There has to be more resources available to those of us who finish treatment. Yes we are thankful and grateful to be in remission but we need help on putting our lives back together. For me there was no after care other than the now once yearly visits to my oncologist. When I ask about recurrence I am told to just go and live my life. That's an easy statement for someone who has never faced the news that you have cancer.
I came across this article in my TX Oncology office yesterday, while waiting for a blood test.
I was 3 days into retirement in, 7/2012 and found out I had, stg. 4a (FL) Non-Hodgkin's Lymphoma. All of my lymph glands where swollen and I had 50% in my bone marrow. I went through 8 months of R-CHOP at TX ONC. and 6 maintenance treatments at a VA medical center.
After about 8 months (following the 1st chemo) I started having bad night sweats and very fatigue everyday.I kept telling the VA I needed another scan because of what I was going through. They waited 1 year and than they scanned me and we found out that my NHL had returned. This time all my lymphoid's were 2 to 3 times larger than the first time and it also showed up in my bone marrow again. In the VA you get 100% compensation while undergoing treatment for NHL, when it goes into remission it drops to 0% compensation. At the same time I was awarded 70% for a major depressive disorder. I have not lost the 100% yet however now they want to lower the 70% to 50%. I know and feel that if anything the 70% has increased since the return of the NHL in 2016. When the NHL returned the 2nd time Mentally I hit rock bottom and now must battle with the VA again. Your article on PTSD could makes a lot of sense. it helps understanding the relationship to the cancer and to you mental well being at this time. Most of the other Vet's that I meet going through chemo seem to have the same depression
I did write the VA Oncology group a note about my frustration I had because they did not listen to me for a whole year. I immediately signed up for the VA Choice program and had my 2nd round chemo done back at TX Oncology..... They Listen.
Anyway I will be sending this article to the VA...... Thanks, Bob
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