When I walked out of my last radiation session five years ago, the therapist who shepherded me through the previous 29 pushed play on the boom box and the song, "Hit the Road Jack," filled the air. With smiles, hugs and tears, we said goodbye and the refrain, “don’t cha come back no more,” couldn’t have been more on point.
There was no similar ceremony at the oncologist’s office after the termination of chemotherapy, as the message was clearly delivered, “We are your doctors now, and we will continue to follow your care.”
The idea of trading in a primary care physician for an oncologist still brings a knot to my stomach. I’m well aware that the biannual blood tests and annual X-rays have one purpose: scanning for the return of the monster. As a result, I always feel strange sitting in the waiting room of my oncologist’s office.
Five years out, I can still recall the feeling of being in active treatment, waiting for my name to be called so I could take my chair and get hooked up for the next five hours. I cannot help but scan the room these days and feel deep empathy for those who I know are only starting their journey. At times, I feel a twinge of survivor’s guilt as I sit with my regrown hair, full blood count and absence of chemo-induced fatigue. During these times, I remember what it felt like to be starting this challenge and how I felt when survivors showed up, aglow with a radiance that comes from having survived the perfect storm of physical and emotional traumas. To ease this guilt, I imagine that I’m being seen as an inspiration — living proof, with a huge emphasis on the living part — that treatment can work, the beast can be tamed. However, part of me is aware that others may be thinking, as I did on occasion, “How dare you look so healthy!”
The sobering moment arrives when I see that person who I know may never get to have a final appointment, who may never know the relief of a clear CT scan or blood work. To say that one is humbled by this awareness falls short of the affective response deep within one’s heart. As a professional healer, I want to reach out and hold that person’s deepest fears while they regain, if even for a moment, the ability to breathe freely again. I want to tell them that I know the demons they face and assure them that, despite how it appears, all is well.
Instead of opening up my therapist tool kit, however, I choose to sit as a silent patient who’s simply waiting his turn to be called to see the doctor. Often, I recite a silent prayer or healing mantra to the others who wait with me, as there are moments when no words can be just as powerful as any cliché: “Hang in there,” or “It will get better.”
When I walk out of the doctor’s office, I pass a renal clinic, a gastroenterology department and outpatient surgical practice. I see old and young, fit and feeble, walking or being wheeled, to their next destination and am struck by a sense of kinship. Sure, we’re all connected at that moment by the label “patient,” but it’s a deeper connection one senses; a communal sharing of the fragility, humility and resiliency of the human spirit. While I still hate having an oncologist as my PCP, tempered by this experience of community, it’s a hate I hope to have well into the future.
I was first treated for thymic cancer in 2013, removal of the thymus via a full sternotomy followed by radiation. I was just treated for a recurrence on 10/21/15 with a removal of the new tumor thru a partial sternotomy. I am awaiting the pathology and the plans for chemotherapy. I know this is one of the rare cancers. I am curious as to the chemotherapy regimen. I would also love to be in touch with Mike or anyone else who has experienced this cancer. Thank you.
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