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An Effective Complement to the Pap Smear
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HPV Vaccination Recommendations
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Resources
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A Study of Dietary Prudence
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Debt Collection: Playing Fair
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Fast Facts: John Plumb Sr.
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Bearing the Bankruptcy Burden
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Debt-Fighting Strategies
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What to Watch For
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Web Exclusive: Possible Barriers to Palliative Care
March 10, 2008 – The American Cancer Society
Recommended Resources
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Doctors in Training
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Now That I'm An Adult
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For When It Hurts
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Cancer Around the World
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Making a Difference
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The High-Risk Crowd
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Risk Factors: Close to Home
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Long-Distance Lifesavers
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Protecting Yourself
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Schools Get Schooled on Parents with Cancer
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DES Exposure: Questions and Answers
March 10, 2008 – The American Cancer Society
Are Public Awareness Campaigns Effective?
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The New Specialty in Cancer Care
March 10, 2008 – Joanne Kenen
Below the Surface
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Another Deafening Silence
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How Out-of-Towners Stay in the Loop
March 10, 2008 – Marc Silver
Are Minorities Benefiting From Prevention Priority?
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When the Ordinary Becomes the Ideal
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Q&A: Predicting Breast Cancer Recurrence
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Journeys Through Cancer: Art of Healing & Hope
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Seventies Musicians Linked by Cancer
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Insurance for Clinical Trial Care a State-by-State Battle
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An Effective Complement to the Pap Smear
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HPV Vaccination Recommendations
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A Shot at Prevention
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Prevention in America
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Resources
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Reel-Life Cancer
February 04, 2008 – Lacey Meyer
Voices
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Defining Perceptions
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A Study of Dietary Prudence
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Gastronomical Distress
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Debt Collection: Playing Fair
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Fast Facts: John Plumb Sr.
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Snippets
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Snippets
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Bearing the Bankruptcy Burden
July 21, 2010 – Teresa McUsic
Debt-Fighting Strategies
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What to Watch For
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Here We Go Again
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Snippets
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Shining Light on Detection
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Preparing for the Breast Cancer Paradigm Shift
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Diagnosis: Critical Mass
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The Healing Zone
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Letters
February 04, 2008
Figurative Testimonials
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Relay for (Second) Life
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Shouldering Debt
February 04, 2008 – Teresa McUsic
Heart & Lung Watch
February 04, 2008 – Debra Wood, RN
Web Exclusive: Possible Barriers to Palliative Care
March 10, 2008 – The American Cancer Society
Recommended Resources
March 10, 2008 – Elizabeth Whittington
Doctors in Training
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Now That I'm An Adult
March 10, 2008 – Claudia Craemer-Meihsner as told to Eric Ness
For When It Hurts
March 10, 2008 – Joanne Kenen
Cancer Around the World
March 10, 2008 – Jo Cavallo
Currently Viewing
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March 10, 2008 – Jo Cavallo
Risk Factors: Close to Home
March 10, 2008 – Nicole LeBrasseur, PhD
What's Behind the Screen?
March 10, 2008 – Nicole LeBrasseur, PhD
Long-Distance Lifesavers
March 10, 2008 – Marc Silver
Intimacy Issues
March 10, 2008 – Curtis Pesmen
Protecting Yourself
March 10, 2008 – Katy Human
Schools Get Schooled on Parents with Cancer
March 10, 2008 – Erik Ness
DES Exposure: Questions and Answers
March 10, 2008 – The American Cancer Society
Are Public Awareness Campaigns Effective?
March 10, 2008 – Lacey Meyer
The New Specialty in Cancer Care
March 10, 2008 – Joanne Kenen
Below the Surface
March 10, 2008 – Nicole LeBrasseur, PhD
Another Deafening Silence
March 10, 2008 – Betty Ferrell, PhD, RN
How Out-of-Towners Stay in the Loop
March 10, 2008 – Marc Silver
Are Minorities Benefiting From Prevention Priority?
March 10, 2008 – Jo Cavallo
Marriage and Cancer?
March 10, 2008 – Curtis Pesmen
On the Defensive
March 10, 2008 – Katy Human
Breast Cancer & Lung Cancer
March 10, 2008 – Elizabeth Whittington
When the Ordinary Becomes the Ideal
March 10, 2008 – Linn Kurkjian
Straight Talk
March 10, 2008 – Erik Ness
Dieting Away Cancer?
March 10, 2008 – Lena Huang
Message from the Publisher
March 10, 2008 – Susan McClure
More Radiation in Less Time
March 10, 2008 – Laura Beil
Letters from Our Readers
March 10, 2008
Friend in Need: Chemo Duck
March 10, 2008 – Elizabeth Whittington
www.cancer.gov/bcrisktool
March 10, 2008 – Elizabeth Whittington
Breast Cancer Risk May be Overstated in BRCA Carriers
March 10, 2008 – Elizabeth Whittington
Q&A: Predicting Breast Cancer Recurrence
March 10, 2008 – Len Lichtenfeld, MD
Journeys Through Cancer: Art of Healing & Hope
March 10, 2008 – Elizabeth Whittington
Cancer on $5 a Day (*chemo not included): How Humor Got Me Through the Toughest Journey of My Life
March 10, 2008 – Kathy LaTour
Exploring the Origin of Childhood Leukemia
March 10, 2008 – Elizabeth Whittington
We Can Weekend
March 10, 2008 – Elizabeth Whittington
Seventies Musicians Linked by Cancer
March 10, 2008 – Elizabeth Whittington
Insurance for Clinical Trial Care a State-by-State Battle
March 10, 2008 – Elizabeth Whittington

Making a Difference

 Strategies for preventing cancer in people with a genetic predisposition.

BY Jo Cavallo
PUBLISHED March 10, 2008

Edith Joyner, 61, won’t personally benefit from participating in the Sister Study, but it was important for her to join, she says, not only to honor her two sisters who battled the disease, but to help the next generation of females in her family avoid the same fate.

Joyner also wanted to spread the word to other African-American women about the importance of enrolling in cancer prevention trials, especially for a disease that claims the lives of about 6,000 African-American women each year. When Joyner heard that the number of African-American women in the Sister Study was so low—just 4,150 of the more than 46,000 women enrolled so far—she decided to take action.

“First of all, I wanted to make African-American women aware of the study, and then I wanted to make them feel comfortable and secure enough to participate in the study. My job is to give them that personal touch,” says Joyner, of Nashville.

Despite a diagnosis in 2003 of sarcoidosis, an inflammatory disease that affects her breathing and limits her mobility, Joyner works tirelessly to reach as many women as she can, both one-on-one and in large group settings.

“[African-American women] are unique as far as breast cancer is concerned. There’s a uniqueness about us [in incidence and survival rates] that hasn’t been discovered yet because not enough of us have participated in research. But it’s all how you present the [message] to African-American women, and sticking a brochure in our hands isn’t going to do it,” says Joyner.

Instead, Joyner calls on church leaders for an invitation to speak to their congregations and addresses groups attending conferences of the African-American United Methodist churches and other black organizations. Next on her list is handing out Sister Study brochures to women in hair salons.

“I get a great response when I speak to women one-on-one. There are times when women say I don’t have a sister or I don’t know anyone with breast cancer, but I don’t let them leave me without giving them a brochure because I know that once they [walk away] they’ll come up with somebody they know and I don’t want them to be empty-handed,” says Joyner.

Joyner says being involved in the Sister Study, both as a participant and advocate, has helped ease the pain of losing her sister, Carrie Noland, to breast cancer four years ago, and given her the satisfaction of knowing her efforts may help prevent future generations of women from getting the disease.

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