Mrs.

Posting since January 07, 2018

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Posts I've Started
Article Talk: Amy Robach: I Live Like I'm DyingArticle Talk: Amy Robach: I Live Like I'm Dying
May 30, 2018
I've been invited to share my cancer story, but have been unable to do soon CURE. I have BIA ALCL caused by my mastectomy implant. This is my third cancer related to breast cancer. May I share my story?

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Article Talk: Amy Robach: I Live Like I'm DyingArticle Talk: Amy Robach: I Live Like I'm Dying
May 30, 2018
I've been invited to share my cancer story, but have been unable to do soon CURE. I have BIA ALCL caused by my mastectomy implant. This is my third cancer related to breast cancer. May I share my story?

Read more »

Article Talk: Amy Robach: I Live Like I'm DyingArticle Talk: Amy Robach: I Live Like I'm Dying
May 30, 2018
I've been invited to share my cancer story, but have been unable to do soon CURE. I have BIA ALCL caused by my mastectomy implant. This is my third cancer related to breast cancer. May I share my story?

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Article Talk: Amy Robach: I Live Like I'm Dying
May 30, 2018
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Article Talk: Homemade Prosthesis
March 08, 2018
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Article Talk: Homemade Prosthesis
March 08, 2018
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Article Talk: Homemade Prosthesis
March 08, 2018
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BIA-ALCL Breast Implant Anaplastic Large Cell Lymphoma
January 07, 2018
A new cancer your doctor may not know from your mastectomy implant

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Article Talk: Clear Your Mind And Home From Cancer and Clutter
January 07, 2018
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Comments I've Made
Article Talk: I Am Sorry for Being a Bad Cancer Role Model
March 08, 2018
I, too, have chosen to go flat. I don't feel self-conscious about it. However when dressing up I often drape a scarf loosely as is the fashion that drapes across/over the chest wall area. I just found the PERFECT bathing suit...a tankini top that the manufacturer has oodles of choices for fabric. I'll get the name...Hapari. Google it and choose the sport tankini...it is wonderful! I got one on sale for around $30. I'm not sure about my summer dresses yet, some are very sleek...may have to ditch them. But for ordinary day to day wear I find that a snug camisole (found a bunch in WalMart for under $2) under a Tee is great so if the neck ...

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BIA-ALCL Breast Implant Anaplastic Large Cell Lymphoma
January 07, 2018
Part 4

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BIA-ALCL Breast Implant Anaplastic Large Cell Lymphoma
January 07, 2018
Part 2

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BIA-ALCL Breast Implant Anaplastic Large Cell Lymphoma
January 07, 2018

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BIA-ALCL Breast Implant Anaplastic Large Cell Lymphoma
January 07, 2018
I would like to invite you and your team of medical care personnel to join a Clinician-Patient discussion group concerning BIA-ALCL found on https://www.facebook.com/groups/Biaalclclinicianpatientdiscussiongroup/?multi_permalinks=1481485988638772¬if_id=1515346486552135¬if_t=group_activity So little is known about this disease and anything that can be done to increase the knowledge of it and the symptoms women present with would help those who will have it in the future. I believe it is not so rare a disease as pictured. It is a very under reported disease due to the fact of very little information about it. The women here have so many varied symptoms one can see the difficulty their physicians are having finding the cause. It is difficult to diagnose. But found early the treatment is only surgery with monitoring. ...

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Article Talk: When Does the Fear End After Breast Cancer?
September 25, 2016
Hang in there...these temporary "scares" are a part of the BC Journey. Take deep breaths and look at all you have that is not cancer in your life that is so wonderful. Think those thoughts when traumatic things are being done to your body. I was diagnosed in 1994, made it past that magic 5 they all tell us, skated until 2012...but that is 18 years of skating. I"m now back in this journey with temporary "scares" that occur more frequently, but when I'm on that table, or waiting for the news, I focus on the positive. I've been allowed to live 72 years, and they have been fantastic years! and of all of those "scares" only two of ...

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Surprise! Cancer Treatment Causes Difficult Emotions
July 24, 2016
Initially upon diagnosis (stage 0 breast cancer) and treatment I found other women in my geography with Breast Cancer. We bonded and became our support group for each other, openly discussing everything from treatment side effects to nipple choices for reconstruction. We helped newly diagnosed women find their path and took notes for them at their doctor appointments. We became known by the oncologists and teaching hospitals in the area (S. Jersey + Philly) and ended up after about 10 years having more than 300 women come through our group. The core of us who initiated it slowly retired and moved from the geography until I was the last one left, and I passed all of our resources to the local hospital ...

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On Being a Rebel and Going Against Medical Advice
February 20, 2016
There are three types of Aromatase Inhibitors (drugs to stop the production of estrogen). I had a reaction to the first one with very bad body aches, and my oncologist simply switched to another, and I don't have any side effects. There is still a third in case I develop symptoms or become drug resistant to this one. Perhaps switching to another similar drug may help??? Try Googling Aromatase Inhibitors to become familiar with the names of the different types.

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Getting Back to Work After a Diagnosis of Metastatic Cancer
February 20, 2016
I live in a small southeastern North Carolina village of less than 900. There is a young woman here (40s?) with metastatic breast cancer who is into her 9th year of survivorship and feels healthy. I am into my 4th year of metastatic breast cancer and not only feel healthy, I am able to do everything I did before diagnosis. People forget I have cancer, and that is a good thing. So to limit what someone with a diagnosis may do seems out of place. No one really knows how long we will live, and since our care is pallative, the doctors "do no harm" and we continue with our lives without harsh treatments. The patient should have all

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Safety Net Gone: A Breast Cancer Survivor Stops Anastrazole
January 25, 2016
Here is my "take" on this. I am stage 4, so however many years I have left, I will be on an AI, anastrole or letrozole. Hopefully for more than 5 years!!! Diagnosed first in 1994 stage zero, metastasized in 2012. Anastrole gave me the achy joint side effect, so one year into it I switched to letrozole. I have few if any side effects with this one. If and when I do develop side effects, or become drug resistant to it there is a third AI I can take. So right off the bat, there are 3 different AIs, could you ask your doctor about switching to a different one? Also have you investigated Evista? ...

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Safety Net Gone: A Breast Cancer Survivor Stops Anastrazole
January 25, 2016
Here is my "take" on this. I am stage 4, so however many years I have left, I will be on an AI, anastrole or letrozole. Hopefully for more than 5 years!!! Diagnosed first in 1994 stage zero, metastasized in 2012. Anastrole gave me the achy joint side effect, so one year into it I switched to letrozole. I have few if any side effects with this one. If and when I do develop side effects, or become drug resistant to it there is a third AI I can take. So right off the bat, there are 3 different AIs, could you ask your doctor about switching to a different one? Also have you investigated Evista? ...

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Cardiotoxicity After Cancer Treatment
September 04, 2015
I just found out that I have had a silent heart attack with permanent heart damage and congestive heart failure. We were all puzzled about this as I have consistently done everything known to take good care of my heart. You would not believe how much I exercise and have done for at least 30 years. I eat right, never smoked, don't drink, etc. Yet I have this serious heart issue. Well, then I Googled Letrozole and Heart Disease, and down there where all of the terrible things can happen to you if you take this drug, is Heart Attack and Congestive Heart Failure. So I was the one that experienced this. I was diagnosed with DCIS in ...

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