After being diagnosed, I started treatment with 3 injections a day for 7 days. After approximately 2 years treatment was cut back to 3 injections a day for 5 days. After approximately 3 years of treatments I received my first transfusion, a treatment that will occur periodically now. While I can directly relate to the fatigue described in the original post, it was mild compared to the fatigue I experience when selected counts dip to the point of my needing a transfusion. I simply adjust and move on.
I owe you an apology. I didn't intend to imply that the fatigue you experience is minor. You described exactly what I still experience 90% of the time and it's not by any means trivial.
During the couple of weeks prior to a transfusion my wife and I laugh at my needing to sit and rest after a shower prior to getting dressed.
I was diagnosed in 2013, I thought my fatigue was due to my age. Our family doctor thought otherwise and sent me to a Hematologist. He confirmed that I have MDS. He sent me to the local teaching hospital for a second opinion, again confirmed. Having served in the Marine Corps at Camp Lejune I scheduled ...