Bracing for Change

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Even in a period of change, I still look at my dear husband frozen in time due to this disease.

"Boy, do I welcome change right now!" Two months ago, I would have been very nervous to change my cancer treatment—now—as I gasp for air when changing my clothes—I welcome it with open tired arms.

Like anyone experiencing change—this change could be for the better or the worse. My new treatment plan may not be effective and I will have to deal with a whole new array of side effects. However, this change I approach will be a "transitional change." Since my lung cancer is "driven" by a molecular alteration, I have been receiving a clinical trial targeted therapy that worked really well for 6-8 months. Then a slow progression of the lung cancer begun, which has resulted in enough cancer spread that my lungs are screaming, "Uncle!"

The next new targeted cancer drug is not yet an option for me. I'm so close. Just an arm's length away from receiving hopefully what will be my next miracle. Given that my lungs did not reach the timeline agenda for the arrival of this trial to my local hospital, I will re-start conventional chemotherapy tomorrow to bridge the gap in the timeline. If I do not make a change, I do not think my lungs could hold out much longer. I suspect that this is what a lot of other advanced stage patient's are doing who have ran out of standard treatment options—"hop scotching" around until the next miracle is pumped out of the drug pipeline.

Change is not just scary for the patient. We can see the anxiety and fear in our loved ones' eyes. I look at my husband frozen in time. We witness other 30-somethings making moves in positive growth directions. If it weren't for this cancer shackle, he would be onward bound.

These thoughts allow me to reflect on a message that resonated with me. "When you lose a parent or grandparent, you lose a part of your past. When you lose a child, you lose a part of your future. When you lose your spouse, you lose a part of the past, the present and the future."

Cancer affects more than just the patient. Those who care for us and grieve our losses with us carry its deepest wounds.

We hope that I will benefit from these next few treatments so "we," as a couple, could experience a tidbit of the growth we deserve as a happy couple.

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For patients with cancer, the ongoing chemotherapy shortage may cause some anxiety as they wonder how they will receive their drugs. However, measuring drugs “down to the minutiae of the milligrams” helped patients receive the drugs they needed, said Alison Tray. Tray is an advanced oncology certified nurse practitioner and current vice president of ambulatory operations at Rutgers Cancer Institute in New Jersey.  If patients are concerned about getting their cancer drugs, Tray noted that having “an open conversation” between patients and providers is key.  “As a provider and a nurse myself, having that conversation, that reassurance and sharing the information is a two-way conversation,” she said. “So just knowing that we're taking care of you, we're going to make sure that you receive the care that you need is the key takeaway.” In June 2023, many patients were unable to receive certain chemotherapy drugs, such as carboplatin and cisplatin because of an ongoing shortage. By October 2023, experts saw an improvement, although the “ongoing crisis” remained.  READ MORE: Patients With Lung Cancer Face Unmet Needs During Drug Shortages “We’re really proud of the work that we could do and achieve that through a critical drug shortage,” Tray said. “None of our patients missed a dose of chemotherapy and we were able to provide that for them.” Tray sat down with CURE® during the 49th Annual Oncology Nursing Society Annual Congress to discuss the ongoing chemo shortage and how patients and care teams approached these challenges. Transcript: Particularly at Hartford HealthCare, when we established this infrastructure, our goal was to make sure that every patient would get the treatment that they need and require, utilizing the data that we have from ASCO guidelines to ensure that we're getting the optimal high-quality standard of care in a timely fashion that we didn't have to delay therapies. So, we were able to do that by going down to the minutiae of the milligrams on hand, particularly when we had a lot of critical drug shortages. So it was really creating that process to really ensure that every patient would get the treatment that they needed. For more news on cancer updates, research and education, don’t forget to subscribe to CURE®’s newsletters here.
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