Toolbox
People with cancer and their families need help with the practical and emotional issues of the disease. Search our comprehensive list of resources for agencies and non-profit organizations for information on specific cancers, patient and survivor issues, financial help, and integrative therapies.
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General Resources
American Cancer Society (ACS) S
www.cancer.org
800-ACS-2945 (800-227-2345)
A voluntary organization that offers a variety of services to patients and their families. The ACS also supports research, provides printed materials, and conducts educational programs.
American Cancer Society Cancer Action Network, Inc.
www.acscan.org
An advocacy organization and nonpartisan affiliate of the American Cancer Society, the ACS CAN works to encourage elected officials and candidates to make cancer issues a national priority. ACS CAN provides training and tools for individuals, and funds grassroots, lobby and media campaigns to help win the war on cancer.
American Institute for Cancer Research (AICR) S
www.aicr.org
800-843-8144
E-mail: aicrweb@aicr.org
Provides information about cancer prevention, particularly through diet and nutrition. They offer a toll-free nutrition hotline, pen pal support network, and funding of research grants.
American Society for Therapeutic Radiology and Oncology (ASTRO)
www.astro.org
800-962-7876
ASTRO provided up-to-date cancer research, brochures and videos to patients and patient advocates, and has a directory where patients can locate radiation oncologists in their area.
American Society of Clinical Oncology (ASCO)
www.asco.org
888-282-2552; 571-483-1300
E-mail: membermail@asco.org
Contains more than 40,000 pages of information, including: cancer resources on the Internet, finding an oncologist, and up-to-date information about cancer policy issues.
Anderson Network
www.mdanderson.org/andersonnetwork
800-345-6324
E-mail: andersonnetwork@mdanderson.org
Along with providing educational forums and a quarterly newsletter, the Anderson Network offers a patient-matching program and support for caregivers.
Angiogenesis Foundation, The
www.angio.org
617-576-5708
E-mail: info@angio.org
Provides patients with information on angiogenesis, antiangiogenic treatments and clinical trials. Their mission is to help bring about new treatment for patients based on medicines that control blood vessel growth.
Association of Cancer Online Resources
www.acor.org
E-mail: Feedback@acor.org
Provides resources for cancer patients wanting to find others with similar cancers. Also has information about most kinds of cancer.
CANCER101
www.cancer101.org
646-638-2202
E-mail: info@CANCER101.org
Provides newly diagnosed patients with organizational tools and planners.
Cancer411.org
www.cancer411.org
818-842-1504
E-mail: al@alleifer.com
Provides database on clinical trials that lists all ongoing cancer trials. Also offers news articles and other patient resources.
Cancer and Careers S
www.cancerandcareers.org
E-mail: ksweeney@cew.org
Provides a free workbook, educational resources, support and information for both cancer patients and survivors, as well coworkers, managers, CEOs and human resources personnel about cancer patients and survivors working through their treatment and returning to work.
Cancer Control PLANET (Plan, Link, Act, Network with Evidence-based Tools)
cancercontrolplanet.cancer.gov
Developed as a joint effort between the National Cancer Institute and the American Cancer Society, among others, this site offers new tools for cancer control planning, implementation, and evaluation.
CancerCare S
www.cancercare.org
800-813-HOPE (4673)
E-mail: info@cancercare.org
A national nonprofit agency that offers free support, information, financial assistance, and practical help to people with cancer and their loved ones. Services are available in person, over the phone, and through the agency's website.
Cancer Hope Network
www.cancerhopenetwork.org
877-HOPENET (877-467-3638)
E-mail: info@cancerhopenetwork.org
The Cancer Hope Network provides individual support to cancer patients and their families by matching them with trained volunteers who have undergone and recovered from a similar cancer experience.
Cancer Information and Counseling Line (CICL)
www.amc.org/counseling/
800-525-3777
E-mail: contactus@amc.org
A free service provided by AMC Cancer Research Center, professional counselors provide up-to-date medical information, emotional support through short-term counseling, and resource referrals to callers nationwide (8:30 a.m. - 5 p.m. MST).
Cancer.Net S
Cancer.Net
888-651-3038; 888-273-3508
E-mail: contactus@cancer.net
Formerly People Living With Cancer. Links all ASCO information and materials in addition to giving other communication access to people with all kinds of cancer.
CaringBridge S
www.caringbridge.org
651-452-7940
A free Internet service that provides personalized web pages to help keep friends and family informed of life events. It also allows visitors to post encouraging messages and support on individualized password-protected websites.
Center for Cancer Support & Education, The
www.centerforcancer.org
781-648-0312
E-mail: ben@centerforcancer.org
Empowers and supports people touched by cancer, their caregivers and loved ones, by offering resources to enhance life as they move forward.
Center to Reduce Cancer Health Disparities
crchd.cancer.gov
301-496-8589
E-mail: crchd@mail.nih.gov
Part of the National Cancer Institute, The Center to Reduce Cancer Health Disparities (CRCHD) central to the NCI's efforts to reduce the unequal burden of cancer in our society and train the next generation of researchers in cancer and cancer health disparities research.
C.H.A.I.N. Fund, The
www.thechainfund.com
203-530-3439
Assists cancer patients while they are out of work.
ChemoCare.com S
www.chemocare.com
ChemoCare.com is a web resource developed by cancer survivor/figure skater Scott Hamilton in conjuction with the Cleveland Clinic. The site provides the latest information about chemotherapy to patients, their families, friends and caregivers. It is designed to alleviate patient concerns about chemotherapy and outline everything they need to know in the following sections: What is Chemotherapy?; Chemotherapy Drugs; Managing Side Effects; Eating Well During Chemotherapy; and Before and After Chemo.
Coalition of Cancer Cooperative Groups
www.CancerTrialsHelp.org
877-520-4457
E-mail: Info@CancerTrialsHelp.org
This site contains a search engine to find cancer clinical trials closest to your home, comprehensive self-study guide, patient discussion forum and helpful information for patients and caregivers.
Commission on Cancer
www.facs.org/cancer
312-202-5085
E-mail: coc@facs.org
The Commission on Cancer (CoC) is a consortium of professional organization dedicated to improving survival and quality of life for cancer patients through standard-setting, prevention, research, education, and the monitoring of comprehensive quality care.
Fighting Chance
www.fightingchance.org
631-725-4646
E-mail: info@fightingchance.org
A network of individuals who have been touched by cancer and can offer support and understanding. Offers "Coping with Cancer on the East End: A Practical Resource Guide" for free.
Georgia Cancer Coalition
www.georgiacancer.org
404-584-7720
E-mail: mail@georgiacancer.org
The Georgia Cancer Coalition is an independent, non-profit organization that unites government agencies, academic institutions, civic groups, corporations and health care organizations in an effort to strengthen cancer prevention, research and treatment in Georgia. Offers resources for treatment access and clinical trials, prevention, survivorship, among others.
Gilda's Club, Inc.
www.gildasclub.org
888-GILDA-4-U (888-445-3248)
E-mail: info@gildasclub.org
Provides social and emotional support to cancer patients, their families, and friends. Lectures, workshops, networking groups, special events, and a children's program are available. Open in 14 cities.
Hope For Two
www.pregnantwithcancer.org
800-743-4471
E-mail: info@hopefortwo.org
Hope for Two, the pregnant with cancer network, connects women who have been diagnosed with cancer during pregnancy with other women who have been through a similar situation.
International Cancer Alliance for Cancer Research and Education (ICARE)
www.icare.org
301-656-3461; 800-ICARE-61 (800-422-7361)
E-mail: contact@icare.org
Provides a free Cancer Therapy Review, which includes information on a specific type of cancer (description and staging, treatment, diagnostic tests and clinical trials). "Cancer Breakthrough" report is sent out quarterly.
Kids Konnected S
www.kidskonnected.org
800-899-2866
E-mail: info@kidskonnected.org
Offers a variety of support services free to children, ages 3-18, who have a parent with cancer or who have lost a parent to cancer.
Lance Armstrong Foundation S
www.livestrong.org
877-236-8820; 866-673-7205
Helps people with cancer and their loved ones live strong through advocacy, education, public health and research, as well as the LIVESTRONG Resource for Cancer Survivors.
Lotsa Helping Hands
www.lotsahelpinghands.com
E-mail: information@lotsahelpinghands.com
Provides a simple way for friends, family, colleagues and neighbors to pitch in with meals delivery, rides and other tasks necessary for life to run smoothly during a crisis. It uses a free easy-to-use, private group calendar, specifically designed for organizing helpers.
Mautner Project
www.mautnerproject.org
202-332-5536; 866-MAUTNER (866-628-8637)
E-mail: info@mautnerproject.org
The Mautner Project, the National Lesbian Health Organization, provides transportation to and from treatment, legal assistance, support groups, bereavement counseling, education, and a smoking cessation program.
MetaCancer Foundation, The
www.metacancer.org
E-mail: info@metacancer.org
The mission of The MetaCancer Foundation is to provide online psychosocial services, resources, and inspiration for survivors and caregivers living with metastatic cancer.
