Why It’s Important to ‘Live Well With Your Cancer’

Video

While it is important to educate oneself after receiving a diagnosis of cancer, it’s also critical to know when to step away and find a balance between cancer and life, according to Diane Zipursky-Quale.

While it is important to educate oneself after receiving a diagnosis of cancer, it’s also critical to know when to step away and find a balance between cancer and life, according to Diane Zipursky-Quale.

CURE recently sat down with Quale, co-founder of the Bladder Cancer Advocacy Network (BCAN), who implores patients to continue to do things that bring them joy throughout their cancer journey and live one day at a time.

“If you have a cancer diagnosis, and you are spending all your time talking to other people with the diagnosis, or just focusing on ‘what does this mean,’ it's not good for your emotional wellbeing,” Quale said. “What's really important is that you be able to live well with your cancer.”

“Find that balance, find the joy, find something that brings you joy, every single day. And that will help a lot, especially getting through the most difficult times.”

Transcription:

Yeah, well, it's really important (to find a balance), because otherwise, if you have a cancer diagnosis, and you are spending all your time talking to other people with the diagnosis, or just focusing on ‘what does this mean?’ it's not good for your emotional wellbeing. What's really important is that you be able to live well with your cancer.

And what that means is find those things that make you feel good. If you like to run, make sure you're going out for a run every day, or you're going out for a walk, and that you're actually engaging, which I recognize is hard in times of COVID, but that you're engaging with your friends with your family, because a cancer diagnosis can tend to be isolating, because you're going through something very stressful. And you might think that other people don't know what that feels like. But it's really important to share that.

And if you need help, ask someone for help. We always say that it's important when you go to see your physician, if you can bring somebody with you, which again, I understand now might be a little more challenging. But certainly, if you have a telemedicine appointment, you can have somebody on the call with you. Because again, oftentimes, you can't hear everything. The doctor might say one thing that you go “oh, no,” and then everything else is totally out the window. So I think it's just really important that you do that.

And one of the things that certainly has helped me all these many years is we should live, each of us, should live our lives one day at a time. Because today is all any of us get. And boy, if the last year hasn't taught us all that? Who would have thought, you know, a year ago that we would be in the situation that we are? So, you want to make the most of every day. Find that balance, find the joy, find something that brings you joy, every single day. And that will help a lot, especially getting through the most difficult times.

For more news on cancer updates, research and education, don’t forget to subscribe to CURE®’s newsletters here.

Related Videos
For patients with cancer, the ongoing chemotherapy shortage may cause some anxiety as they wonder how they will receive their drugs. However, measuring drugs “down to the minutiae of the milligrams” helped patients receive the drugs they needed, said Alison Tray. Tray is an advanced oncology certified nurse practitioner and current vice president of ambulatory operations at Rutgers Cancer Institute in New Jersey.  If patients are concerned about getting their cancer drugs, Tray noted that having “an open conversation” between patients and providers is key.  “As a provider and a nurse myself, having that conversation, that reassurance and sharing the information is a two-way conversation,” she said. “So just knowing that we're taking care of you, we're going to make sure that you receive the care that you need is the key takeaway.” In June 2023, many patients were unable to receive certain chemotherapy drugs, such as carboplatin and cisplatin because of an ongoing shortage. By October 2023, experts saw an improvement, although the “ongoing crisis” remained.  READ MORE: Patients With Lung Cancer Face Unmet Needs During Drug Shortages “We’re really proud of the work that we could do and achieve that through a critical drug shortage,” Tray said. “None of our patients missed a dose of chemotherapy and we were able to provide that for them.” Tray sat down with CURE® during the 49th Annual Oncology Nursing Society Annual Congress to discuss the ongoing chemo shortage and how patients and care teams approached these challenges. Transcript: Particularly at Hartford HealthCare, when we established this infrastructure, our goal was to make sure that every patient would get the treatment that they need and require, utilizing the data that we have from ASCO guidelines to ensure that we're getting the optimal high-quality standard of care in a timely fashion that we didn't have to delay therapies. So, we were able to do that by going down to the minutiae of the milligrams on hand, particularly when we had a lot of critical drug shortages. So it was really creating that process to really ensure that every patient would get the treatment that they needed. For more news on cancer updates, research and education, don’t forget to subscribe to CURE®’s newsletters here.
Woman with dark brown hair and pink lipstick wearing a light pink blouse with a light brown blazer. Patients should have conversations with their providers about treatments after receiving diagnoses.
Dr. Andrea Apolo in an interview with CURE
Dr. Kim in an interview with CURE
Dr. Nguyen, from Stanford Health, in an interview with CURE
Dr. Barzi in an interview with CURE
Related Content