What's in a Name? Understanding Neuroendocrine Tumors
A neuroendocrine tumor (NET) is a rare type of tumor that can arise in a wide variety of locations in the body. However, knowing the location of a tumor does not tell the whole story about your cancer type or how to treat it. In this series, Dr. Philippa Cheetham talks with Diane Reidy-Lagunes, an expert in NETs, to better understand this disease, the treatment options, and important questions to ask your doctor. Michael Rosenberg and Brenda Laguerre share their stories, and Grace Goldstein, from The Carcinoid Cancer Foundation, discusses the importance of finding the right resources.
▼ Episode 1 What Are Neuroendocrine Tumors?
Neuroendocrine tumors (NETs) are a rare type of cancer that often goes undiagnosed for years. Dr. Reidy-Lagunes discusses the challenges associated with NETs, including diagnosis, possible symptoms, and management.
Michael Rosenberg shares the story of his diagnosis, which began with an unrelated medical emergency. Dr. Reidy-Lagunes highlights factors that can help differentiate pancreatic NETs from typical pancreatic cancer.
Having access to a local oncologist and a team of specialists is ideal. Michael Rosenberg and Dr. Reidy-Lagunes discuss the importance of seeing an expert in NETs, even if travel is required, to get the best care possible.
A carcinoid tumor is a type of neuroendocrine cancer that can arise in a variety of locations in the body. Dr. Reidy-Lagunes talks about the biology of the disease and how it differs from pancreatic NETs.
Dr. Reidy-Lagunes highlights how carcinoid tumors might be missed, especially due to the need for special imaging techniques. She speaks with Brenda about the importance of being your own advocate and getting a second opinion in order to get an accurate diagnosis.
► Episode 8 What a Carcinoid Cancer Diagnosis Means
Dr. Reidy-Lagunes provides insight on the common symptoms associated with carcinoid tumors and how they can be treated. She also talks about the need for a multidisciplinary team of experts to manage this rare disease.
There are many factors that influence whether surgery and/or medication is appropriate in a patient with a neuroendocrine tumor. Dr. Reidy-Lagunes explains her treatment approach and the various factors she takes into consideration.
► Episode 10 About The Carcinoid Cancer Foundation
Finding a neuroendocrine tumor expert can be challenging. Grace Goldstein discusses the Carcinoid Cancer Foundation’s approach to providing patients and family members around the world with resources and a support system in order to get the help they need.
► Episode 11 Finding Answers to Your First Questions
Deciding on a treatment plan should be a team approach that includes the patient and his or her doctor. In this segment, Brenda and Michael share some of the common challenges associated with having a neuroendocrine tumor diagnosis.
► Episode 12 Reasons for Starting Treatment of NETs
Balancing a patient’s quality of life and survival should be the goals of any therapy. Dr. Reidy-Lagunes highlights some of the reasons for starting therapy in a patient with a neuroendocrine tumor and discusses what can be done for those with later stage disease.
► Episode 13 Pancreatic NETs: What to Ask Your Oncologist
Overall care is improved if patients know what to ask their doctors. Dr. Reidy-Lagunes explains the top questions patients with a pancreatic neuroendocrine tumor should ask their local oncologist to better understand and manage their disease.
Many treatment options are available for patients with pancreatic neuroendocrine tumors. Dr. Reidy-Lagunes provides insight on her treatment approach and the patient- and disease-related factors she considers.
► Episode 15 Carcinoid Tumors: What to Ask Your Oncologist
When patients are well informed about their disease, the diagnosis is less overwhelming. Dr. Reidy-Lagunes lists the most important questions for patients with a carcinoid tumor to ask their local oncologist.
Patients with neuroendocrine tumors need a personalized treatment approach. Grace and Michael provide insight on how patients can be more proactive in finding the best care; Dr. Reidy-Lagunes breaks down how various therapies can meet patients’ needs.
Finding and having sources of support is crucial for patients with neuroendocrine tumors. Grace and Dr. Reidy-Lagunes talk about some of the support resources available and how they can benefit patients.
Finding ways to afford life-saving treatments for neuroendocrine tumors can be challenging. Dr. Reidy-Lagunes, Brenda, and Michael discuss ways to address these challenges in order to get the best care possible.