Neuropathy is my worst chemo side effect. I hadn't heard the balance thing before but I have noticed that if I close my eyes sometimes I start to lose it. I had attributed to poor nerve feedback from my feet and lower legs but maybe it's more than that.
This interface is weird and incomprehensible on the first posting so my first post above is empty and apparently not deletable. Anyway, very well written article, Doc. I look forward to your next one on the meaning of the word "cure".
I think the recurrence fear is just one of my new companions for life. It will always be there. I'm just always learning how to deal with my new "friend". He is, after all, a mixed blessing. One, I'm alive to experience his/her companionship. Two, he/she keeps me following a healthy protocol (within limits). Three, I remember to appreciate the little things that can be quickly taken away.
Interesting article. I recently went to a cancer survivors group where people tell their stories and talk about their angst or whatever is on their mind.
It was my first, and probably last, attendance. I hope I don't ever feel the need to share because of a recurrence down the road but I was not the least bit interested in rehashing my experiences. I think it's great to have things like that available but I didn't want to crawl inside the "survivor" box even if it's an appropriate label. I didn't see the point. Making it a routine, to me, would make my condition too defining of who I am and only serve to direct my focus back to illness.
As a man with CIPN I can attest to its deleterious effects like increased risk for falls, changed gait, etc. It can even affect driving because the sensory feedback from the foot on a gas or brake pedal is impaired.
Maybe even worse is the scan that comes back with something new but non-specific, a mystery requiring further investigation. What will the next test reveal? What is happening during the wait for the scan that has been moved up by 3 months but is still 3 months away?
This lack of research or more exactly the lack of "permission" to conduct studies results from an overreaching federal government that believes it has the right to determine what its subjects can and cannot ingest into their own bodies.
It's important that the doctor scopes all the way to the beginning of the large intestine. 8 years ago I was diagnosed with stage 1 colon cancer which they found way up next to my appendix. If the doctor wasn't so thorough I'm afraid that it may have been missed.