National Cancer Institute (NCI) S
www.cancer.gov
800-4-CANCER (800-422-6237)
E-mail: cancergovstaff@mail.nih.gov
An excellent and comprehensive site for people wanting to know more about cancer, including cancer prevention, definitions, clinical trial information, recipes, links to cancer centers, and a whole lot more. The NCI's Center for Cancer Research also publishes a free quarterly e-newsletter, the "BethesdaTrials News," designed to help community physicians stay informed of investigational approaches, including clinical trials, to treating, diagnosing and preventing cancer.
National Coalition for Cancer Survivorship S
www.canceradvocacy.org
888-650-9127
E-mail: info@canceradvocacy.org
Offers support to cancer survivors and their loved ones. Provides information and resources on cancer support, advocacy and quality-of-life issues.
National Comprehensive Cancer Network (NCCN)
www.nccn.org
215-690-0300
A non-profit alliance of 20 of the world's leading cancer centers, dedicated to improving the quality and effectiveness of care provided to cancer patients. NCCN develops resources that present valuable information to the numerous stakeholders in the health care delivery system. The primary goal of all NCCN initiatives is to improve the quality, effectiveness and efficiency of oncology practice. To order patient guidelines call 888-909-NCCN (6226).
OncoLink S
www.oncolink.com
Resources for patients, families, and health care workers that is written by doctors, nurses, other health care professionals, and survivors.
Patrick Dempsey Center for Hope and Healing
www.dempseycenter.org
877-336-7287
E-mail: info@dempseycenter.org
Provides education, support, and wellness services to enhance the quality of life for individuals, families, and communities touched by cancer. Services include support groups, educational programs and videos, financial counseling, and information hotline, and intergrative medicine services.
Pine Street Foundation
www.pinestreetfoundation.org
E-mail: 415-455-5878
Website that provides information on evidence-based research on integrative care. Publishes a quarterly newsletter called "Avenues."
R.A. Bloch Cancer Foundation S
www.blochcancer.org
800-433-0464
E-mail: hotline@blochcancer.org
The R.A. Bloch Cancer Foundation offers informational materials, and a list of institutions that offer second opinions. The site also offers, the Bloch Cancer Hotline, which matches newly diagnosed cancer patients with trained, home-based volunteers who have been treated for the same type of cancer.
RT Answers
www.rtanswers.org
800-962-7876
E-mail: rtanswers@astro.org
Powered by ASTRO (American Society for Therapeutic Radiology and Oncology), RT Answers provides disease-specific information on cancers commonly treated with radiation, descriptions of the radiation treatment team, explanations of external beam radiation therapy and brachytherapy, clinical trials information, and details on side effects.
RTSupportDoc.com
www.RTSupportDoc.com
800-462-6420
E-mail: Info@RTSupportDoc.com
This website is dedicated to helping people undergoing radiation therapy. You'll learn more about cancer, radiation therapy, and can sign up for a monthly newsletter.
Team Survivor
www.teamsurvivor.org
E-mail: info@teamsurvivor.org
Team Survivor provides free exercise and health education program for women with a past of present diagnosis of cancer. Our fun and supportive programs offer women the opportunity to reclaim their fitness, gain a sense of accomplishment, build a social system and achieve renewed comfort with their bodies and their health. Our programs are open to women of all ages and fitness levels, in all stages of cancer treatment and recovery.
There With Care
www.therewithcare.org
303-447-CARE (2273)
There With Care is a non-profit organization that provides a range of services for families facing critical illness in order to ease the burden of life's day-to-day obligations during a medical crisis.
The Wellness Community
The Wellness Community
888-793-WELL (9355)
E-mail: help@thewellnesscommunity.org
Provides free psychological and emotional support to cancer patients and their families. They offer support groups on stress reduction and cancer education workshops, nutrition guidance, exercise sessions, and social events.
The WEPAC Alliance
www.wepacthehouse.org
E-mail: wepacinfo@yahoo.com
A non-profit organization that is dedicated to providing resources and education to encourage women in Wilmore, Englewood, Protection, Ashland, and Coldwater, Kansas to take active responsibility for their health. It combines the resources of Ashland Health Center and Comanche County Hospital to meet the collective health care needs of the women in their hospital districts. The WEPAC Alliance has partnered with the Kay Yow/WBCA Cancer Fund ®, a charitable organization committed to being a part of finding an answer in the fight against women's cancers.
Vital Options
www.vitaloptions.org
800-GRP-ROOM (800-477-7666)
E-mail: info@vitaloptions.org
Sponsors of a weekly syndicated call-in cancer radio talk show called "The Group Room." Listeners can participate in the show during its broadcast every Sunday from 4 p.m. - 6 p.m. EST. A live web simulcast available on the website.
Voices of Survivors Foundation
www.voicesofsurvivors.org
E-mail: info@voicesofsurvivors.org
Devoted to exploring what survivorship means in a variety of documentary formats. Survivors can share their stories and help define what 'survivorship' means to themselves, and provide insight to others.
Wonders & Worries S
www.wondersandworries.org
512-329-5757
Provides therapeutic programs for children and their families coping with chronic or life-threatening illness.
Special Interest
Caregiving
CancerCare Young Adults
www.cancercare.org/get_help/special_progs/young_adults.php
800-813-HOPE (4673)
E-mail: info@cancercare.org
CancerCare offers specialized services for young adult patients, caregivers, and those who have lost a loved one, including: counseling, support groups, telephone education workshops, educational publications, financial assistance, and practical help.
Circus of Cancer
www.circusofcancer.org
E-mail: tellus@circusofcancer.org
Provides ideas for how friends and family can show concern and encouragement for someone dealing with breast cancer.
Family Caregiver Alliance
www.caregiver.org
800-445-8106
E-mail: info@caregiver.org
A community-based non-profit organization, it offers information on public policy and research for caregivers, information and advice, a navigator to help find resources and services in your area, as well as discussion groups.
Family Caregiving 101
www.familycaregiving101.org
E-mail: deborah.halpern@thefamilycaregiver.org
A joint program by The National Family Caregivers Association and the National Alliance for Caregiving, the site is designed to provide caregivers with the basic tools, skills, and information they need to protect their own physical and mental health while they provide high quality care for their loved one.
Men Against Breast Cancer
www.menagainstbreastcancer.org
866-547-6222
Targets and mobilizes men to be active participants in the fight to eradicate breast cancer and to provide support to men whose families are impacted by the disease.
MyLifeLine.org Cancer Foundation
www.mylifeline.org
E-mail: info@mylifeline.org
Free, personal websites to all cancer patients. MyLifeLine.org encourages cancer patients and caregivers to create websites to empower patients to build an online support community of family and friends to foster connection, inspiration, and healing.
National Alliance for Caregiving
National Alliance for Caregiving
E-mail: info@caregiving.org
Dedicated to providing support to family caregivers and the professionals who help them and to increasing public awareness of issues facing family caregivers.
National Family Caregivers Association
www.thefamilycaregiver.org
800-896-3650
E-mail: info@thefamilycaregiver.org
The National Family Caregivers Association educates, supports, empowers, and speaks up for those who care for loved ones with a chronic illness or disability or the frailties of old age.
Strength for Caring
www.strengthforcaring.com
866-466-3458
The first national program for cancer caregivers to address both the physical and psychosocial health needs to the patient and caregiver. Free workshops, which are facilitated by trained nurses and social workers, are held at health care facilities and advocacy organizations across the United States. The website includes caregiving tips and resources, information about cancer side effects, caregiving training videos, and an updated listing of Strength for Caring programs in local communities.
Well Spouse Association
www.wellspouse.org
800-838-0879
E-mail: Wendy@wellspouse.org
A national organization focusing exclusively on the needs of those caring for a chronically ill and/or disabled husband, wife, or partner. Offers support groups, forums and other resources.
Wonders & Worries S
www.wondersandworries.org
512-329-5757
Provides therapeutic programs for children and their families coping with chronic or life-threatening illness.
Young Cancer Spouses
www.youngcancerspouses.com
E-mail: shareyourstory@youngcancerspouses.org
The mission of this organization is to bring together young spouses of adults with cancer to share information, support, and experiences. The website provides information on taking care of yourself, medical care, relationships, financial issues, transitions and has an online forum to connect with others.
^ TOP OF PAGEChildhood Cancer
Bear Necessities Pediatric Cancer Foundation
www.bearnecessities.org
312-214-1200
E-mail: ckrupa@bearnecessities.org
Provides hope and support to those who are touched by pediatric cancer. It provides research funding, family support programs, and educational pamphlets.
CancerCare for Kids S
www.cancercareforkids.org
800-813-4673
E-mail: info@cancercare.org
Cancer Care for Kids helps families through its online and telephone support groups, telephone education workshops, and through its website. Counseling and educational programs are offered at CancerCare locations in New York City, New Jersey, Long Island, and Connecticut.
