Article Talk: Understanding Retroperitoneal Sarcoma

Started by mjalal, November 22, 2017
2 replies for this topic
mjalal

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Posted on
November 22, 2017
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Sherlock

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Posted on
December 14, 2017
I would love to meet Dr.Tseng. I am 11 months post chemotherapy and scans on Dec 1, 2017 showed a local recurrence near bladder and colon. No where near the size of the original beast. Maybe I will refer to the beast Dr. Tseng writes about, " GODZILLA " What I am confused about is why medical team hasn't proceeded with a functional MRI. Also my symptoms loss of appetite,Nausea,extreme lower back pain left side near Facet joint, blurred vision with white spots, unable to stay on top of breadth, heart palpitations, extreme muscle pain both legs, numbness, pins in needles both hands right foot. These dont correlate with a tumor a few inches in size near bladder and colon causing this. I knew before I looked at the recent scans that Godzilla had reutrned. I have been telling the medical community for 15 years about fatigue, system wide muscle pain, night sweats,almost feels like flu but is not. Sometimes I would need 15 to 20 hours of sleep when these system wide flare ups or symptoms would occur. 15 years later I headed into my second resectional surgery in 19 months. I am tired. I welcome any thoughts.
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Josiane

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Posted on
February 28, 2018
I am a 62 y old woman fromBelgium in Europe and in july 2015 I was diagnosed with dedifferentiated retroperitoneal liposarcoma.After radiotherapy, the primary tumor of 8 kg was completely removed on 3 nov 2015 and I lost my left kidney, spleen, pancreastail, piece of intestines and diafragm. In nov 2016 I had my second operation and now in nov 2017 there are 2 tumors along the liver so I had chemotherapy doxorubicine/ifosfamide without result.Now I will have radiotherapy.Is there any immunotherapy that would help to beat this BEAST?? please answer me
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