billstans

Posting since November 01, 2016

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Posts I've Started
Article Talk: Screening Cancer Caregivers for Depression
August 11, 2017
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Article Talk: Change is on the Horizon for CLL Treatment, Expert Says
June 12, 2017
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There is still no clear cut therapy for 17p. My wife was in a clinical trial with Ibrutinib for 3.5 years at NIH. When she relapsed it was off to Stanford for the much hyped Venetoclax. That lasted about 8 months. NEXT up was CAR-T in Seattle. We had to live there for three months. Thirty days after in fusion she was declared CLL free. At here 90 day check up CLL was back. We will be returning to Seattle for a TGR-1202 trial. Any thoughts?

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Article Talk: Debating the Next Steps of the Affordable Care Act Repeal
February 17, 2017
The ACA has literally saved my wife's life. When she retired she had just been diagnosed with CLL-17p. Under the old rules she would not have been able to purchase supplemental insurance. Also there would have been a cap on coverage costs. Three clinical trials and six years later she is cancer free. This would not have been possible without the ACA.

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Article Talk: The Changing Treatment Landscape of Chronic Lymphocytic Leukemia
November 01, 2016
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My wife relapsed while taking Ibrutinb after three years. She went into a clinical trial for ABT199 (Venetaclax). After 7 months she is relapsing again. She has CLL-17p. A CAR-T trial at Fred Huchinson Cancer Center in Seattle was recommended to her by her doctor at Stanford. Anybody have any thoughts?

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Comments I've Made
Article Talk: Oncology Organizations Comment on President Trump's Travel Ban
February 09, 2017
This was a travel ban on virtually all people from these countries. A woman that was a doctor in a hospital in Cleveland was initially turned back. My wife is currently undergoing CAR-T immunotherapy in Seattle. Her doctor is from ....Iran and he is brilliant! This is just not about refugees. Medical science knows no borders.

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Article Talk: The Affordable Care Act and Cancer
November 14, 2016
My wife is going to be in a CAR-T clinical trial. She has relapsed with her CLL-17p while being treated with Ibrutinib first(that worked for 3 years)and then while using Venetoclax(that worked for 7 months). With the election results who knows what will happen with health care. The Republicans have repeatedly called for junking the ACA. But, they have never put forth a detailed plan of what they would replace it with. Currently 20 million people would lose their health insurance if it is junked. Do we go back to no preexisting conditions allowed? Do we return to the days of "you have met your insurance cap now sell your house to pay your bills"? I am

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Surprise! Cancer Treatment Causes Difficult Emotions
July 30, 2016
My wife has had CLL-17p for the the last five years. With her compromised immune system she nearly died of a Nocardia infection in 2013. She has had shingles, kidney stones and several bouts of tachacardia that have landed her in the ER. We live on the west coast. In 2011 the only clinical trial that she could get into was at NIH in Bethesda,Md. She did well on Ibrutinib up until last fall when she began to relapse. She is now in a clinical trial at Stanford taking Venetoclax. She has expressed the feelings that she has "ruined the last five years" by being sick. There have been canceled vacations due to her illness and most of our travel has ...

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New Treatments May Be Worth the Wait in CLL
August 28, 2015
My wife was diagnosed with CLL 17p exactly four years ago. Her oncologist took the wait and see format for two months. Her WBC began to double, she lost 20 pounds and her lymph nodes, particularly in her head and neck area, swelled grotesquely. My wife was also very fatigued. The oncologist recommended she get into a clinical trial. On March1, 2012 she was admitted into the Ibrutinib (Ibruvica) clinical trial at NIH. She contracted Nocardia in the summer of 2013 and had a very rough time. Since then she has had very few problems. The only negatives of the drug have been bruising and some fatigue. My wife leads a normal active life. Prior ...

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