Currently Viewing
10 Tips to Help You Get Organized After Diagnosis
August 28, 2018 – Pancreatic Cancer Action Network
Man Swims 22 Miles to Raise Money for Patients With Leukemia
July 30, 2018 – CLL Society
The Bonnie J. Addario Lung Cancer Foundation Honors Oncologist for Groundbreaking Targeted Therapy Research
July 26, 2018 – Bonnie J. Addario Lung Cancer Foundation
Pediatric MDS Update with Dr. Inga Hofmann Zhang
July 24, 2018 – Aplastic Anemia and MDS International Foundation
MDS/AML Overlap and Novel Therapies with Dr. Naval Daver
July 24, 2018 – Aplastic Anemia and MDS International Foundation
PNH Treatment Update
July 24, 2018 – Aplastic Anemia and MDS International Foundation
MDS/MPN Overlap Syndromes and Myelofibrosis
July 24, 2018 – Aplastic Anemia and MDS International Foundation
Treating Children with Aplastic Anemia
July 24, 2018 – Aplastic Anemia and MDS International Foundation
Genetics and Genomics of Bone Marrow Failure
July 24, 2018 – Aplastic Anemia and MDS International Foundation

10 Tips to Help You Get Organized After Diagnosis

BY Pancreatic Cancer Action Network
PUBLISHED August 28, 2018
A pancreatic cancer diagnosis and the decisions that come after can feel overwhelming. But getting organized can help patients and their loved ones take control and better understand their options.
Here are 10 tips for getting organized after diagnosis:
 
  1. Get the basics about your diagnosis from your doctor. Some questions to ask are, “What type of pancreatic cancer do I have?” “What is the stage?” “What treatments do you recommend?”
  2. Contact Patient Central for information about the disease, treatment options – including clinical trials – side effects, finances and additional support.
  3. Keep copies of your medical records and lab results. These are important when meeting with other doctors, especially when seeking a second opinion. You have the rights to all of your records and lab results.
  4. Seek a second opinion. You have a right to seek a second opinion, and the Pancreatic Cancer Action Network strongly recommends seeking a second opinion, as needed, at any point in your diagnosis.
  5. Select your healthcare team. Seeing pancreatic cancer specialists improves outcomes. PanCAN strongly recommends consulting with pancreatic cancer specialists who have experience diagnosing and treating the disease.
  6. Learn about treatment options, and consider a clinical trial. You are your own best advocate. PanCAN strongly recommends discussing your treatment goals with your healthcare team and knowing all of your options at every stage of your disease. And pancreatic cancer patients who participate in clinical research have better outcomes. Every treatment available today was approved through a clinical trial. We strongly recommend clinical trials at diagnosis and during every treatment decision. Our Patient Central Associates can perform a personalized clinical trials search for you.
  7. Track your symptoms, side effects and questions and then talk to your healthcare team about them. Try providing this information to your doctor before the appointment.
  8. Find out what support resources (counseling, navigation services, complementary medicine, etc.) are available through your hospital. An oncology social worker may be particularly helpful in connecting you with resources.
  9. Appeal when insurance claims are rejected. Every insurance company has an appeals process. Keep copies of all the paperwork you submit.
  10. Get support from family, friends and others with the disease. Support is critical to improve quality of life and overall well-being. Contact Patient Central to learn about our Survivor and Caregiver Network and to connect with others who are also experiencing pancreatic cancer.

Contact Patient Central for more information about any of these topics or for answers to your other pancreatic cancer questions. You can also order our free educational packet for more information to help you become informed and get organized after diagnosis.

This article was originally published by the Pancreatic Cancer Action Network. It is republished with permission.
 
Be the first to discuss this article on CURE's forum. >>
Talk about this article with other patients, caregivers, and advocates in the Pancreatic Cancer CURE discussion group.

Related Articles

1
×

Sign In

Not a member? Sign up now!
×

Sign Up

Are you a member? Please Log In