Thank you for being understanding. I agree--I can't change the past (but maybe others can learn from me being willing to talk about it and embarrass myself a bit) and cancer is very scary the first time in a society that doesn't do well talking about death. I did write a book to help fellow survivors "Cancer Survivorship Coping Tools" and I love your idea about writing a book with perspectives of many different people and their thoughts about their cancer. Appreciate your ideas above!
You ARE getting through and coping. Sadness and anger make sense some days and other happier emotions will come back gradually more and more into your life too. Hang in there and do be kind and gentle to yourself. Communicate to your doctors and spiritual leaders what is happening and how you are feeling. Sending prayers and hugs.
Yes I have heard of others. I struggle with joint pain too but the doctors have attributed as a side effect to the anastrazole I am on because my cancer was ER+. With triple negative, I just don't know. Sorry. Might discuss this with your general practitioner too?
Hi Pattie, I am not a research scientist--just a fellow patient. I just remember reading a study somewhere along this journey that said that cancer survivors were statistically more likely to have a cancer compared to the general population. Sorry I am not more help.
Thank you to Justme (no worries about the extra posts) and to everyone else who is discussing my pink October article here. I am humbled and grateful for all your excellent thoughts and understandable frustrations. I wish I could have coffee and discuss with all of you. Excellent ideas, please keep them coming, and hopefully that will help get our ideas out there!
Hi Kimmie, I probably need to clarify--my first diagnosis was breast cancer and my second diagnosis was melanoma on the shoulder on the opposite side from the breast cancer. I wasn't happy about the second cancer but my long-term odds for the melanoma are about the same odds of my breast cancer returning. I was unhappy and upset, but I knew the drill and sort of felt, hmm, resigned? I am weary of having skin checks and biopsies every 3 months and additional larger excisions removed each time the lab finds something it doesn't like. Moving forward takes lots of time--years rather than months, in my opinion, to get through some of the scans and, hopefully, some of the side effects will gradually improve for ...
Aloha from Minnesota. Very good question. I hope others chime in. I think everyone who has had cancer has more anxiety and stress now with the pre-scan stage. Some people stress several months in advance. Others, a few days or anywhere in-between. My suggestions are to try to use techniques that will help calm you and talk to one or more people who understand what you are talking about--you don't have to go this part alone either! If you have a belief system to help that might provide some comfort too. I try to refocus, tell myself not to stress about what I can't control, and to put everything in God's hands. I think the answers to your question are as varied as the number
Hi golden1, thank you for writing. You are in my thoughts and prayers. Please keep me posted. Maybe it will be easier to process when there is a medical plan in place. It is hard to deal with bad news combined with unknowns. If you have a safe place, go curl up in it and be gentle with yourself. I know--easier said than done. Take care.
Wow. Thank you all. I definitely feel less alone with this, but it also sad there are so many of us struggling so far out with fatigue. Just to clarify, I was 46 at diagnosis, and I am now 52, yet my body feels much older than that to me. I hope everyone reads each others' comments and ideas. Honestly, there is more good information in the links and comments then in my article.