Article Talk: Late Effects Burden Lymphoma Survivors After Multimodality Treatment

Started by Laurelee04, March 10, 2018
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Laurelee04

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March 10, 2018
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Laurelee04

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March 11, 2018
I was diagnosed with hodgkins lymphoma back in 1985. I was 24 years old then. The cancer was in my neck lymph nodes and was spreading down into my chest. They removed my spleen as a precaution and of course the affected lymph nodes in my neck. I then received 32 linear accelerator radiation treatments and never had a reoccurance of hodgkins. However, I since have had a double bypass heart surgery, now diabetic, Have a rare lung disease called cryptogenic organizing pneumonia and have had my aorta valve replaced with a mechanical one. I am told thatall of my illnesses are caused by the radiation damage from the radiation I had in the 80s. I have also had kidney cancer and they did not have to take my kidney they did cryoblation on it and haven't had a recurrence. I have lung nodules and thyroid nodules from radiation and they are monitored for cancer growth. Because of all of my illnesses I am no longer a candidate for surgery of any kind. Surgery is to life threatening because of my lung damage and I have a gastric bleed also. So it is a double edged sword. I am blessed to have been given 33 years of life from tge radiation so how can I complain. Just thought I would share.
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Kirk

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Posted on
March 11, 2018
Thank you for sharing. My 1st dx of HL was in 1987. I had recurrence in 1989. CLL from 1991-1996. I currently live with late effects of the radiation and the chemotherapy I had in the 1980
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Just_Beechie

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April 19, 2018
Hi Laurelee04 and Kirk, I too, have somewhat similar health trajectories from 1983 when extended mantel radiation treatments cleared up early stage HL for me. You may find it helpful to speak to the many adult survivors who are sharing evolving research, informed contacts and resources about late-effects (including those not well identified here). Though many in the group were 'cured' of Hodgkin's, many, many more are now facing secondary cancers, especially breast cancer, chronic heart disease as well as radiation induced fibrosis. We found each other on Facebook from all corners of the planet; U.S., Canada, Britain, Germany, New Zealand, etc. Just put "hodgkins disease survival repercussions from 1960 - 1990's" in the Facebook search box if you would like to continue the conversation and find support among fellow warriors Cheers and all the best with your journey - Diane
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