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Letters from Our Readers
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Treatment Updates
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The More You Know
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Patients' Songs Take Flight
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Q&A: Cervical Cancer Vaccine
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Uncertain Obligations
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Beyond Face Value
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Layman's Terms
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All Stressed Out
December 23, 2009 – Laurie M. Fisher
Bad Neighbors
December 22, 2009 – Laura Beil
Treatment Snapshot
March 24, 2010
Excerpt from "Only 10 Seconds to Care"
December 23, 2009 – Wendy Harpham, MD
Cancer as a Turning Point
December 23, 2009 – Don Vaughan
Best Face Forward
December 23, 2009 – Lacey Meyer
Recipes from Chef Hans Rueffert
December 20, 2009
A Skinny Chef You Can Trust
December 22, 2009 – Karen Patterson
Getting Help
December 23, 2009 – Jo Cavallo
Stress Reducers
December 23, 2009 – Laurie M. Fisher
Cisforcupid.com
December 23, 2009 – Lacey Meyer
Only 10 Seconds to Care: Help and Hope for Busy Clinicians
December 23, 2009 – Kathy LaTour
Flavored-Cigarette Ban Takes Effect, With More to Come
December 23, 2009 – Lacey Meyer
Stress, Depression & PTSD
December 23, 2009 – Laurie M. Fisher
Imaging Strategies: The Bigger Picture
December 23, 2009 – Laura Beil
Herceptin Combinations Improve Survival, Lessen Heart Toxicity
December 23, 2009 – Laura Beil
Integrative Techniques: A Sampler
December 23, 2009 – Marc Silver
Drug Therapies
December 23, 2009 – Elizabeth Whittington
Letters from Our Readers
December 23, 2009
Treatment Updates
December 23, 2009 – Staff Reports
CDC picks up the tab for colon cancer screening
December 23, 2009 – Lacey Meyer
Mutant Tissue Wanted
December 23, 2009 – Kathy LaTour
Currently Viewing
The More You Know
December 23, 2009 – Helen Osborne
Q&A: Cervical Cancer Vaccine
December 23, 2009 – Len Lichtenfeld, MD
Comfort in Strange Places
December 23, 2009 – Susie Kasinski Drummond
The 'Price' is $1 Million
December 23, 2009 – Lacey Meyer
Pancreatic Cancer Symposia
December 23, 2009
Tired of Being Tired?
December 23, 2009 – Lacey Meyer
Message From the Editor
December 23, 2009 – Debu Tripathy, MD
Beneficial Brew
December 23, 2009 – Lena Huang
Gut Reaction
December 23, 2009 – Karen Patterson
Today's Lesson: Cancer
December 23, 2009 – Bunmi Ishola
Uncertain Obligations
December 23, 2009 – Jo Cavallo
Beyond Face Value
December 22, 2009 – Terry Healey
Cancer's Silver Lining
December 22, 2009 – Don Vaughan
Kids Allowed
December 21, 2009 – Marc Silver
Layman's Terms
December 23, 2009 – Charlotte Huff
All Stressed Out
December 23, 2009 – Laurie M. Fisher
Bad Neighbors
December 22, 2009 – Laura Beil

The More You Know

How much is enough when it comes to cancer information?

BY Helen Osborne
PUBLISHED December 23, 2009

I’m a health care provider and health literacy consultant. I often help organizations communicate medical information in a way that is understandable for patients and their families. Obviously, I’m a believer in the power of information.

I still remember Paula touching my arm with tears streaming down her face. ‘You mean, I don’t have to keep learning more?’ 

So what is the right amount of cancer information for you? Perhaps if you are like Joan and Eric, you will want to find out everything you can. Or if you are more like Paula, then a limited amount of online research may be sufficient. Or maybe you are like me and have an adequate baseline of understanding and look primarily to your treatment team to teach you more. 

You are the only one who knows how much information is enough. Best wishes doing your research—or not, if you prefer.

—Helen Osborne, MEd, OTR/L, is the founder and president of Health Literacy Consulting (www.healthliteracy.com) and the founding director of Health Literacy Month (www.healthliteracymonth.org). 

But I started to question this belief when I was the patient, not provider. Four years ago, I was diagnosed with early-stage breast cancer. This diagnosis not only changed me physically but also made a profound difference in the way I think about health communication. 

Before my diagnosis, I assumed that more health information was always better than less. When writing patient education materials, I liked to include a statement like this: “Learn as much as you can about your illness and its treatment.” 

Now it was me reading such directives. In truth, I didn’t always want to learn more. Admittedly, I was fairly knowledgeable about breast cancer as, ironically, not too long before my diagnosis I helped write and edit the National Cancer Institute’s booklet “Surgery Choices for Women with Early-Stage Breast Cancer” (www.cancer.gov/cancertopics/breast-cancer-surgery-choices). 

Now diagnosed, I spoke at length with my doctors about treatment options and outcomes. I also talked with a few women in situations like my own. Most of the time, that was sufficient information for me. I found that I would get more confused and overwhelmed when I read a lot of articles about research or looked at many websites for patients. I also found that new information often raised my level of anxiety as I would zero in on the worst possible outcome and be certain that it would happen to me.

So what’s the right amount of cancer information? The lesson I’ve learned from being on both sides of the health care conversation is that there is no right amount. Just as our physiology differs, so too does our need and desire for health information.

For instance, Joan was my dear friend and neighbor when diagnosed with colon cancer in her mid-40s. She and her husband, Eric, were always active information-seekers and this proved true for her diagnosis, too. Alone and together, they spent many hours researching her treatment options. They both said that this extensive research process helped them cope with what turned out to be a dire prognosis.  

Another friend, Paula, was the director of our town’s public library. She was diagnosed with an aggressive form of lung cancer around the same time I received my diagnosis. We met for breakfast to compare notes about our cancer journeys. I shared that one of my most surprising discoveries was that I didn’t always want to learn more—and that this was OK. I still remember Paula touching my arm with tears streaming down her face. “You mean, I don’t have to keep learning more?” She added, “Until now, I had this niggling feeling that I was not doing enough for my health if I didn’t go to the Internet at least twice a week.” 

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