Cancer Warriors, Inc.
www.cancerwarriors.org
770-789-6346
The mission of Cancer Warriors, Inc. is to encourage and support children, siblings, and caregivers during treatment for childhood cancer. This organization raises funds for childhood cancer research while also promoting awareness and education about the devastating diagnosis of childhood cancer.
Candlelighters Childhood Cancer Foundation
www.candlelighters.org
800-366-2223
E-mail: staff@candlelighters.org
A nonprofit organization that provides information, peer support, and advocacy. A financial aid list includes organizations to which eligible families may apply for assistance.
Children's Brain Tumor Foundation
www.cbtf.org
866-228-4673
Comprehensive site offering educational information, tips for hospital stays and going home, school issues, summer camps, and more.
Children's Cause for Cancer Advocacy
www.childrenscause.org
301-562-2765
E-mail: jingram@childrenscause.org
CCCA works as a national catalyst to stimulate drug discovery and development for childhood cancers, to expand resources for research and treatment, and to address the needs and concerns of survivors.
Children's Oncology Camping Association International (C.O.C.A)
www.coca-intl.org
515-669-4580
E-mail: administrativeteam@coca-intl.org
C.O.C.A. International consists of more than 65 member camps internationally, including in the U.S., Canada, Australia, New Zealand, and Europe. The goal is to enhance the lives of children with cancer and to have a forum for member camps to share their experiences and ideas.
Coping with Chemo
http://chemo.starlightprograms.org
310-479-1212
Coping with Chemo is a series of webisodes written by teens with cancer to help other teens dealing with cancer. Each webisode addresses a different topic -- getting diagnosed with cancer, side effects of chemotherapy and other treatments, telling your friends, and celebrating your last treatment. Coping with Chemo also has an FAQ resource section as well as blogs, chat rooms, and bulletin boards to connect with other teens online.
CureSearch S
www.curesearch.org
800-458-6223
E-mail: info@curesearch.org
A collaboration of the largest childhood cancer research organization, the Children's Oncology Group and the National Childhood Cancer Foundation. The Organization supports research conducted by a network of institutions on the cancers of infants, children, and young adults.
Curing Kids' Cancer Inc.
www.curingkidscancer.org
866-933-CURE (2873)
E-mail: info@curingkidscancer.org
At the end of a sports season, team parents typically chip in money for a coach's gift. Instead, donate those funds to Coaches Curing Kids' Cancer to help support pediatric cancer research. This is a wonderful new way for children to help other children while honoring their coaches.
Eagle Mount
www.eaglemount.org
406-586-1781
E-mail: eaglemount@eaglemount.org
Eagle Mount offers a therapeutic recreation program, which includes golf, swimming, skiing, and other activities, including camps for children with cancer.
Group Loop
www.grouploop.org
888.793.WELL (9355)
E-mail: help@thewellnesscommunity.org
Group Loop is a program by The Wellness Community that provides online support for teens with cancer and their parents.
Hope Street Kids
www.hopestreetkids.org
800-227-2732
E-mail: cynthia.duncan@curesearch.org
Hope Street Kids' mission is to eliminate childhood cancer through research, advocacy, and education. The organization was founded in 1999 by Congresswoman Deborah Pryce and Randy Walker after they lost their 9-year-old daughter, Caroline, to neuroblastoma.
National Children's Cancer Society, The
www.children-cancer.org
314-241-1600
The National Children's Cancer Society serves as a financial, emotional, educational, and medical resource for those in need at every stage of their illness and recovery.
Pediatric Brain Tumor Foundation
www.pbtfus.org
800-253-6530
The mission of the PBTF is to increase public awareness, aid in early detection and treatment, provide educational and emotional support to patients and families, and find the cause and cure of pediatric brain tumors by supporting research.
Starlight Starbright Children's Foundation
www.starlight.org
310-479-1212
Dedicated to improving the quality of life of seriously ill children by providing educational and entertaining family activities and creating programs that inspire seriously ill children, helping them cope with a prolonged illness.
The Childhood Brain Tumor Foundation
www.childhoodbraintumor.org
877-217-4166
Provides informational materials on childhood brain tumors including news articles, upcoming educational events, webcasts and presentations, newsletters, and a resource list.
Working Against Cancer
www.workingagainstcancer.org
E-mail: contactus@workingagainstcancer.org
Working Against Cancer supports children, adolescent and young adult cancer survivors through mentoring, self-evaluation tools, and career opportunity referrals. WAC's mission is to help adolescents and young adults navigate the emotional upheaval that accompanies a cancer diagnosis in order to become self-reliant individuals with independent, productive lives.
^ TOP OF PAGEFertility
Fertile Hope
www.fertilehope.org
A national, nonprofit organization dedicated to providing reproductive information, support, and hope to cancer patients and survivors whose medical treatments present the risk of infertility.
MyOncofertility.org
www.myoncofertility.org
866-708-FERT (3378)
Sponsored by Northwestern University and the Oncofertility Consortum, this website provides information about the potential effect of cancer and treatments on fertility and options for preserving fertility before or after treatment. It includes easy-to-understand videos and stories from others who have gone through the process.
N.W. Andrology & Cryobank
www.NWCryoBank.com
Sperm donor bank which lists profiles of donors and samples for infertility treatment.
^ TOP OF PAGEFinancial & Drug Assistance
National Council on the Aging
www.benefitscheckup.org
Finds programs that may pay the cost of prescriptions and health care services for people age 55 and older.
NeedyMeds
www.needymeds.com
Information on patient-assistance programs designed to help those who can't afford their medications.
Partnership for Prescription Assistance, The S
www.pparx.org
888-477-2669
The Partnership for Prescription Assistance helps qualifying patients without prescription drug coverage get the medicines they need for free or nearly free.
^ TOP OF PAGEHospice & Palliative Care
Center to Advance Palliative Care (CAPC)
www.getpalliativecare.org
(212) 201-2670
E-mail: capc@mssm.edu
Valuable information for patients and families coping with serious, complex illness including a palliative care provider directory, a definition and detailed description of what palliative care is, direct links to palliative care-related organizations, and more.
Hospice Education Institute
www.hospiceworld.org
800-331-1620
E-mail: info@hospiceworld.org
Helps patients and their families find support services in their communities. They offer information about hospice and palliative care and can refer cancer patients and their families to local hospice and palliative care programs.
National Association for Home Care & Hospice
www.nahc.org
202-547-7424
Provides information on how to choose home care and hospice care providers.
National Hospice and Palliative Care Organization (NHPCO) S
www.caringinfo.org
800-658-8898
The NHPCO is an association of programs that provide hospice and palliative care.
^ TOP OF PAGEIntegrative Medicine
About Herbs, Botanicals & Other Products
www.mskcc.org/mskcc/html/11570.cfm
Web site led by an oncology-trained pharmacist that provides information about herbs and other products, including a clinical summary for each agent and details about adverse side effects, interactions, and potential benefits or problems. Site is hosted by Memorial Sloan-Kettering Cancer Center.
Annie Appleseed Project
www.annieappleseedproject.org
E-mail: annieappleseedpr@aol.com
A nonprofit corporation that provides information, education, advocacy, and awareness for people with cancer, family, and friends interested in complementary and alternative medicine (CAM) and natural therapies from the patient perspective.
Center for Mind-Body Medicine
www.cmbm.org
202-966-7338
E-mail: center@cmbm.org
Combines modern science with ancient healing. Addresses the mental, emotional, social, physical, and spiritual sides of health and illness.
National Center for Complementary and Alternative Medicine (NCCAM) S
www.nccam.nih.gov
888-644-6226
Provides the latest news, research, events, and clinical trials in complementary medicine.
^ TOP OF PAGEMinority
Africa Cancer Care, Inc.
www.africacancercareinc.org
713-995-8000
E-mail: info@africacancercareinc.org
Africa Cancer Care, Inc. is devoted to bridging cancer care disparities in the United States of America and Africa. The organization is committed to cancer prevention, early diagnosis, and improved quality of life. They also seek to provide a meaningful existence for cancer survivors through rehabilitation and personal enrichment.
African Women's Cancer Awareness Association
www.awcaa.org
301-565-0420
E-mail: mail@awcaa.org
The African Women’s Cancer Awareness Association seeks to counter the lack of early cancer detection in African patients by generating awareness and teaching Africans to feel free to discuss cancer.
Asian and Pacific Islander Cancer Education Materials (APICEM)
www.cancer.org/apicem
A searchable online database of Asian language cancer materials. Co-sponsored by The Asian American Network for Cancer Awareness, Research and Training (AANCART) and the American Cancer Society (ACS), the program is designed to help Asian and Pacific Islander with limited English-speaking abilities gain access to information on how to reduce their risks of cancer.
Asian & Pacific Islander American Health Forum
www.apiahf.org
415-954-9988
E-mail: healthinfo@apiahf.org
The Asian & Pacific Islander American Health Forum (APIAHF) is a national health policy organization for Asian Americans, Native Hawaiians and Pacific Islanders. They advocate for greater recognition, inclusion and engagement in policies and programs that are critical to the health and well-being of Asian & Pacific Islander communities. Under its Chronic Diseases program, the APIAHF offers the Asian & Pacific National Cancer Survivors Network, the Filipino Community Cancer Collaborative, and the Breast Cancer Awareness for Tongans.
