Recognizing the Champions Among Us

CURE® MPN Heroes®

 

Commitment to the Individual

Jean Diesch was diagnosed with polycythemia vera (PV) in 2009 and subsequently devoted herself to creating a culture of information and acceptance for people living with MPNs. Diesch’s advocacy efforts have created an extensive and wide-ranging network of education, awareness and support and allow her to focus on helping others in the MPN community.

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Lori Jemison, RN, is the clinical coordinator for the malignant hematology team at Froedtert Hospital. Since joining the team, Jemison has made a habit of going the extra mile for her patients. She has also developed MPN patient-focused resources and support group events that center on topics to help her patients successfully manage their conditions.

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Celia Miltz has been active in the MPN community for decades. When her 16-year-old daughter was diagnosed with essential thrombocythemia (ET) in 1997, Miltz dedicated herself not only to raising awareness of this rare, chronic blood cancer but also to raising hundreds of thousands of dollars for MPN research through Friends of ET, an organization she founded.

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Jaden Persaud, at 12 years old, has already raised over $2,000 for the Leukemia & Lymphoma Society. After his mother was diagnosed with an unclassified, nonspecific MPN, Jaden dedicated himself to helping her and giving back to the MPN community. He also started the charity Stuffies for Survivors.

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Commitment to the Broader MPN Community

Angela Fleischman, M.D., Ph.D., is a dedicated and well-respected researcher at the University of California, Irvine, who investigates the disease development of MPNs. In addition to engaging in wide-ranging clinical research, Fleischman has spent years developing and organizing patient-centric MPN educational events and resources. She is currently investigating many different areas of MPN.

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Richard French’s daughter Amber was diagnosed with ET in 2003. French called on his decades of experience as a broadcast professional to create a public service announcement highlighting information on MPNs. Sharing the announcement with hundreds of TV stations, French was successful in using media to increase awareness of MPNs on a national scale.

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Bob Rosen, MBA, decided to take action after he was diagnosed with PV in 1997. He dedicated himself to furthering scientific research focused on MPNs, founding the MPN Research Foundation, which has become a leading organization driving research into MPN-related fields and has raised millions of dollars for MPN research and discovery.

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Marcy Worthington plays a long-standing, key role at the MPN Education Foundation’s biannual Joyce Niblack conferences. She is also a list owner for the support group MPN-NET, allowing her to interact with many other people living with MPNs. Worthington always takes time to send someone vital information that they can share with their doctor to help both the patient and the health care professional make the most informed decisions.

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