I have a rare cancer and have to travel to M.D. Anderson for treatment. So not only is the treatment and care expensive, the cost to get there, to stay, to eat while there is overwhelming! It has been a major hardship on our family and I feel bad about it, but have no choice.
After reading this article I felt a sense of relief that it wasn't just me. I am back at work three days a week after the removal of a rare cancer, dedifferentiated liposarcoma. It was a 6 hour surgery to remove a tumor the size of a football and I lost my left kidney. I had radiation, a very aggressive recurrence and chemo. I have been back at work for 8 months and the disability insurance company treats me like I am trying to pull one over on them when I say that I'm so tired and I'm doing the best I can. Thank you for an article that really hit home!
When I was diagnosed with a rare cancer and called the Oncologist that I wanted to take care of me, the first thing the receptionist ask was if I had "Obamacare", because we do NOT accept it.
I had a rare cancer I needed to go to a cancer hospital and "Obamacare" does not cover any type of cancer hospital. If I had not had my own insurance I would be actively dying because no one in my area knew how to treat my type of cancer.
I would not have been able to go to the doctor that I wanted nor to the hospital that I needed. It certainly is not a good thing for me personally.