Avon Foundation for Women
www.avonfoundation.org
866-505-AVON
E-mail: info@avonfoundation.org; admin@avonbreastcare.org
The Avon Foundation's main focus is on breast cancer, domestic violence and emergency relief. The Avon Breast Cancer Crusade helps advance access to care and finding a cure for breast cancer, with a focus on the medically underserved. Funding supports 145 non-profit community-based organizations across the country - with at least one in every state - that focus on five areas: awareness and education; screening and diagnosis; access to treatment; support services; and scientific research. These programs navigate women into mammography screening and educate on breast health and the importance of early detection.
Cancer Awareness Network for Immigrant Minority Populations (CANIMP)
www.med.nyu.edu/cih/cancer/background.html
212-263-7300
E-mail: cihinfo@med.nyu.edu
The Center for Immigrant Health (CIH), in conjunction with the NYU Cancer Institute of the NYU School of Medicine, established CANIMP to focus on building bridges between immigrant communities and cancer researchers in the areas of lung, prostate, breast, colorectal, oral, and cervical cancer. Program components include community workshops, free screening, over-the-phone referral services, and support groups. Provides a Cancer Service Catalogue that lists programs serving about 20 language groups.
Center for Research on Minority Health
www.mdanderson.org/departments/CRMH
866-416-CRMH (2764)
E-mail: CRMH@mdanderson.org
A division in The University of Texas MD Anderson Cancer Center, the Center for Research on Minority Health is a comprehensive investigative, educational, and outreach until focused on decreasing the incidence and prevelence of cancer in ethnic minorities and underserved populations.
Center to Reduce Cancer Health Disparities
crchd.cancer.gov
301-496-8589
E-mail: crchd@mail.nih.gov
Part of the National Cancer Institute, The Center to Reduce Cancer Health Disparities (CRCHD) central to the NCI's efforts to reduce the unequal burden of cancer in our society and train the next generation of researchers in cancer and cancer health disparities research.
Circulo de Vida S
www.circulodevida.org
415-648-9423
E-mail: nicole@circulodevida.org; dimas@circulodevida.org
The first successful Spanish-language support group program in the greater Bay Area, Circulo de Vida provides services to Latinos living with cancer and their loved ones. Staff help translate for the patient and physician at the time of diagnosis; offer in-hospital and in-home support during surgery, treatment and terminal illness; and provide a wide range of Spanish-language support groups for the patients and their children.
Día de la Mujer Latina S
www.diadelamujerlatina.org
713-782-1800
Dia de la Mujer Latina seeks to promote health awareness to the underserved Latino community by providing ethnic-specific education and training; a culturally-specific setting for early detection screening and prevention care for breast and cervical cancer, as well as other chronic diseases; and a resource information center and patient navigation for follow-up services.
Eliminating Disparities in Clinical Trials (EDICT)
www.bcm.edu/edict
713-798-4614
E-mail: edict@bcm.edu
addresses problems and solutions related to improving participation of minority and underserved patients in oncology and asthma clinical trials. The four-year (2005-2009) study is funded by Genentech, Inc.
HOPE Clinic
www.hopechc.org
713-773-0803
E-mail: cbravo@hopechc.org; karen_tso@yahoo.com
HOPE Clinic provides culturally and linguistically appropriate health services to Houston’s different ethnic groups regardless of ability to pay. HOPE Clinic serves the uninsured, underinsured, those with limited English proficiency, and the low-income. Services are offered in Chinese, Vietnamese, Korean and Spanish. The Asian Breast Cancer Outreach and Education Program, also known as the Phoenix Project, helps increase awareness of breast cancer and mammography screening. Through the Pheonix Project, HOPE Clinic provides free breast cancer screening, diagnosis and treatment to low income, limited English-proficient Asian women in the Greater Houston area.
Huntsman Cancer Institute
www.huntsmancancer.org/outreach/nativeAmerican
801-585-2606; 801-585-1991
E-mail: phyllis.nassi@hci.utah.edu; lynne.hall@hci.utah.edu
The Huntsman Cancer Institute’s Native American Outreach Program meets the needs of American Indian/Alaska Native people. This program is built on respect for culture and tradition, while trying to reduce the high number of cancer deaths in American Indian/Alaska Native people.
Imi Hale Native Hawaiian Cancer Network
www.imihale.org
808-597-6558
E-mail: imihale@papaolalokahi.org
Imi Hale Native Hawaiian Cancer Network collaborates with key local, state, national and international partners to reduce cancer incidence and mortality among Native Hawaiians and Pacific Islanders. Funded by NCI's Center to Reduce Cancer Health Disparities.
Intercultural Cancer Council (ICC)
www.iccnetwork.org
713-798-4614
E-mail: icc@bcm.edu
Promotes policies, programs, partnerships, and research to elminate the unequal burden of cancer among racial and ethnic minorities in the U.S.
Latinas Contra Cancer S
www.latinascontracancer.org
888-LLC-8110 (888-522-8110)
E-mail: ysabel@latinascontracancer.org
Latinas Contra Cancer was founded to address the void in culturally- and linguistically-sensitive programs that meet the cancer needs of Latinos. While based in California, the organization works to link services nationwide. They provide cancer health education, patient navigation and psychosocial family support group services. Our website includes a wealth of information for cancer patients and health care providers, an on-line index of cancer education materials, as well as resources and referrals to cancer related sites nationwide. We welcome imput, collaboration and articles in English and Spanish related to cancer treatment, research and resources.
League Against Cancer/Liga Contra el Cancer S
www.ligacontraelcancer.org
800-792-3320
E-mail: info@ligacontraelcancer.org
Based in Florida, the League Against Cancer provides free medical treatment, screenings and support for cancer patients.
National Asian Women's Health Organization (NAWHO)
www.nawho.org
415-989-9747
NAWHO is working to improve the health status of Asian women and families through research, education, leadership, and public policy programs. Resources for Asian women in English, Cantonese, Laotian, Vietnamese, and Korean.
Native American Cancer Research (NACR)
www.natamcancer.org
800-537-8295
E-mail: info@natamcancer.net
Native American Cancer Research (NACR) is an American Indian operated, community-based organization, which seeks to reduce cancer incidence and increase survival among Native Americans. They help implement cancer research projects involving: prevention, health screening, education, training, control, treatment options, and support. Resources available for patients, survivors, caregivers, and educators.
Native People’s Circle of Hope (NPCOH)
www.nativepeoplescoh.org
E-mail: npcoh@spiritone.com
A coalition of Native American cancer support groups with chapters in Alaska, Idaho, Oklahoma, Oregon, Arizona, Montana and other nation-wide affiliates. NPCOH’s mission is to provide hope, an improvement of communication, support, education and advocacy for the Native American cancer survivor.
Pacific Islander Health Partnership
www.pacificislanderhealthpartnership.org
Engaged in community-driven, island-tailored health promotion, education and training projects.
Prostate Net, The
The Prostate Net
888-477-6763
E-mail: support@prostatenet.org
The Prostate Net provides information on treatment options, research, news, support, and advocacy.
Racial and Ethnic Approaches to Community Health Across the US (REACH US) S
www.cdc.gov/reach
800-311-3435
E-mail: cdcinfo@cdc.gov
This Centers for Disease Control and Prevention initiative seeks to eliminate disparities in health status experienced by racial and ethnic minorities. Breast and cervical cancers are priority areas for REACH US.
Redes En Acción S
www.redesenaccion.org
E-mail: redesenaccion@uthscsa.edu
A National Cancer Institute-funded initiative, the National Latino Cancer Research Network is meant to combat cancer among Latinos. Focus is on developing national and regional networks of partners engaging in cancer research, training, and awareness activities surrounding key Latino cancer issues. The program seeks to reduce cancer disparities by promoting cancer education, research, and training within the US and Puerto Rico.
Sisters Network, Inc.
www.sistersnetworkinc.org
866-781-1808
Seeks to increase local and national attention to the impact that breast cancer has in the African-American community. All chapters are run by breast cancer survivors and receive volunteer assistance.
Tigerlily Foundation
www.tigerlilyfoundation.org
888-580-6253
E-mail: info@tigerlilyfoundation.org
The Tigerlily Foundation seeks to educate, empower, support, inspire, and advocate for young women affected by breast cancer. Services include Chemotherapy Buddy Program, Funds for Families, "Fearless Females" for survivors, A Day of Beauty, and Project Liberia (to aid women in the founder's home country in Africa). Tigerlily also offers practical services, such as delivering meals and arranging housekeeping help for women during and after treatment.
Women of Faith and Hope (WFOH)
www.wofah.org
215-424-4180
E-mail: novellaklyons@wofah.org
A self-help group designed to assist African-American women with breast cancer, their family members, and significant others by providing information, resources, and spiritual and emotional peer support.
