Kathy I

Posting since January 01, 1970




Active Posts0
Posts I've Started
January 01, 1970

Read more »

Comments I've Made
Meeting Your Match
June 25, 2015
I agree with the author's listing of the barriers to finding and participating in a clinical trial. One not mentioned though is the financial cost to the patient. I incur all out of pocket expenses, such as a weekly 250 mile round trip car ride, finding and sometimes paying someone to drive me, occasional hotel stays so I can be at the hospital for a 7am blood draw, insurance co-pays for what is deemed "routine or standard of care". (In my case, my insurance covers 90% at my home hospital and only 80% at the study hosp.) It is an investment in my future, but not everyone can afford that. The study coordinator recently hooked me up with the Lazarex Foundation (lazarex.org) and ...

Read more »

Leading Us Through CancerLand
June 24, 2015
I wish my doctor knew that I know when he & his staff are not being honest with me. I think he already knows that though. I wish my doctor knew how damaging it is to our doctor-patient relationship when he isn't being transparent. I wish my doctor knew how awful it feels when you don't fully trust the people you're depending on to keep you alive. I hope he never has to know how that feels.

Read more »