Letters from Our Readers

Readers respond to CURE articles about fatigue, demystifying misdiagnoses, sarcoma, and straight from San Antonio.

Talk about this article with other patients, caregivers, and advocates in the General Discussions CURE discussion group.

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The articleWarning Signs in the Winter issue contains some of the best explanations I’ve read about ovarian cancer symptoms. Regarding the symptom debate, I was extremely bothered by the exclusion of fatigue from the symptom consensus statement. As a survivor of ovarian cancer, one of my first symptoms was extreme fatigue. Although chemo has only been over for five weeks, I am not as fatigued as I was prior to diagnosis. I would please ask those researching the symptoms to not discard fatigue so easily. Put it on the list, noting that it needs follow-up and is not a stand-alone symptom, but something to be brought up when seeing your doctor. Naturally, there are other reasons for extreme fatigue; however, in looking for early signs, doctors need to keep an open mind if other factors seem indicative.

Barbara Simon

Kalispell, Montana

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Your article “Mistaken Identity,” about the difficulties of diagnosing blood cancers and the dangers of misdiagnosis, particularly for fast-moving acute leukemias, was right on the mark. At The Leukemia & Lymphoma Society, we’re providing primary care physicians with the tools to identify blood cancers early and improve outcomes with early access to vital treatment.

Robin Kornhaber

Senior Vice President, The Leukemia & Lymphoma Society

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Every year when I return from the San Antonio Breast Cancer Symposium, I wonder if the media were actually in the same room when I read their reports, rife with erroneous information, misinterpretations of the science, and misleading headlines. Congratulations to CURE for timely, accurate, and informative coverage of the symposium!

Marjorie Gallece

Director, Williamson County Services

Breast Cancer Resource Centers of Texas

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Talk about this article with other patients, caregivers, and advocates in the General Discussions CURE discussion group.
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