I'm a little confused and surprised by this article. I had chemotherapy 5 years ago and the sensitivity to cold for a few days after each treatment, which unfortunately began mid-winter. But after a few days it went away. I did develop permanent neuropathy in my feet, lower legs and a little in my fingertips and also don't always know what's going on with my feet due to their lack of sensation. They are very sensitive to stepping on something like a stone or a small object in the house (hurts!) but the sensitivity to cold did not extend past treatment.
Neuropathy is my worst chemo side effect. I hadn't heard the balance thing before but I have noticed that if I close my eyes sometimes I start to lose it. I had attributed to poor nerve feedback from my feet and lower legs but maybe it's more than that.
I don't know what happened to my first post but there's nothing there. This forum's software is annoying.
Anyway, what I apparently wasted 10 minutes saying the first time was that I have cold sensitivity during chemo treatment for a few days after each treatment but it didn't linger. Chemo was five years ago. I do have permanent neuropathy in my lower legs, especially my feet, and a little in my fingers, but no cold sensitivity.
I also use gabapentin. I have tried and prefer Lyrica because it really worked! But it's proprietary and therefore expensive and insurance isn't keen on covering it. So I went back to gaba.
I've never understood the "battle/fight" approach that cancer patients often express. But it isn't often used with other diseases. You have no leverage to fight. You just select the treatment you agree to and wait. Also, why attribute a medical success to a god when it was your medical team and technology that deserve the credit? So did god abandon the folks that don't make it?
Your posting system seems messed up and confusing. That's why I left an empty post above.
Anyway, I wanted to ask what the following from article meant:
"We have known for some time that the behavior of MSI-H CRC is different from so-called Microsatellite Stable (MSS, or non-MSI-H) CRC. Generally, they are associated with a better prognosis, although this is not universal."
Which group is the term "they" in the second sentence referring to? MSI-H or MSS? I assume it refers to MSI-H but I can't be certain.
This interface is weird and incomprehensible on the first posting so my first post above is empty and apparently not deletable. Anyway, very well written article, Doc. I look forward to your next one on the meaning of the word "cure".
I think the recurrence fear is just one of my new companions for life. It will always be there. I'm just always learning how to deal with my new "friend". He is, after all, a mixed blessing. One, I'm alive to experience his/her companionship. Two, he/she keeps me following a healthy protocol (within limits). Three, I remember to appreciate the little things that can be quickly taken away.
Interesting article. I recently went to a cancer survivors group where people tell their stories and talk about their angst or whatever is on their mind.
It was my first, and probably last, attendance. I hope I don't ever feel the need to share because of a recurrence down the road but I was not the least bit interested in rehashing my experiences. I think it's great to have things like that available but I didn't want to crawl inside the "survivor" box even if it's an appropriate label. I didn't see the point. Making it a routine, to me, would make my condition too defining of who I am and only serve to direct my focus back to illness.
As a man with CIPN I can attest to its deleterious effects like increased risk for falls, changed gait, etc. It can even affect driving because the sensory feedback from the foot on a gas or brake pedal is impaired.
Maybe even worse is the scan that comes back with something new but non-specific, a mystery requiring further investigation. What will the next test reveal? What is happening during the wait for the scan that has been moved up by 3 months but is still 3 months away?
This lack of research or more exactly the lack of "permission" to conduct studies results from an overreaching federal government that believes it has the right to determine what its subjects can and cannot ingest into their own bodies.
It's important that the doctor scopes all the way to the beginning of the large intestine. 8 years ago I was diagnosed with stage 1 colon cancer which they found way up next to my appendix. If the doctor wasn't so thorough I'm afraid that it may have been missed.