Thank you so much for all your comments. I have felt so alone not knowing why I have all these problems. I get so tired, no matter how much rest I get. It's so hard to concentrate and to find my words. I like my oncologist except for the fact that she insists this has nothing to do with the chemo treatments or the tamoxifen I've been on for 6 years. All I want is the truth and help with dealing with the side effects. I have had fibromyalgia for many years but was always able to function but it gets harder and harder to deal with both. I see a Neurologist on Monday at MA General in Boston, hoping I can get some
Had chemo 6 years ago, still suffer with chemo brain. I was told it doesn't exist. It's very frustrating when you know something isn't right and doctors refuse to acknowledge it. I have fibromyalgia as well. I think if the doctors don't know how to treat something, the standard answer is to deny it exists. I would much rather hear that yes, we are aware this happens with some people but we don't know yet how to treat it. No, that doesn't make it any better but at least we know why it's happening, not that we are losing our minds!