<< View All Contributors
x-button

Dedicated to the Caregivers

Caregivers walk alongside cancer patients through every step of the journey.
PUBLISHED: JANUARY 06, 2015
Last night renewed my admiration for caregivers.

My husband and I were getting ready for bed when we heard a strange noise coming from our daughters' room. We ran downstairs and found one of the three-year-olds standing outside her room, mouth hanging open and making a horrible gagging, coughing sound. At first we thought she was throwing up, but then she kept trying to suck in air, and it almost sounded like she was choking. "Can you breathe?" She shook her head and tears rolled down her cheeks.

My husband donned his superhero cape while I grabbed her coat and hat. He whisked her into the car. I scraped the ice off the windshield while he buckled her into the car seat. And they were off.

I stood there and watched them drive away, feeling totally helpless.

How do caregivers do this?!?

Her sister had woken up, so that snapped me back to my senses.

Okay. Focus.

Get her sister back to sleep.
Run through nightmare scenarios in my head.
Check on the kids.
Feel like throwing up.
Fold laundry.
Check on the kids again.
Stare at the clock.
Calculate how long it takes to get to the ER, check in, see a doctor.
Check my phone to see if I missed a message.
Check on the kids 1,000 times.
Sit down.
Stand up.
Scroll through adorable pictures of the kiddos.
Turn my phone buzzer to max.
Stare off into space.
Jump out of my skin when I get a text.

croup text message

It's just croup, she's going to be okay. They will be home in a few hours.

Finally exhale.
Breathe.
Breathe.
Focus.
Find humidifier.
Clean out humidifier.
Reflect on how caregivers live in this space of terror, being responsible and powerless at the same time.
Feel humbled and amazed.

I've been living with stage 4 lung cancer for a year and a half now. My husband has watched me struggle to breathe, seen me puke my guts out, taken me to countless doctor's appointments, taken over cooking a meal mid-stir when I was too exhausted to go on, run from floor to floor of the hospital parking ramp looking for a wheelchair for me, all the while keeping our household running and parenting our three small children. I have no idea how he does it. In sickness and in heath, indeed.

superhero

To all the caregivers out there, all you unsung superheroes, my admiration for you is greater than ever. Watching someone you love struggle to breathe, battle side effects, and deal with endless pain is its own kind of torture. We patients go through this because we have no choice. You do it out of love.

That, my friends, is truly inspirational.
 
 
Tori Tomalia is many things: a mom, a wife, a theatre artist, a mediocre cook, a Buffy fan, a stinky cheese aficionado. She is also, unfortunately, a repeat visitor to Cancerland. Stay tuned for her continued adventures (http://www.curetoday.com/community/tori-tomalia).
 
Superhero image courtesy of vectorolie at FreeDigitalPhotos.net
 

Talk about this article with other patients, caregivers, and advocates in the General Discussions CURE discussion group.
Tori Tomalia is a two-time cancer survivor currently living with stage 4 non-small cell lung cancer since May of 2013. Her first cancer experience was childhood osteogenic sarcoma, for which she received chemotherapy and curative surgery, and had been cancer-free for over 20 years prior to the lung cancer diagnosis. Along with cancer, Tori juggles life as a mom of 3 small children, a wife, a theatre artist, writer and lung cancer awareness advocate.
The Best Cancer Blogs of the Year - 2017
 
CURE wants to hear from you! We are inviting you to Share Your Story with the readers of CURE. Submit your personal experience with cancer by visiting Share Your Story
 
Not yet receiving CURE in your mailbox? Sign up to receive CURE Magazine by visiting GetCureNow.com
x