Born with Cancer, Blessed with Life

A young couple describes their journey when they discover their unborn child has neuroblastoma.

When Rich and Stephanie Matthews were expecting their second child, a routine sonogram revealed that the developing baby might have a neuroblastoma—a sometimes deadly cancer that affects about 700 children a year.

How does a young couple handle such news? How did they brace themselves for the birth of a baby who might need surgery, chemotherapy or both? The couple described their journey for CURE, documenting the first year of life for their baby boy, Austin, in photos and words. Their story reminds us that cancer is not always the final victor.

[Stephanie] When that first sonogram showed we were having a boy, we knew what we would name our son: Austin, my grandmother’s maiden name.  

[Rich] Time stops when you see and hear the heartbeat of your child for the first time. My mother was there for Austin’s first sonogram—Grandma’s first time seeing her grandson!  It was an amazing moment. We left the doctor’s office as happy as could be. 

[Stephanie] The call came to my desk phone in the newsroom, which was odd in itself because no one outside work calls on that line. The nurse said the doctor spotted something on my sonogram. “Nothing to worry about,” she said. It was probably just kidney cysts, which are common in boys. They wanted a specialist to check it out, just to be sure. I called Rich. He also told me not to worry. We had a healthy one-year-old girl, Avery, and would have a healthy baby boy.

[Stephanie] It was a few weeks later when we got in to see the neonatologist. Even though everyone told me not to worry, I did. After another sonogram, the doctor gave us what he called a differential diagnosis. That meant it could be several different things. First, it could be kidney cysts, but to him, the spots looked like they were above the kidneys. It could also be a sequestration, which is basically a piece of the lung that hadn’t formed properly. Then he gave us the final possible diagnosis: it could be neuroblastoma, a childhood cancer. But he was sure it wasn’t this, because neuroblastomas aren’t diagnosed this early in pregnancy. The next step, an MRI, would tell us more. So we left that appointment without the answers we‘d hoped to have. 

We had the MRI with another doctor a few weeks later. The doctor called us back into her office to show us the scans. She focused on the area above one kidney, the adrenal gland. Then, in the kindest possible way, she dropped the bombshell: everything pointed to this being a neuroblastoma. “But neuroblastoma never shows up this early,” I insisted. She said it was rare to see it this early, but that’s what it looked like. I could feel the tears coming. Cancer? My child wasn’t even born yet, and already he had cancer? Rich grabbed my hand, and the doctor handed me a tissue. I was in a daze as she told us Austin might need surgery, chemotherapy or both. I left the appointment in a fog. I was supposed to return to work to produce the 10 o’clock news that night, but there was no way I could concentrate on work knowing the baby growing inside me likely had cancer.

Talk about this article with other patients, caregivers, and advocates in the Childhood Cancers CURE discussion group.
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