|
People with cancer and their families need assistance coping with
the emotional and practical aspects of the disease. Those providing
Spanish-language materials are marked with S.
General
Cancer Information and Support
American
Cancer Society (ACS)
800-ACS-2345 (800-227-2345)
www.cancer.org
A voluntary
organization that offers a variety of services to patients and their
families. The ACS also supports research provides printed
materials, and conducts educational programs. S
American Cancer Society Cancer Action Network Inc.
www.acscan.org
ACS CAN is
dedicated to eliminating cancer as a major public health problem
through voter education and issue campaigns aimed at influencing
candidates and lawmakers to support laws and policies that will
help people fight cancer.
American Institute for Cancer Research (AICR)
800-843-8114
www.aicr.org
Provides information about cancer prevention particularly
through diet and nutrition. They offer a toll-free nutrition hotline
pen pal support network and funding of research grants. S
American Society of Clinical Oncology (ASCO)
703-299-0150
www.asco.org
Contains more than 40000
pages of information including: cancer resources on the Internet
finding an oncologist and up-to-date information about cancer
policy issues.
American Society for Therapeutic Radiology and Oncology
800-962-7876
www.astro.org
ASTRO
provides up-to-date cancer research, brochures and videos to
patients and patient advocates, and has a directory where patients
can locate radiation oncologists in their area. A new Web site,
www.rtanswers.org includes disease-specific information on cancers commonly treated
with radiation, descriptions of the radiation treatment team,
explanations of external beam radiation therapy and brachytherapy,
clinical trials information, and details on side effects.
Anderson Network
800-345-6324 www.mdanderson.org/andersonnetwork
Along with providing educational forums and a quarterly newsletter,
the Anderson Network offers a patient-matching program and support
for caregivers.
The Angiogenesis
Foundation
866-54-ANGIO (26446)
www.angio.org
Provides patients with
information on angiogenesis, antiangiogenic treatments and clinical
trials. Their mission is to help bring about new treatment for patients
based on medicines that control blood vessel growth.
Asian and Pacific
Islander Cancer Education Materials (APICEM)
www.cancer.org/apicem
A searchable online database
of Asian language cancer materials. Co-sponsored by The Asian American
Network for Cancer Awareness, Research and Training (AANCART) and
the American Cancer Society (ACS), the program is designed to help
Asians and Pacific Islanders with limited English-speaking abilities
gain access to information on how to reduce their risks of cancer.
Association of Cancer
Online Resources
www.acor.org
Provides resources for cancer patients wanting to find others with
similar cancers. Also has information about most kinds of cancer.
Bloch Cancer Hotline
800-433-0464 www.blochcancer.org
Matches newly diagnosed cancer patients with trained, home-based volunteers
who have been treated for the same type of cancer. Information at
hotline@hrblock.com. S
Cancer411.org
877-226-2741 www.cancer411.org
Provides database on clinical trials that lists all ongoing cancer
trials. Also offers news articles and other patient resources.
Cancer and Careers
www.cancerandcareers.org
Provides a free workbook, educational
resources, support and information for both cancer patients and
survivors, as well as coworkers, managers, CEOs and human resources
personnel about cancer patients and survivors working through their
treatment and returning to work. S
CancerCare Inc.
800-813-HOPE (800-813-4673 )
www.cancercare.org
A national
nonprofit agency that offers free support information
financial assistance and practical help to people with cancer
and their loved ones. Services are available in person over
the phone and through the agencys website. S
Cancer Control PLANET
(Plan, Link, Act, Network with Evidence-based Tools)
cancercontrolplanet.cancer.gov
Developed as a joint effort between the National Cancer Institute
and the American Cancer Society, among others, this site offers
new tools for cancer control planning, implementation, and evaluation.
Cancer Hope Network
877-HOPENET (877-467-3638)
www.cancerhopenetwork.org
The Cancer Hope Network provides individual support to cancer patients and their families by matching them with trained volunteers who have undergone and recovered from a similar cancer experience.
Cancer Information and Counseling Line (CICL)
800-525-3777
www.amc.org
A free service
provided by AMC Cancer Research Center, professional counselors
provide up-to-date medical information emotional support through
short-term counseling and resource referrals to callers nationwide
(8:30 a.m. - 5 p.m. MST).
Cancervive
800-486-2873
www.cancervive.org
Helps
cancer survivors overcome the challenges of
life after cancer. In addition to support groups
they provide educational materials insurance information
and assistance and advocacy.
CANCER101
www.cancer101.org
Provides newly diagnosed patients with organizational tools and
planners.
