rhondalea

Posting since January 01, 1970

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Posts I've Started
January 01, 1970

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Article Talk: I
March 25, 2017
Best article I've ever read from Cure. Thank you for writing it.

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Chemobrain? Get Out the Pen and Paper
July 02, 2016
I'm glad this works for you, but I fear that it sends the wrong message about brain damage subsequent to cancer treatment. Five years out, I continue to struggle. Right now, for some inexplicable reason I cannot pin down, it is worse than it has been since before I had my neurocognitive evaluation two years ago. This is not acceptable to me, and it should not be acceptable to any of us. Chemo isn't the only culprit. Surgery, radiation, targeted therapies, hormonal therapies and the cancer itself all play a part. My own experience is that doctors want to attribute most of the symptoms to depression, but that's just laziness. Cancer treatment-induced brain damage needs to be addressed by a comprehensive, flexible program. Until we stop limping along

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Getting Warmer: Women Can Revive Sexual Function After Cancer
March 22, 2016
I've used Replens, which was awful, and RepHresh, which was nearly as bad. I read the ingredients of Almost Naked etc., and I'm not a fan of aloe for the purpose. As for the Sex Butter, I'm sure it's fine for some, but the odor of chocolate mint from my vulva is not my cup of tea. I suspect we all have very specific needs and preferences. I use Luvena, which was created by GSK, and is now owned by Laclede. They had a problem a couple of years ago--a labeling issue which brought down the full wrath of the FDA upon them: http://www.medicaldaily.com/fda-looks-stop-sale-luvena-prebiotic-vaginal-products-there-are-bigger-fish-fry-290970 So anyway, right around the same time, my gynecologist gave me a sample because I was out of options. I'd also just had a ...

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Chemo Brain: A Breast Cancer Survivor's Commentary
September 29, 2015
It's not *chemo*brain; it's *cancer*brain. Chemo certainly makes it worse, as do surgical anesthesia, radiation, targeted therapies and hormonal therapies, but it starts with the cancer. Here's recent good information about this: Inflammatory Biomarkers, Comorbidity, and Neurocognition in Women With Newly Diagnosed Breast Cancer http://jnci.oxfordjournals.org/content/107/8/djv131.full Here's some commentary on the first link: Neurocognitive Impairment as One Facet of Cancer-Related Sickness Behavior Symptoms http://jnci.oxfordjournals.org/content/107/8/djv176.extract I have had post-cancer cognitive impairment since 2011 or thereabouts. I fought like the bloody blue blazes to obtain treatment, and finally, in 2014, I obtained an evaluation by a neurocognitive psychologist who treats brain injuries. *Important Note*: Whatever you call it, and whatever causes it, it is first and foremost a BRAIN INJURY. Our damage is no different from those whose brains have been battered by physical agents. ...

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Cancer Fatigue: Tired of Being Tired
July 23, 2015
I wrote that post above, but apparently Cure hates me and logged me out before it posted. I didn't intend to be anonymous.

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Working Through Cancer Anger
April 02, 2015
Thank you, Bonnie. Yes, I have chemobrain. What most people, including doctors, fail to realize is that chemobrain is a brain injury just like any other brain injury, and it needs to be treated just like a brain injury. Far too many of us do not recover within a year or two. The statistics bear this out in spite of the delusional thinking of oncologists. For me, it's almost 4 years. For my grandmother, it was forever (depletion of neurotransmitters led to untreated depression, which led to depression-induced dementia). I recognized the symptoms, and I sought help. The problem is that there's very little help to be had. We have a total of three books (Shelli Kessler, Idelle Davidson, and Carol Devenir) and two blogs ...

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Working Through Cancer Anger
April 01, 2015
From the moment my doctor felt the lump in my breast, through testing and treatment, I wasn't angry about cancer. I was stage 2A, triple positive, so they threw everything at me: surgery (bilateral mastectomy), chemo (ACT), monoclonal antibody (Herceptin), radiation, hormonal therapy (tamoxifen). I'm fully cognizant that even with all that treatment, my cancer may come back, but I don't waste time worrying about it. I'd rather live my life. Unfortunately... I got angry when I realized that anesthesia, infusion drugs and oral therapy damaged my brain, and my oncologists and other doctors did nothing but shrug at me and offer an antidepressant. I wasn't depressed. I was confused and boggled and disorganized and thoroughly fatigued. I was also very afraid--nay, terrified--that my life was ...

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Clinical Trial Seeks to Unravel Mystery of Chemobrain in Breast Cancer
March 21, 2015
There is alaready a completed study--one with results--by Dr. Patricia Ganz and her colleagues at UCLA: http://www.medicalnewstoday.com/releases/291006.php You can access the full study with the link at the bottom of the page. If you use the PatientAccess link at the destination, you can purchase a copy for the nominal fee of $3.50. (RightsLink is an excellent resource, and many papers are available free of charge, but I've never paid more than $3.50 for one.) Admittedly, I have a bias. Dr. Wong was my oncologist, and although I complained to her long and loud about chemobrain, she had no referrals to make, nor even a suggestion as to what I might do about it. I got nothing but a blank look every time I brought up the issue. Not ...

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