^ TOP OF PAGEPain
Alliance of State Pain Initiatives
aspi.wisc.edu
608-265-4013
E-mail: aspi@mailplus.wisc.edu
Provides leadership and advocacy for state and regional pain initiatives.
American Pain Foundation
www.painfoundation.org
888-615-7246
E-mail: info@painfoundation.org
Features a pain action guide and offers informational material, support, and advocacy.
Partners Against Pain
www.partnersagainstpain.com
Includes news updates, pain control guides for patients, support groups, resources, and additional information for health care professionals.
^ TOP OF PAGEPatient Advocacy
Cancer Legal Resource Center
www.disabilityrightslegalcenter.org/about/cancerlegalresource.cfm
213-THE-CLRC (743-2572)
E-mail: CLRC@lls.edu
Provides information on cancer-related legal issues for cancer survivors, their families, and others impacted by the disease.
Children's Cause for Cancer Advocacy
www.childrenscause.org
301-562-2765
E-mail: jingram@childrenscause.org
CCCA works as a national catalyst to stimulate drug discovery and development for childhood cancers, to expand resources for research and treatment, and to address the needs and concerns of survivors.
Legal Resource Guide for Cancer Patients S
www.tyla.org/cancer_guide.html
The Guide covers legal issues concerning privacy, informed consent, insurance, clinical trials, employment law, disability, liability, guardianship, estate planning, and end of life decisions. This Guide is intended to be an informative resource upon which cancer patients and their family members and friends can rely to answer legal questions.
National Asian Women's Health Organization (NAWHO)
www.nawho.org
415-989-9747
NAWHO is working to improve the health status of Asian women and families through research, education, leadership, and public policy programs. Resources for Asian women in English, Cantonese, Laotian, Vietnamese, and Korean.
Patient Advocate Foundation S
www.patientadvocate.org
800-532-5274
The PAF provides education, legal counseling, and referrals to cancer patients and survivors concerning managed care, insurance, financial issues, job discrimination, and debt crisis matters.
^ TOP OF PAGERetreats
Smith Farm Center for Heaing and the Arts
www.SmithFarm.com
202-483-8600
Provides free and financially assisted retreats, workshops, support groups, and nutrition programs for adults living with cancer, their caregivers, and the health care professionals who serve them.
Wind River Cancer Wellness Retreat
www.windriverservices.com
828-863-2343
E-mail: info@windriverservices.com
A nonprofit organization based in North Carolina that provides retreats to people living with cancer. Retreats are focused on reducing stress and increasing overall wellness through yoga, nutrition, guided imagery, time in nature, and time with other survivors.
^ TOP OF PAGEStem Cell Transplantation
National Bone Marrow Transplant Link
www.nbmtlink.org
800-LINK-BMT (800-546-5268)
Operates a 24-hour, toll-free number and provides peer support to bone marrow transplant (BMT) patients and their families. It serves as an information center for prospective BMT patients as well as a resource for health professionals.
National Marrow Donor Program S
www.marrow.org
800-MARROW-2 (627-7692)
Funded by the federal government to improve the effectiveness of the search for bone marrow donors. It keeps a registry of potential bone marrow donors and provides free information on bone marrow transplantation. It also provides patient advocacy aid by helping patients and families with information on insurance and other financial matters, identifying groups and resources for housing and transportation needs, and offering free patient education materials.
^ TOP OF PAGESurvivorship
Cancervive
Cancervive
800-486-2873
E-mail: cancervive@aol.com
Helps cancer survivors overcome the challenges of "life after cancer." In addition to support groups, they provide educational materials, insurance information and assitance and advocacy.
National Coalition for Cancer Survivorship S
www.canceradvocacy.org
888-650-9127
E-mail: info@canceradvocacy.org
Offers support to cancer survivors and their loved ones. Provides information and resources on cancer support, advocacy and quality-of-life issues.
^ TOP OF PAGETravel & Housing
Air Charity Network
www.aircharitynetwork.org
877-621-7177, 800-549-9980
E-mail: execdir@aircharitynetwork.org
Air Charity Networkis a network of seven organizations that offers free air transportation for people in need seeking transport to specialized health care facilities or distant destinations due to family, community, or national crisis.
Angel Flight
www.angelflight.com
918.749.8992
E-mail: angel@angelflight.com
Network of pilots who provide transportation to patients traveling for treatment in the heartland region.
Hospitality Homes S
www.hosp.org
888-595-4678
Hospitality Homes provides temporary housing in volunteer host homes and other donated accommodations for families and friends of patients seeking care at Boston-area medical centers.
Joe's House
www.joeshouse.org
877-JOES-HOUSE (563-7468)
A nationwide housing guide for patients and families when they travel for treatment. Directories of various places to stay near cancer treatment centers is available via the website or toll-free number.
National Association of Hospital Hospitality Houses, Inc.
www.nahhh.org
800-542-9730
Provides accommodations for families and patients receiving medical treatment away from home. Rates typically range from $5-$15 per day (sometimes free).
National Patient Travel Center
www.patienttravel.org
800-296-1217
Locates the best available travel options for patients. Help available 24 hours.
^ TOP OF PAGEYoung Adults
CancerCare Young Adults
www.cancercare.org/get_help/special_progs/young_adults.php
800-813-HOPE (4673)
E-mail: info@cancercare.org
CancerCare offers specialized services for young adult patients, caregivers, and those who have lost a loved one, including: counseling, support groups, telephone education workshops, educational publications, financial assistance, and practical help.
Coping with Chemo
http://chemo.starlightprograms.org
310-479-1212
Coping with Chemo is a series of webisodes written by teens with cancer to help other teens dealing with cancer. Each webisode addresses a different topic -- getting diagnosed with cancer, side effects of chemotherapy and other treatments, telling your friends, and celebrating your last treatment. Coping with Chemo also has an FAQ resource section as well as blogs, chat rooms, and bulletin boards to connect with other teens online.
Group Loop
www.grouploop.org
888.793.WELL (9355)
E-mail: help@thewellnesscommunity.org
Group Loop is a program by The Wellness Community that provides online support for teens with cancer and their parents.
I’m Too Young For This! Cancer Foundation
www.imtooyoungforthis.org
I’m Too Young For This, i[2]y, is an online support community for young adults with cancer. The organization hosts “The Stupid Cancer Blog” and weekly talk show “The Stupid Cancer Show,” has 13 local chapters across the U.S., Australia, and Canada, and provides an extensive compilation of resources including links to forums, books, coping literature and other young adult cancer organizations.
National Collegiate Cancer Foundation
www.collegiatecancer.org
717-215-0943
The National Collegiate Cancer Foundation's mission is to provide services and support to young adults who have been diagnosed with cancer. NCCF is committed to providing need-based financial support to young adult survivors who are pursuing higher education throughout their treatment and beyond. Furthermore, the Foundation promotes awareness and prevention of cancer within the young adult community.
Next Step
www.nextstepnet.org
617-864-2921
E-mail: info@nextstepnet.org
Next Step provides retreats, camp excursions, creative workshops, and social networking for young adults facing life threatening health issues.
Planet Cancer
www.planetcancer.org
512-452-9010
E-mail: contactus@planetcancer.org
Web site for young adults with cancer. A place to share insights, explore fears, or laugh with others.
Prepare to Live
www.preparetolive.org
E-mail: info@preparetolive.org
Prepare to Live is the only non-profit, charitable organization founded and managed by cancer survivors, dedicated to using the power of the web and documentary-style filmmaking to provide Help, Hope, Information and Inspiration™ specifically to young adults coping with cancer worldwide.
RealTime Cancer
www.youngadultcancer.ca
877-571-7325
E-mail: connect@youngadultcancer.ca
An initiative of Young Adult Cancer Canada, RealTime Cancer provides support, inspiration, and non-medical information online for all young adults with cancer, regardless of location. The RealTime Cancer website provides support in several different ways including: survivor profiles, news articles, online forum discussions, cancer blogs, annual conferences, newsletters and links to other young adult cancer resources.
Survivor Alert
www.survivoralert.org
937-767-1924
Survivor Alert is a nationwide awareness initiative offering information, links to many resources, and recommendations for action for young adult cancer survivors and the health professionals who treat them. The site provides information to help young adult survivors understand survivorship issues and do the right things to stay as healthy as possible.
Teens Living with Cancer
www.teenslivingwithcancer.org
585-563-6221
Teens Living With Cancer provides support and information to help deal with the unique age-specific issues and questions teens with cancer face such as body, school, and relationship issues, staying healthy, and connecting with peers.
The SAMFund for Young Adult Survivors of Cancer
www.thesamfund.org
866-439-9365
E-mail: info@thesamfund.org
The SAMFund is a unique non-profit organization created to assist young adult survivors of cancer with a successful transition into their post-treatment life, by providing financial support through the distribution of grants and scholarships.
The Ulman Cancer Fund for Young Adults
www.ulmanfund.org
888-393-FUND (3863)
E-mail: info@ulmanfund.org
The Mission of the Ulman Cancer Fund for Young Adults is to enhance lives by supporting, educating and connecting young adults, and their loved ones, affected by cancer.
