their grandchildren, says Madelyn Gordon, executive director of Grandparents As Parents, a nonprofit organization based in Canoga Park, Calif.

“An estimated 2.7 million children, or 4 percent of all children in the United States, live in public or private kinship care,” Gordon says. “That’s an increase of almost 18 percent over the past decade, compared with a total child population increase of only 3 percent.”

Grandparents become custodial caregivers for their grandchildren for a variety of reasons, says Sylvie de Toledo, founder of Grandparents As Parents and a licensed clinical social worker. The most common are parental drug and alcohol abuse, parental incarceration, illness, military deployment and a lack of adequate child care or child abuse.

“Grandparents often take these kids in at a time in their lives when they had hoped to be doting grandparents, not parents all over again,” says de Toledo, who co-authored Grandparents As Parents: A Survival Guide for Raising a Second Family. “It impacts their lifestyle, their finances and their social life.”

Grandparent guardianship can also alter the family dynamic. For example, the grandchild’s parents may believe that the grandparent has “stolen” their child, resulting in resentment and strife between the parents and the caregiving grandparent. There may also be additional legal problems related to custody.

“It generally is not a harmonious beginning,” de Toledo says. “It’s important for a family to work on communication skills, so they can provide a united front for the child, who may feel torn. You want to have as good a relationship as possible with the parents and not bad-mouth them.”

Talk about this article with other patients, caregivers, and advocates in the General Discussions CURE discussion group.
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