CURE Forum » Viewing Profile: Will2
Posting since December 13, 2016
Posts I've Started
December 13, 2016View Original Post
EVERY TIME I read an article about developing treatments ...and progress (or even lack thereof)... and clinical trials, I am THRILLED to feel a part of the process, as a participant in clinical trials. Last year, at this time, I was taking three drugs (lenalidomide, dexamethasone, and ixazomib). This was a follow-up to an autologous stem cell transplant. At this time, I'm taking ixazomib, only. My ongoing tests have shown these drugs to have been....and continue to be.... quite effective. I'm not sure whether I can accurately claim CR, but I think I can. I, of course, do not know ...
Comments I've Made
June 02, 2016I just read the (Spring 2016) article on Nikki Jean's (Nicholle Leary's) treatment. I was especially encouraged by the phrase: “He told me he was pioneering a new surgical sensor specifically designed to save that ‘neglected nerve.’” - See more at: http://www.curetoday.com/publications/cure/2016/spring-2016/paying-it-forward-trials-can-improve-life-for-future-cancer-survivors#sthash.tAX1Hzo3.dpuf". I must believe that any advancement in nerve-sparing techniques will be of great interest, and benefit, to all prostate cancer patients who are considering surgery. I hope that Dr. Tufano's research, work, techniques, and RESULTS trickle down to men's prostates.
May 30, 2016Even a minor case of Chemobrain is a nuisance. I was, just now over my morning bowl of cereal, reading the May 2016 "Cure" article on Chemobrain and Cognitive Training. While eating and reading, my wife asked why I had taken a new stick of butter from the refrigerator for the dish on the counter, not the partial stick of butter we brought back from last week's vacation in a time-share cabin. The habit of many years (using the new butter) was stronger than the memory of a half-stick of left-over butter in the storage container (both in the 'fridge). I replied to her: "Habit". She said "Not thinking". While mild, this shows the (fortunately mild... in this case, anyway) ...
March 20, 2016In AD 1987, I was given an Angel-flight from Dallas to Chicago. It was a true blessing. I don't remember much about the flight except that it was in a beautiful, comfortable jet which carried about 8 passengers. I was going to Chicago for tests which eventually led to my donating bone marrow to my sister, with Hodgkins. The flight came at a time when my wife and I could barely have afforded the gasoline to drive from Dallas to Chicago and back; this was a blessing to us. And, of course, the test results and subsequent transplant were a tremendous blessing to my sister.
March 20, 2016Update (March AD 2016): I completed 4 cycles of Revlimid, Dex, and Ixazomib (Ninlaro). Now, continuing with the Ixazomib, alone; in the first 28-day cycle. My numbers are stable.
November 17, 2015Thank you for the encouragement. I was diagnosed with Multiple Myeloma, in January of 2015. I responded well to Velcade, initially. Then, an autologous stem cell transplant in July. So far, the results look good. For maintenance, I've completed my first 28-day cycle of Revlimid (15mg), Dex (fortunately, I have no problems with this drug), and one other drug which is in a test (not yet released). I'm happy to hear that you've had 15 years of control.
November 17, 2015Hi, Kate. Good article. As a second-time cancer survivor, I fully understand. Sure, I want to simply shrug off the "How are you, today?" question with a simple "I'm fine", and go on with my life. BUT, the bald head kinda gives away the fact that something else is going on! In the '60's, in college, my hair was below my collar, and approaching my collar-blades as much as my parents could/would tolerate (they were paying the college bills, so concession was a better part of valor!); and I still keep my hair rather long, though it's above my collar, now. My first cancer-journey was pretty invisible. Although I ...