Working Against Cancer
www.workingagainstcancer.org
E-mail: contactus@workingagainstcancer.org
Working Against Cancer supports children, adolescent and young adult cancer survivors through mentoring, self-evaluation tools, and career opportunity referrals. WAC's mission is to help adolescents and young adults navigate the emotional upheaval that accompanies a cancer diagnosis in order to become self-reliant individuals with independent, productive lives.
Young Adults Surviving Glioblastoma
www.yasg.com/indexframes.html
YASG provides treatment information and an online forum and live chat service for young adults with glioblastoma (brain cancer).
Young Cancer Spouses
www.youngcancerspouses.com
E-mail: shareyourstory@youngcancerspouses.org
The mission of this organization is to bring together young spouses of adults with cancer to share information, support, and experiences. The website provides information on taking care of yourself, medical care, relationships, financial issues, transitions and has an online forum to connect with others.
Young Empowered Survivors
www.youngempowered.org
303-477-2161
E-mail: info@youngempowered.org
Young Empowered Survivors is a social networking group and support group for young adults with cancer (anyone under age 45). YES holds monthly support groups in Colorado, but also has an active message board for members to share questions, ideas and helpful resources.
^ TOP OF PAGECancer Type
Bladder Cancer
Bladder Cancer Advocacy Network
Bladder Cancer Advocacy Network
888-901-BCAN (888-901-2226)
E-mail: dzquale@bcan.org
BCAN, the Bladder Cancer Advocacy Network, is the first national advocacy organization dedicated to improving public awareness of bladder cancer, and increasing research directed towards the diagnosis, treatment and cure of the disease. Founded in May 2005, BCAN is a cooperative effort among bladder cancer survivors, their families and caregivers, and the medical community.
Bladder Cancer WebCafe
www.blcwebcafe.org
Dedicated to the latest in bladder cancer treatments, clinical trials, and alternatives. Includes e-mail support.
^ TOP OF PAGEBrain Cancer
American Brain Tumor Association
American Brain Tumor Association
800-886-2282
E-mail: info@abta.org
Offers free publications, educational programs, support group lists, physician list, pen pal program, and social service consultations by telephone.
BrainSurgery
health.groups.yahoo.com/group/Brainsurgery
E-mail: BrainSurgery-owner@yahoogroups.com
Website and listserv that provide a place for patients with brain tumors and related conditions to communicate. The site also helps to raise awareness, provides educational resources, and raises funds for research.
Children's Brain Tumor Foundation
www.cbtf.org
866-228-4673
Comprehensive site offering educational information, tips for hospital stays and going home, school issues, summer camps, and more.
Cristian Rivera Foundation
www.cristianriverafoundation.org
212-779-2222
E-mail: Michelle@cristianriverafoundation.org
The Cristian Rivera Foundation is a New York City-based not-for-profit organization committed to finding a cure for pontine glioma, a rare form of brain cancer, through education and program funding.
National Brain Tumor Society S
National Brain Tumor Society
800-770-8287
The organization inspires hope and provides leadership within the brain tumor community by helping to find a cure and improve the quality of life for those affected by brain tumors by funding strategic research, delivering support services, and promoting collaboration.
Pediatric Brain Tumor Foundation
www.pbtfus.org
800-253-6530
The mission of the PBTF is to increase public awareness, aid in early detection and treatment, provide educational and emotional support to patients and families, and find the cause and cure of pediatric brain tumors by supporting research.
The Brain Tumor Foundation S
The Brain Tumor Foundation
212-265-2401
Raises awareness about the importance of early detection and offers peer support groups, a worldwide referral network for treatment, conferences, seminars, and outreach events.
The Childhood Brain Tumor Foundation
www.childhoodbraintumor.org
877-217-4166
Provides informational materials on childhood brain tumors including news articles, upcoming educational events, webcasts and presentations, newsletters, and a resource list.
Young Adults Surviving Glioblastoma
www.yasg.com/indexframes.html
YASG provides treatment information and an online forum and live chat service for young adults with glioblastoma (brain cancer).
^ TOP OF PAGEBreast Cancer
1in9: The Long Island Breast Cancer Action Coalition
www.1in9.org
516-374-3190
Hewlett House is a project of 1 in 9. It is a comprehensive, non-residential, independent, community learning resource center for cancer concerns, providing emotional and psychosocial support, outreach, and education and information services.
Andre Center
www.andrecenter.org
303-388-2441
E-mail: breast-ca-edu@andrecenter.org
Its primary goal is to offer credible information on treatment options, coaching help with decisions, assistance with navigating the health care system, and connections to needed resources. We also act as a resource to referring physicians and the treatment team by supporting effective communication between providers.
Avon Foundation for Women
www.avonfoundation.org
866-505-AVON
E-mail: info@avonfoundation.org; admin@avonbreastcare.org
The Avon Foundation's main focus is on breast cancer, domestic violence and emergency relief. The Avon Breast Cancer Crusade helps advance access to care and finding a cure for breast cancer, with a focus on the medically underserved. Funding supports 145 non-profit community-based organizations across the country - with at least one in every state - that focus on five areas: awareness and education; screening and diagnosis; access to treatment; support services; and scientific research. These programs navigate women into mammography screening and educate on breast health and the importance of early detection.
Breast Cancer Network of Strength S
www.networkofstrength.org
800-221-2141
(formerly Y-ME National Breast Cancer Organization, Inc.) Breast Cancer Network of Strength serves women with breast cancer and their families through their national hotline (available 24 hours a day), open-door groups, early detection workshops, and support programs.
Breastcancer.org
Breastcancer.org
A nonprofit website dedicated to providing the most reliable and complete information available.
Circus of Cancer
www.circusofcancer.org
E-mail: tellus@circusofcancer.org
Provides ideas for how friends and family can show concern and encouragement for someone dealing with breast cancer.
Día de la Mujer Latina S
www.diadelamujerlatina.org
713-782-1800
Dia de la Mujer Latina seeks to promote health awareness to the underserved Latino community by providing ethnic-specific education and training; a culturally-specific setting for early detection screening and prevention care for breast and cervical cancer, as well as other chronic diseases; and a resource information center and patient navigation for follow-up services.
FORCE: Facing Our Risk of Cancer Empowered
www.facingourrisk.org
866-824-RISK (7475)
E-mail: info@facingourrisk.org
Provides support, information, and resources for women with hereditary breast or ovarian cancer and for those at high risk of the disease.
HER2 Support Group
www.her2support.org
760-602-9178
E-mail: christine@her2support.org
Resource for women diagnosed with HER2-positive breast cancer.
HOPE Clinic
www.hopechc.org
713-773-0803
E-mail: cbravo@hopechc.org; karen_tso@yahoo.com
HOPE Clinic provides culturally and linguistically appropriate health services to Houston’s different ethnic groups regardless of ability to pay. HOPE Clinic serves the uninsured, underinsured, those with limited English proficiency, and the low-income. Services are offered in Chinese, Vietnamese, Korean and Spanish. The Asian Breast Cancer Outreach and Education Program, also known as the Phoenix Project, helps increase awareness of breast cancer and mammography screening. Through the Pheonix Project, HOPE Clinic provides free breast cancer screening, diagnosis and treatment to low income, limited English-proficient Asian women in the Greater Houston area.
Inflammatory Breast Cancer Research Foundation
www.ibcresearch.org
877-786-7422
Provides education, background, opportunities to be involved in clinical research, and links to clinical trial information.
JACOB International (Jews Against Cancer of the Breast)
www.jacobintl.org
561-394-9100
Provides awareness of the high risk of hereditary breast and ovarian cancer among Ashkenazi Jewish women and the benefits of genetic testing. The site offers information about BRCA 1 and 2 mutations and genetic testing, medical and spiritual resources, and tools to assess one's risk through their family medical history.
Living Beyond Breast Cancer
Living Beyond Breast Cancer
610-645-4567
Provides educational materials, a calendar of events, a quarterly newsletter, a Young Survivors Network, and a toll-free helpline at 800-753-5222.
Men Against Breast Cancer
www.menagainstbreastcancer.org
866-547-6222
Targets and mobilizes men to be active participants in the fight to eradicate breast cancer and to provide support to men whose families are impacted by the disease.
National Breast and Cervical Cancer Early Detection Program (NBCCEDP) S
www.cdc.gov/cancer/nbccedp
800-232-4636
E-mail: cdcinfo@cdc.gov
Run by the Centers for Disease Control and Prevention (CDC), this program helps low-income, uninsured, and underinsured women gain access to breast and cervical cancer screening and diagnostic services.Service available in all 50 states, the District of Columbia, five U.S. territories, and 12 tribes.
Pink-Link
www.pink-link.org
310-995-5204
Includes an online searchable database of women affected by breast cancer, as well as friends and co-survivors; a tribute page, educational resources, a forum, and a personal journal you can keep private or share with other members.
REACH Global
561-394-9100
Provides awareness of the risk of hereditary breast and ovarian cancer among women and the benefits of genetic testing. The site offers information about BRCA 1 and 2 mutations and genetic testing, medical and spiritual resources, and tools to assess one's risk through their family medical history.
