Article Talk: Pink Is Not Enough

Started by annon123456, September 25, 2019
2 replies for this topic
annon123456

Member
558 Posts
Posted on
September 25, 2019
View Original Post

Report

Page 1 of 1 1

annon123456

Member
0 Replies
Posted on
September 25, 2019
Pink is not enough even if you don't have stage 4 breast cancer. I have had it on both sides. Both times I was, knock on wood, very lucky. In BC #1 16 years out, BC #2 9 years out. Of course I got nailed by follicular non-hodgkin's lymphoma (one of the incurable ones) 9 years ago too, but that is a different story. I HATE that somehow people who have or have had BC are expected to wear that on their sleeve, advertise that by pink t-shirts and pink ribbons... Cancer is what I have, not who I am. Who I am is what I do with my life. What I do is impacted by cancer at times. During treatment the impact can be higher than between periods of treatment, and certainly has required a mental "adjustment". In this respect I appreciate the non-hodgkin's lymphoma approach. No t-shirts, no trying to guilt us into, in effect, putting a pink ribbon brand on our forehead... Instead the focus of those organizations is to raise money for research, help patients deal with the financial toxicity of a cancer - especially an incurable one. Rather than buy t-shirts and other similar crap, I'd rather have ALL my donation go to an organization that deals with one or the other of my cancers, not just pennies (metaphorically speaking) on the dollar. I have plenty of t-shirts that don't advertise that I have cancer. Why do I need one that does? Marketing. That's why. The marketing machine has taken over breast cancer fundraising in ways that haven't touched other cancers. Marketing may have helped raise money but it also takes a lot of money for this kind of marketing too. Other cancers seem to raise money without this massive and expensive marketing machine. Of course maybe I am wrong as I haven't looked to see if there is research that backs up my opinion or not (eg to see if the net amount that actually goes to actual BC research or financial aid to BC patients, etc.) is more, less or the same per patient" than it is with any other cancer that hasn't gone this route. And I also appreciate that with my other cancer I am not always being reminded/blindsided by ads that force me to think about these cancers when I'm "not in the mood". The ads I have seen recently for stage 4 treatments have caused me to turn off the sound on the TV. They get on my nerves. The references to the "new normal". No nothing about having had cancer is normal. And what we have to do is get an emotional grip and handing the emotional earthquake that comes with even a non eventually terminal cancer diagnosis. I liken this pink reminder and related advertising over drugs or whatever to how I might have felt, after my brother was murdered when I was young, if daily, sometimes multiple times a day, someone would have come up to me and tell me again my brother had died. And then ask me if I have been able to move on with my life to a "new normal" (no it is not a new "normal", it is something else) despite them reminding me, out of the blue, when I wasn't even thinking about my brother, that he had died. Yeah that is good for one's mental and emotional health. Not. The amount of money that goes to "the cause" needs to be on the actual t-shirt tag. I bet they will never do this though as the tag will likely read something like, "10 cents of the profits from this purchase will be donated to BC, $1 goes to marketing that brings in 50 cents for "the cause" and the rest goes to into our pocket). It needs to be transparent. Personally if I am going to give to bc or nhl I will do so directly. I don't need or want the t-shirt. I want the maximal amount of whatever I donate go to something useful connected with disease treatments, patient assistance, etc. Yes some marketing is needed, but in the case of BC, more so than other cancers, the marketing machine has taken over the agenda, the focus, many of donation the dollars and we, as patients, have little control over any of this. "Their agenda" may be far from the one that is needed (because after all the marketing machine is supporting a ton of employees and their own marketing business). As patients can only vote with our dollars. Don't buy that t-shirt unless the makers are transparent about just how much of our money from that purchase goes to what organization for "the cause".
Report
annon123456

Member
0 Replies
Posted on
September 25, 2019
Well that is a pain. Apparently no way to post in paragraphs like I had originally formatted my response.
Report

Page 1 of 1 1

You must log in to use this feature, please click here to login.