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Martha lives in Illinois and was diagnosed with metastatic breast cancer in January 2015. She has a husband and three children, ranging in age from 12 to 18, a dog and a lizard.
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Cancer Misclassified? Mistreated Would Be More Accurate

When breast cancer patients are misclassified by subtype, it can mean the best treatment options are delayed.
PUBLISHED: MARCH 16, 2017
Talk about this article with other patients, caregivers, and advocates in the Breast Cancer CURE discussion group.
Recently, a headline on curetoday.com grabbed my attention: Some Breast Cancer Patients May be Misclassified (http://www.curetoday.com/articles/some-breast-cancer-patients-may-be-misclassified-expert-explains).
I immediately clicked the link and read the article through, and although there was medical terminology that made it hard for this patient to follow the story as well as an oncologist, I immediately grasped that this potential for misclassification involved the subtype of breast cancer I have (HER2+) and that the problem is that guidelines have recently been changed in such a way as to make it more difficult for the treating oncologist to say, without question, if the patient she’s seeing falls on the HER2+ side of the equation or the HER2- side.

The research discussed how the possible misclassification indicated that patients would be identified as HER2+ when in fact they are HER2-. This is important because HER2+ cancers have some relatively new and unique treatments that can be effective in treatment at any stage, including slowing the progression of metastatic breast cancer. These treatments would not be effective on HER2- patients.

That’s the backstory. My story is that the headline pulled me in because I was misclassified back in December 2014/January 2015. My initial hospital and the pathologist they’d used labeled me as HER2-/ER-/PR-. That triple negative was, for me, the worst possible result in a bad situation. At that time, new to the world of breast cancer and experiencing the rollercoaster of emotions that every new patient goes through, I had quickly learned that the drugs easily available for treatment were not as numerous for triple-negative breast cancer.

Fortunately, my husband and I both agreed that the hospital my insurance had linked me to was not the ideal place for cancer treatment. My insurance allowed me, on Jan. 1, 2015, to switch my general practitioner and, thus, get in to a different hospital and with a different set of oncologists.



Talk about this article with other patients, caregivers, and advocates in the Breast Cancer CURE discussion group.
 
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