It's so crazy I just ran across this piece. I went for a check a couple weeks ago and had made up my mind to quit the meds. I had been off close to 8 weeks and started to feel "normal". My knees still felt so old and a few other aches but better. The PA talked me right into going back on it. I'm trying my last option-femara. I'm about a month into it and feel crappy and crazy and all kinds of ways. I'm now waiting to find out my fate about a lesion spotted on my cspine. They MRI my spine b/ it hurt so much and spotted it. I will read the results on the patient portal tomorrow from a bone scan done yesterday. Im probably going to trash the meds for sure if C. Has returned! What a load of bologna, feeling like crap for 2 years and then it might come back to get you anyway! I hate medicine. It all makes me feel some type of bad way. View Original Post
In 2006 I was diagnosed with lobular breast cancer. I had the full works, surgery, chemotherapy and radiation.
I was prescribed Arimidex, If I took it, it would half my chance of cancer returning. Of course, I took the tablets - within a very short time - I had pain in every joint - right down to my jaw. Plus I had become very confused, my family gently stopped me driving after I had stopped at a green light - then cried because other motorists were honking at me.I knew the lights meant something - I just didn't know what.
To be honest, I didn't know I was confused - I did know I was in a lot of pain. I saw my GP, who told me to come off the Arimidex and speak to my oncologist.
I did this and the oncologist wanted me to take Termexifom but I would still have some degree of confusion. My hubby had had 4 strokes 6 months earlier and had lost his job. We had a mortgage and another bill that needed to be met.
I refused to take any hormone blocker medication and returned to work.
In 2012 breast cancer came back in my spine and ribs and has progressed into all my spine, pelvis, ribs and liver.
However, I have no regrets that I refused to take a medication that Might have prevented this happening. Our mortgage is paid and we are debt free - plus of course, the medication might have worked -or might not have.
You need to think what will happen if you don't take the medication, is there a way to take it that will give the least side effects - perhaps taking it last thing at night.
You need to be very sure you won't regret your choice if the cancer grows out of control.
I choice quality of life and money over the possibility that the cancer was gone for good.
I am reading these posts trying to decide if I should stop taking the Anastrozole, I have been on for almost 4 years. My situation is very similar to Bonnie's and I have been experiencing joint pain and recently alot of confusion, which I cannot tolerate. Can you please share what supplements you take that help you? I already take a few that help with hot flashes and sleeping. I also have mentioned my issue to my Oncologist and she recommends more meds :-( Not an option as far as I am concerned.
Thank you for this honest article. I am recovering from breast surgery with hematoma set back. Was told yesterday biopsy negative however, there was atypical cells and surgeon recommended tamoxifen for me. I told him no as I am very sensitive to medications. I feel relieved after reading this that I have made the right decision. I hope you are all doing well. Great to have this forum