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Tori Tomalia is a two-time cancer survivor currently living with stage 4 non-small cell lung cancer since May of 2013. Her first cancer experience was childhood osteogenic sarcoma, for which she received chemotherapy and curative surgery, and had been cancer-free for over 20 years prior to the lung cancer diagnosis. Along with cancer, Tori juggles life as a mom of 3 small children, a wife, a theatre artist, writer and lung cancer awareness advocate.
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Leading Us Through CancerLand

We all want our doctors to be experts in treating our diseases, but what else do they need as they lead us through CancerLand? I wish my doctor knew ...
PUBLISHED: JUNE 24, 2015
Talk about this article with other patients, caregivers, and advocates in the Lung cancer CURE discussion group.
What do you wish your doctor knew? CURE has partnered with Inspire in their #IWishMyDoctorKnew campaign. The campaign asked patients and caregivers to finish the sentence, “I wish my doctor knew…” in hopes of creating a more understanding relationship. Please share your story in the discussion group.




You feel a lump.

A bump.

A something-isn't-right.

You walk into the doctor's office.

Your heart is racing.

You can't breathe.

You see your future disappearing before your eyes.

Clipboard

Forms

Insurance

Blood pressure

Temperature

Weight

Check

Check

Check

I wish my doctor knew

check

I wish my doctor knew

check

I wish my doctor knew

check

What it feels like

check

to be a patient

check

to have to be a patient

check

to have to be patient

check

White coats

Cold hard statistics

Medical jargon diagnosis

Gobbledy goop prognosis            

Protcols

Hear me!

Standard of care

See me!

Aggressive

Know me!

Maintenance

Love me!

Stable

check

check

check

check

Know my fear.

so scared

Take my life in your hands.

all control is you

I am more than my diagnosis.

know my heart

You hold all the power.

your words swim around my head

I wish I was your one and only.

please treat me like your one and only

You don’t want to give false hope.

it’s the only thing keeping me from drowning

You hold my hand

Check.

Please guide me

Not just my body

But me

Not just my body to healing or healed or at-least-not-dead-yet

But me, my whole me, my whole self

Please know how much it hurts

Not the body, but the knowing

Please pretend that you care.

I wish my doctor knew.

Tori Tomalia is many things: a mom, a wife, a theatre artist, a mediocre cook, a Buffy fan, a stinky cheese aficionado. She is also, unfortunately, a repeat visitor to CancerLand. Stay tuned for her continued adventures.

     Facebook: facebook.com/lungcancerblogger

     Twitter: twitter.com/lil_lytnin

     Blog: "A Lil Lytnin' Strikes Lung Cancer" lil-lytnin.blogspot.com

Talk about this article with other patients, caregivers, and advocates in the Lung cancer CURE discussion group.
 
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