http://www.curetoday.com/conferences/sgo-2018/four-individuals-named-ovarian-cancer-heroes-at-inaugural-event-
Four Individuals Named Ovarian Cancer Heroes at Inaugural Event

Katie Kosko

Patrick Dempsey
Driving research and awareness by working together are ways in which the word cure might one day be heard in the ovarian cancer community. Members of the tight knit “teal army” gathered last night for the inaugural Ovarian Cancer Heroes gala.

Actor, cancer advocate and Breakaway from Cancer® Ambassador Patrick Dempsey was the keynote speaker whose message of collaboration, compassion and empathy captivated the audience of more than 150 gynecologic oncologists, nurses, advocates, patients and loved ones.

“It is such a tremendous honor to be in this room with real doctors,” joked Dempsey, who starred on the hit show Grey’s Anatomy playing neurosurgeon Derek Shepherd.

He took a serious note as he talked about his personal connection to ovarian cancer. His mother, Amanda, was diagnosed with the disease in 1997 and passed away in 2014. “It was devastating,” he said recalling her diagnosis. “It was so hard to process what that means and what can we do. In 1997, it wasn’t like we had a lot of time and we didn’t think we were going to have her for very long. Ultimately, she lived 17 years.”

“I was very fortunate that I had time to talk to my mom,” added Dempsey. “When my mother passed away we had cleared everything. We were understanding what was happening. That doesn’t always happen. And that’s unfortunate because this disease is so vicious.”

His mother’s diagnosis was the main reason he and his sisters founded the Dempsey Center in Lewiston, Maine — Dempsey’s birthplace — in 2008. The center provides free cancer support, education and integrative medicine services to people affected by the disease with more two dozen programs at their fingertips, such as support groups, grief programs, stress management, gentle yoga, knitting and nutrition education classes.

“We want to learn from you. We want to talk to you,” said Dempsey. “We are already inspired by the conversations we had before we even got into this room. My head is spinning with ideas. We’re doing so much great work at the center because of the volunteers and survivors.”

He continued, “To see what individuals can do with passion. They are driven, and how many people they affect along the way is phenomenal. That’s the real success.”
At the gala, held in New Orleans ahead of the 49th Society of Gynecologic Oncology (SGO) Annual Meeting on Women’s Cancers, four individuals — a physician, nurse navigator and two patient-turned-advocates — were awarded for the contributions they have made to increase awareness and advance research and education for ovarian cancer.

“To have the opportunity to recognize the advocates in the cancer field is such a wonderful opportunity for me,” said Kathy LaTour, CURE® co-founder and the evening’s mistress of ceremonies. “I have seen people in the cancer world quit their jobs and commit to something where there wasn’t any pay, but the pay for them was that they didn’t have to let someone else go through what they had been through.”

Limitless Efforts
The first Hero honored has been in oncology nursing for more than 30 years. Carolyn Berson, RN, MSN, serves as a liaison between the health care team and patient from the time of diagnosis through continuum of care. For the last 11 years, she has worked as a nurse navigator for the Gynecologic Oncology program at John Muir Health in Walnut Creek, California, providing guidance to patients and their families, especially in areas of symptom management and quality of life.
 
OC Heroes
Berson’s patient, Tamar Vered, nominated her for the honor and stood next to her as she was presented with the award. Vered stated that Berson filled an “invaluable role” as she feared her life was over at 48 years old following her ovarian cancer diagnosis. “If it weren’t for Carolyn, I wouldn’t be where I am today, with a positive outlook, well-educated regarding the disease and with an organized approach to tackle and continue to fight what has been the toughest time of my life,” said Vered.
Sue Friedman, DVM, was diagnosed with breast cancer more than 20 years ago. Upon learning she carried the BRCA2 mutation, she realized not enough information about hereditary breast and ovarian cancer existed. She gave up her veterinary career, and, from her living room, she created Facing Our Risk of Cancer Empowered (FORCE), for which she currently serves as executive director. The national nonprofit organization offers many free services including a peer navigation program, research recruitment for clinical trials and a program, XRAYS, that translates media reports on emerging research into language that patients and caregivers can easily understand.

“I was diagnosed with a BRCA mutation in 2009,” said Karen Kramer, senior vice president of marketing at FORCE and Friedman’s nominator. “Thankfully, my genetic counselor introduced me to FORCE. It was the information and support that I received from FORCE that allowed me to make informed medical decisions that were right for me and my family. Today, I am a very grateful breast and ovarian cancer previvor. I owe so much of that to FORCE and to Sue.”
Like Friedman, Susan Leighton also saw firsthand the limited amount of resources and research being done to improve survival for patients fighting ovarian cancer. Diagnosed with stage 3C disease in 1997, she set the wheels in motion as she recovered from treatment. In 2004, Leighton co-founded Lilies of the Valley, a nonprofit organization that supports women with gynecologic cancers in the Tennessee Valley. Since its inception, thousands of women have been provided awareness materials.

Then, Leighton set her sights even higher. She took her efforts to Capitol Hill to push for funding. She also joined forces with the Ovarian Cancer Research Fund Alliance for which she serves as the national program director of its Survivors Teaching Students program. Under her guidance, 850 volunteers educated more than 11,000 medical and nursing students nationwide about ovarian cancer in 2017.

“Wherever there is a need, she works to fill it,” said Regina Parker, executive director of Lilies of the Valley. “She is tireless, fearless and has touched many lives through her efforts on behalf of women with ovarian cancer.”

Laurel Rice, M.D., chair of the Department of Obstetrics and Gynecology and a professor in the Division of Gynecologic Oncology at the University of Wisconsin-Madison School of Medicine and Public Health, also serves as president of SGO. Since taking on the role, she has worked to increase the number of cutting-edge clinical trials available for women’s cancers through a multi-pronged approach. Rice created a Clinical Trials Task Force to develop a mentoring platform for junior investigators, a campaign to support federal funding of clinical trials, a grassroots campaign to raise public awareness of trials and a public/private partnership to improve the availability of trials. In addition, she has been instrumental in trying to launch a patient-friendly online search platform and patient navigation service to increase enrollment in clinical trials.

“The breadth and depth of all of these efforts, driven by Dr. Rice, are already reversing the downward spiral of gynecologic cancer clinical trials,” said Ellen Sullivan, M.S., M.S.J., chief communications and advocacy officer of SGO and the Foundation for Women’s Cancer. “They offer great hope for future progress in the prevention, treatment and cure of ovarian cancer.”

Support for a Cure
The Ovarian Cancer Heroes event was hosted by CURE Media Group and sponsored by Tesaro, developer of two oncology agents — Zejula (niraparib), an oral PARP inhibitor, which is approved for the maintenance treatment of adult patients with recurrent epithelial ovarian, fallopian tube or primary peritoneal cancer who are in a complete or partial response to platinum-based chemotherapy, and Varubi (rolapitant), an injectable agent approved to help prevent delayed nausea and vomiting associated with chemotherapy.

“We measure our success by the number of patients and their loved ones that we impact in a positive manner,” said Kristin Ainsworth, vice president, Corporate Affairs and Patient Advocacy. “Our founders built Tesaro as an organization focused on patients. It’s not just something we say. It’s something we live and act on every day.”

In a congratulatory message to the four Heroes honored, Erik Lohrmann, vice president, CURE Media Group, said, “Your courage, strength and dedication to the betterment of patient care are an inspiration to us all. Thank you for all that you’ve done and all that you will do in the future.”
 
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