Sharsheret
www.sharsheret.org
866-474-2774
Connects young Jewish women recently diagnosed with breast cancer with volunteers.
Sisters Network, Inc.
www.sistersnetworkinc.org
866-781-1808
Seeks to increase local and national attention to the impact that breast cancer has in the African-American community. All chapters are run by breast cancer survivors and receive volunteer assistance.
Susan G. Komen for the Cure S
Susan G. Komen for the Cure
800-I'M AWARE (800-462-9273)
A toll-free breast cancer helpline (1-800-I'M AWARE) is answered by trained volunteers whose lives have been personally touched by breast cancer. Breast health and breast cancer materials are available.
Tigerlily Foundation
www.tigerlilyfoundation.org
888-580-6253
E-mail: info@tigerlilyfoundation.org
The Tigerlily Foundation seeks to educate, empower, support, inspire, and advocate for young women affected by breast cancer. Services include Chemotherapy Buddy Program, Funds for Families, "Fearless Females" for survivors, A Day of Beauty, and Project Liberia (to aid women in the founder's home country in Africa). Tigerlily also offers practical services, such as delivering meals and arranging housekeeping help for women during and after treatment.
Women of Faith and Hope (WFOH)
www.wofah.org
215-424-4180
E-mail: novellaklyons@wofah.org
A self-help group designed to assist African-American women with breast cancer, their family members, and significant others by providing information, resources, and spiritual and emotional peer support.
Women's Cancer Network (WCN) S
Women's Cancer Network
312-578-1439
E-mail: info@thegcf.org
The WCN is an interactive web site dedicated to informing women around the world about gynecologic cancer. The goal is to assist women who have developed cancer, as well as their families, to understand more about the disease, learn about treatment options, and gain access to new or experimental therapies. Provides news updates, a risk assessment survey, a doctor finder tool, information on various cancers affecting women and more.
Young Survival Coalition S
www.youngsurvival.org
877-972-1011
The only international network of breast cancer survivors and supporters dedicated to the issues of women under 40 who are diagnosed with breast cancer.
^ TOP OF PAGECarcinoid Cancer
Carcinoid Cancer Foundation, Inc. S
Carcinoid Cancer Foundation, Inc.
888-722-3132
Provides education, support groups, transcripts of lectures, and nutrition resources.
Caring for Carcinoid Foundation
www.caringforcarcinoid.org
857-222-5492
E-mail: info@caringforcarcinoid.org
Dedicated to finding a cure for carcinoid cancer by funding leading scientists to unlock the genetic causes of carcinoid and develop novel, targeted therapies.
^ TOP OF PAGEColorectal Cancer
C3: Colorectal Cancer Coalition
C3: Colorectal Cancer Coalition
877-427-2111
E-mail: info@fightcolorectalcancer.org
A national organization whose mission is to eliminate suffering and death due to colorectal cancer. C3 pushes for research to improve screening, diagnosis, and treatment of colorectal cancer; for policy decisions that make the most effective colorectal cancer prevention and treatment available to all; and for increased awareness that colorectal cancer is preventable, treatable, and beatable.
Colon Cancer Alliance
www.ccalliance.org
877-422-2030
E-mail: tashton@ccalliance.org
Offers patient support, a resource center, news, research, advocacy, and events.
Colorectal CareLine
www.colorectalcareline.org
866-657-8634
E-mail: CCL@patientadvocate.org
The Patient Advocate Foundation's Colorectal CareLine offers a national toll-free telephone hotline designed to offer assistance to colorectal cancer patients and health care providers seeking educational resources, direct assistance with access to care issues, and financial aid for select patient needs, including lodging, transportation, childcare, and other expenses associated with out-of-town treatment. Sponsored by Patient Advocate Foundation and Amgen Oncology.
United Ostomy Associations of America
www.uoaa.org
800-826-0826
Helps ostomy patients through mutual aid and emotional support, and provides educational information for patients and the public.
^ TOP OF PAGEEsophageal Cancer
Esophageal Cancer Awareness Association
www.ECaware.org
E-mail: aschoener@ecaware.org
Esophageal Cancer Awareness Association, Inc. is an organization promoting worldwide understanding and support for esophageal cancer patients and caregivers.
^ TOP OF PAGEGIST
GIST Support International
www.gistsupport.org
215-340-9374
E-mail: gsi@gistsupport.org
This organization is dedicated to the support of GIST patients, families, and friends, and the ongoing research required to treat and cure gastrointestinal stromal tumors.
Life Raft Group
The Life Raft Group
973-837-9092
The Life Raft Group is a non-profit, Internet-based organization providing support through education and research to patients with gastrointestinal stromal tumors. For pediatric GIST patients, the Life Raft Group also hosts www.pediatricgist.org, which offers information, newsletters, community, and resources.
^ TOP OF PAGEGynecological Cancer
Gynecologic Cancer Foundation S
www.thegcf.org
800-444-4441
E-mail: info@thegcf.org
Encourages public awareness of gynecologic cancer prevention, early diagnosis, and proper treatment as well as supports research and training related to gynecologic cancers such as ovarian, uterine, vaginal, vulvar, endometrial, fallopian tube, and cervical cancers.
Vulva Awareness Campaign Organization
Vulva Awareness Campaign Organization
E-mail: carolvaco2003@yahoo.co.uk
Organization provides a community listserv, educational resources, support, and assistance for women who have been through vulval cancer, radical vulvectomy, groin node dissection, VIN, vaginal cancer, Pagets disease of the vulva, HPV, and vulval surgery.
Women's Cancer Network (WCN) S
Women's Cancer Network
312-578-1439
E-mail: info@thegcf.org
The WCN is an interactive web site dedicated to informing women around the world about gynecologic cancer. The goal is to assist women who have developed cancer, as well as their families, to understand more about the disease, learn about treatment options, and gain access to new or experimental therapies. Provides news updates, a risk assessment survey, a doctor finder tool, information on various cancers affecting women and more.
^ TOP OF PAGEHead and Neck Cancer
Head and Neck Cancer Alliance
Head and Neck Cancer Alliance
843-792-6624
Provides resources, education and support for patients with head and neck cancers. Includes a discussion forum and information on clinical trials with study listings. (Formerly known as the Yul Brynner Head and Neck Cancer Foundation)
Support for People with Oral and Head and Neck Cancer
Support for People with Oral and Head and Neck Cancer
800-377-0928
E-mail: info@spohnc.org
Provides education, support, a “Survivor to Survivor” network, clinical trials, and a newsletter.
^ TOP OF PAGEKidney Cancer
Kidney Cancer Association
Kidney Cancer Association
800-850-9132
Supports research, offers printed materials about the diagnosis and treatment of kidney cancer, sponsors support groups, and provides physician referral information.
^ TOP OF PAGELeukemia, Lymphoma & Myeloma
Cutaneous Lymphoma Foundation
clfoundation.org
248-644-9014
An independent, non-profit patient advocacy organization dedicated to supporting patients with cutaneous lymphomas by promoting awareness and education, advancing patient care and facilitating research.
International Myeloma Foundation (IMF) S
myeloma.org
800-452-CURE (800-452-2873)
E-mail: TheIMF@myeloma.org
Supports education, treatment, and research for multiple myeloma. They provide a toll-free hotline, seminars, and educational materials for patients and their families.
Leukemia and Lymphoma Society, The S
The Leukemia and Lymphoma Society
800-955-4572
The Leukemia & Lymphoma Society® is the world's largest voluntary health organization dedicated to funding blood cancer research and providing education and patient services. The Society's mission is to cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families. The society provides patient financial aid for specified treatment expenses and transportation, family support groups, First Connection (a professionally supervised peer support program), referrals and school re-entry materials. The Society's Information Resource Center (IRC) provides patients, families and healthcare professionals with the latest information on leukemia, lymphoma and myeloma.
Lymphoma Research Foundation S
Lymphoma Research Foundation
800-500-9976
E-mail: Helpline@lymphoma.org
LRF provides a free information helpline, up-to-date educational materials, peer support, educational programs and financial assistance for patients.
Multiple Myeloma Research Foundation (MMRF)
Multiple Myeloma Research Foundation
866-528-NCCN (6226)
E-mail: multiplemyeloma@nccn.org
Supports research grants and professional and patient symposia on multiple myeloma and related blood cancers. MMRF publishes a quarterly newsletter, and provides referrals and information packets free of charge to patients and family members. Also includes the Multiple Myeloma Research Line in collaboration with the National Comprehensive Cancer Network (NCCN), which provides physicians access to NCCN expert faculty to answer questions on specific clinical issues related to the management of multiple myeloma at 866-528-NCCN (6226) or through e-mail at multiplemyeloma@nccn.org.
Patients Against Lymphoma
lymphomation.org
800-500-9976
A non-profit foundation providing support and timely access to evidence-based information about lymphomas and related treatments. Helps patients and physicians locate clinical trials for lymphoma, and provide query tools to assist in locating published articles on outcomes, safety and mechanisms for investigational agents. Also includes a free information helpline, up-to-date educational materials, peer support, educational programs and financial assistance.
