ellentk

Posting since January 01, 1970

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January 01, 1970

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Article Talk: Online Tool Emphasizes Self-Care for Patients With Lymphedema
November 05, 2016
Correction: Qui is the last name of one of the researchers who developed the app. My parenthetical comment about spelling is incorrect.

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Article Talk: Online Tool Emphasizes Self-Care for Patients With Lymphedema
November 05, 2016
I found it in the apple app store with some difficulty. You have to search for lymphedema, as searching for the name or abbreviated name brings up nothing. It's the app by Mei Qiu (an alternate spelling of her last name). This article says you can download an android verion from the ALFP website, but I didn't find it there; perhaps you can contact them: http://onsopcontent.ons.org/Publications/SIGNewsletters/lym/lym24.2.html I was unable to find it for a laptop. This article has more details but I didn't see a link to the apps: https://www.eurekalert.org/pub_releases/2016-10/nyu-msa100316.php You can get contact info for Mei Fu to ask her where the android and laptop apps are. Suggestion: The author of the CURE article should have included links to the apps.

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I Was a Bad Sport About My Cancer
April 10, 2016
You have a responsibility as a well-known author on cancer to write things that help people cope emotionally, not make them feel guilty about "not being gracious about having cancer," and "not being a good sport." Your article will make many people who are struggling with a devastating diagnosis try to live up to an unrealistic and unhealthy ideal. Your ideal, not theirs. I did not act out emotionally after each of my two cancer diagnoses, but I would never presume to tell somebody who wasn't reacting as I did that there was something wrong with their reaction. Perhaps if you were more compassionate toward yourself, as other people have suggested, you might be more gracious and compassionate to other cancer patients whom you ...

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