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Variety of Connections Now Available for Patients, Families and Caregivers
November 16, 2016
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September 14, 2016 – Annie Achee President National Leiomyosarcoma Foundation

Variety of Connections Now Available for Patients, Families and Caregivers

PUBLISHED November 16, 2016

The National Leiomyosarcoma Foundation (NLMSF) has just launched its new website, designed for patients, families, and caregivers to be able to acquire helpful information from initial diagnosis to the treatment phase and after-treatment maintenance. Please take time to review the website and provide your valuable feedback. Your suggestions for improving the website content will be beneficial for all.

VARIOUS COMMUNICATION CONNECTIONS NOW AVAILABLE:

The NLMSF Facebook Group - no longer a Facebook page - with a valuable new component to be added soon: Ask The Experts - A “Q & A” capability for patients/families to ask general questions of the volunteer medical/ research oncologists, a radiologist, and a psychologist - their answers should never take the place of your own medical care team, but will offer general guidance/ support. The start of this new patient support feature will communicated to all soon.

The NLMSF BLOG - part of the FACEBOOK GROUP: Another communication avenue for patients, families, caregivers to interact by sending blogs to randa.laouar@colorado.edu. The blog posts can be found under the Caregiver’s Corner webpage of the Foundation’s website.

Monthly LMS LIVE CONNECT patient conference conversation call-in. Monthly reminders will be sent out to participants who register for the call with annie@nlmsf.org. The reminders will be sent out two weeks ahead of the scheduled conference call-in date. Patients/ families have appreciated this opportunity to speak to each other/ hear one another and share information, encourage each other, build strength and hope – an inspiring/ empowering experience for all.

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