^ TOP OF PAGELiver Cancer
YES
YES
877-937-7478
Provides education and support for people with liver tumors. YES programs include a toll free survivor line, a friend for the journey, tele-groups, teleconferences, a newsletter and treatment and advocacy updates.
^ TOP OF PAGELung Cancer
Lung Cancer Alliance
Lung Cancer Alliance
800-298-2436
E-mail: info@lungcanceralliance.org
The Lung Cancer Alliance offers programs designed to help improve the quality of life of people with lung cancer and their families. Programs include education about the disease, psychosocial support, and advocacy about issues that concern lung cancer survivors.
Lung Cancer Caring Ambassadors Program (LCCAP)
lungcancercap.org
Provides information and encouragement for people living with lung cancer and raises lung cancer awareness.
Lungcancer.org
Lungcancer.org
877-646-5864
E-mail: info@cancercare.org
Offers education, resources, clinical trial information, support groups, teleconferences, quarterly e-newsletter, personal stories and news updates.
The LUNGevity Foundation
lungevity.org
773-769-6060
E-mail: info@lungevity.org
The LUNGevity Foundation partners with the world's foremost physicians and research scientists to fund innovative research designed to detect, treat and cure lung cancer.
^ TOP OF PAGEMyelodysplastic Syndromes
Aplastic Anemia & MDS International Foundation, Inc.
Aplastic Anemia & MDS International Foundation, Inc.
800-747-2820
E-mail: info@aamds.org
As the oldest and largest patient advocate and support organization for bone marrow diseases, it provides free educational brochures on various topics including managing treatment decisions, bone marrow failure disease, clinical trials and iron chelation.
^ TOP OF PAGEOvarian Cancer
FORCE: Facing Our Risk of Cancer Empowered
www.facingourrisk.org
866-824-RISK (7475)
E-mail: info@facingourrisk.org
Provides support, information, and resources for women with hereditary breast or ovarian cancer and for those at high risk of the disease.
Gynecologic Cancer Foundation S
www.thegcf.org
800-444-4441
E-mail: info@thegcf.org
Encourages public awareness of gynecologic cancer prevention, early diagnosis, and proper treatment as well as supports research and training related to gynecologic cancers such as ovarian, uterine, vaginal, vulvar, endometrial, fallopian tube, and cervical cancers.
National Ovarian Cancer Coalition S
National Ovarian Cancer Coalition
888-OVARIAN (888-682-7426)
E-mail: nocc@ovarian.org
NOCC raises awareness about ovarian cancer and promotes education about the disease. They also offer support groups, a database of gynecologic oncologists searchable by state and educational materials.
Ovarian Cancer National Alliance S
Ovarian Cancer National Alliance
202-331-1332
E-mail: ocna@ovariancancer.org
Works to increase public and professional understanding of ovarian cancer and to advocate for research. The Alliance distributes materials and sponsors an annual advocacy conference for survivors and families.
REACH Global
561-394-9100
Provides awareness of the risk of hereditary breast and ovarian cancer among women and the benefits of genetic testing. The site offers information about BRCA 1 and 2 mutations and genetic testing, medical and spiritual resources, and tools to assess one's risk through their family medical history.
Sandy Rollman Ovarian Cancer Foundation
www.sandyovarian.org
877-730-1100
E-mail: info@sandyovarian.org
A non-profit organization that is committed to finding an early detection test for ovarian cancer, to funding improved treatments for the disease, and to developing educational programs to educate the public and physicians about ovarian cancer.
SHARE: Self-help for Women with Breast or Ovarian Cancer S
sharecancersupport.org
866-891-2392
E-mail: info@sharecancersupport.org
Provides support groups, educational forums, wellness programs, events, newsletter, and toll-free hotline. All services provided are free.
Women's Cancer Network (WCN) S
Women's Cancer Network
312-578-1439
E-mail: info@thegcf.org
The WCN is an interactive web site dedicated to informing women around the world about gynecologic cancer. The goal is to assist women who have developed cancer, as well as their families, to understand more about the disease, learn about treatment options, and gain access to new or experimental therapies. Provides news updates, a risk assessment survey, a doctor finder tool, information on various cancers affecting women and more.
^ TOP OF PAGEPancreatic Cancer
Pancreatic Cancer Action Network (PanCAN) S
Pancreatic Cancer Action Network
877-2-PANCAN (877-272-6226)
E-mail: info@pancan.org
A nonprofit advocacy organization that educates health professionals and the general public about pancreatic cancer to increase awareness of the disease. Information about support networks, clinical trials, and reimbursement for care also available.
^ TOP OF PAGEProstate Cancer
Malecare Prostate Cancer Support S
malecare.com
212-844-8369
E-mail: info@malecare.com
A national nonprofit organization providing a multilingual website with timely news, as well as doctor- and patient-authored articles on prostate cancer. Malecare also offers in-person and online support groups, including a special group and articles specific for gay men with prostate cancer.
Prostate Cancer Foundation
prostatecancerfoundation.org
1-800-757-CURE (2873)
E-mail: info@pcf.org
The Prostate Cancer Foundation funds high-impact research to find better treatments and a cure for prostate cancer.
Prostate Cancer Research Institute
pcri.org
800-641-PCRI
E-mail: help@pcri.org
Non-profit organization dedicated to empowering those with prostate cancer, offering education, treatment options, side effects and testing. They also provide a helpline at 1-800-641-7274. Also has a quarterly newsletter and Prostate Cancer Climbs.
Prostate Net, The
The Prostate Net
888-477-6763
E-mail: support@prostatenet.org
The Prostate Net provides information on treatment options, research, news, support, and advocacy.
US®TOO! International, Inc. S
ustoo.org
800-80-US TOO (800-808-7866)
E-mail: ustoo@ustoo.org
A prostate cancer support group organization. Goals of US TOO! are to educate men newly diagnosed with prostate cancer, offer support groups, and provide the latest information about treatment for this disease.
Zero The Project to End Prostate Cancer
Zero The Project to End Prostate Cancer
888-245-9455
E-mail: info@zerocancer.org
Provides comprehensive treatment information to patients, education to those at risk, and conduct free prostate cancer testing throughout the country. We increase research funds from the federal government to find new treatments and we fund research in the pursuit of a better test for the disease.
^ TOP OF PAGESarcoma
Alliance Against Alveolar Soft Part Sarcoma
alveolarspsarcoma.net
718 523-7752
E-mail: info@alveolarspsarcoma.net
A website developed to communicate information about a very rare type of cancer called alveolar soft part sarcoma plus information about a charitable foundation that is being formed to promote advocacy and research to benefit patients.
Liddy Shriver Sarcoma Initiative
Liddy Shriver Sarcoma Initiative
914-762-3251
E-mail: info@sarcomahelp.org
Supports people with sarcoma, increases public awareness of sarcoma and the lack of young adults in cancer-based clinical trials and raises funds for sarcoma-related research. Distributes a newsletter to patients and caregivers.
LMSarcoma Direct Research Foundation
lmsdr.org
888-266-1104
E-mail: Contact@LMSdr.org
Our mission is to assure the development of the means to cure and control the disease leiomyosarcoma and to improve the quality of life for those with this disease until the cure is found. LMSarcoma Direct Research Foundation was created to bridge the gap between leiomyosarcoma researchers and leiomyosarcoma patients.
Sarcoma Foundation of America
Sarcoma Foundation of America
301-253-8687
E-mail: info@curesarcoma.org
Dedicated to raising funds for sarcoma research, local patient networking and support.
^ TOP OF PAGESkin Cancer
Melanoma Patients' Information Page
mpip.org
Features a community bulletin board, research links, and the latest news in melanoma.
Melanoma Research Foundation (MRF)
Melanoma Research Foundation
800-MRF-1290
E-mail: info@melanoma.org
A non-profit foundation founded and maintained by melanoma patients, their families and caregivers and friends whose mission is to promote research, education, and advocacy and to find a cure for melanoma.
Melanoma Research International
Melanoma Research International
866-463-6663
Educates public on prevention and early detection of melanoma, coordinates local screening and education programs and serves patients and their families by operating a toll-free patient/family hotline for those battling melanoma.
The Skin Cancer Foundation
The Skin Cancer Foundation
E-mail: 800-754-6490
Works to increase public awareness and teach people how to recognize the early signs of skin cancer. They conduct public and medical education programs.
^ TOP OF PAGEThyroid Cancer
ThyCa: Thyroid Cancer Survivors' Association
ThyCa: Thyroid Cancer Survivors' Association
877-588-7904
E-mail: thyca@thyca.org
Provides support, education, and communication for thyroid cancer survivors, their families and friends.
The organizations listed have supplied information to CURE that was accurate at the time of publication. CURE does not evaluate or in any other way endorse the organizations listed. There is no cost for listing, which is at the discretion of the editors.
If you wish to add your group to the Toolbox, please send information to editor@curetoday.com.
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