CaringBridge
www.caringbridge.org
651-452-7940
A free Internet service that provides
personalized web pages to help keep friends and family informed
of life events. It also allows visitors to post encouraging messages
and support on individualized password-protected websites.
The Center for
Cancer Support & Education
www.centerforcancer.org
781-648-0312
Empowers and supports
people touched by cancer, their caregivers and loved ones, by offering
resources to enhance life as they move forward.
ChemoCare.com
www.chemocare.com
ChemoCare.com is a web resource developed by cancer survivor/figure
skater Scott Hamilton in conjunction with the Cleveland Clinic.
Provides the latest information about chemotherapy to patients,
their families, friends and caregivers. It is designed to alleviate
patient concerns about chemotherapy and outline everything they
need to know in the following sections: What is Chemotherapy?; Chemotherapy
Drugs; Managing Side Effects; Eating Well During Chemotherapy; and
Before and After Chemo.
Coalition of National
Cancer Cooperative Groups
www.CancerTrialsHelp.org
This site contains a search engine
to find cancer clinical trials closest to your home, comprehensive
self-study guide, patient discussion forum and helpful information
for patients and caregivers.
Exceptional Cancer Patients
814-337-8192
www.ecap-online.org
Provides emotional support and education for people living with
cancer and other life-threatening illnesses.
Fighting Chance
www.fightingchance.org
A network of individuals who have been touched by cancer who can
offer support and understanding. Offers Coping with Cancer
on the East End: A Practical Resource Guide for free.
Fertile Hope
888-994-4673
www.fertilehope.org
A nonprofit organization dedicated
to helping cancer patients with fertility issues.
FindCancerExperts www.findcancerexperts.com
A referral source for those who want a second opinion on a biopsy
diagnosis of cancer.
Gildas Club Inc.
888-GILDA-4U (888-445-3248)
www.gildasclub.org
Provides social and emotional support to cancer patients their
families and friends. Lectures workshops networking
groups special events and a childrens program are
available. Open in 14 cities. Group Loop
888-793-WELL (9355)
www.grouploop.org
Group Loop is a program by The Wellness Community that provides online support for teens with cancer and their parents.
International Cancer Alliance (ICA)
800-ICARE-61 (800-422-7361)
www.icare.org
Provides a free
Cancer Therapy Review which includes information on a specific
type of cancer (description and staging treatment diagnostic
tests and clinical trials). Cancer Breakthroughs report is
sent quarterly.
Lance Armstrong Foundation
512-236-8820
www.livestrong.org
Helps
people with cancer and their loved ones live strong through advocacy,
education, public health and research, as well as the LIVESTRONG
Resource for Cancer Survivors.
Lifeline Air Ambulance, Inc.
800-492-5433
www.air-lifeline.com
Lifeline Air Ambulance provides worldwide emergency and routine air ambulance services.
Lotsa Helping
Hands
www.lotsahelpinghands.com
Provides a simple way
for friends, family, colleagues and neighbors to pitch in with meals
delivery, rides and other tasks necessary for life to run smoothly
during a crisis. It uses a free easy-to-use, private group calendar,
specifically designed for organizing helpers.
Mary-Helen Mautner Project for Lesbians with Cancer (MHMPLC)
202-332-5536 www.mautnerproject.org
Provides transportation to and from treatment, legal assistance, support
groups, bereavement counseling, education, and a smoking cessation
program. S
MetaCancer Foundation
www.metacancer.org
info@metacancer.org
The mission of The MetaCancer Foundation is to provide online psychosocial services, resources, and inspiration for survivors and caregivers living with metastatic cancer.
National Cancer Institute (NCI)
800-4-CANCER
(800-422-6237)
www.cancer.gov
bethesdatrials.cancer.gov
An excellent and comprehensive site for people wanting
to know more about cancer including cancer prevention
definitions clinical trial information recipes
links to cancer centers and a whole lot more. The
NCI's Center for Cancer Research also publishes a free quarterly
e-newsletter, the BethesdaTrials News, designed to help
community physicians stay informed of investigational approaches,
including clinical trials, to treating, diagnosing and preventing
cancer. S
National Coalition
for Cancer Survivorship
877-622-7937
www.canceradvocacy.org
Offers support to cancer
survivors and their loved ones. Provides information and resources
on cancer support, advocacy and quality-of-life issues. S
National Collegiate Cancer
Foundation
www.collegiatecancer.org
Provide services and
support to college students who are cancer survivors. NCCF's goal
is to make the life of these students, a little easier by providing
the right resources and support to help them establish a "will
win" attitude.
National Comprehensive
Cancer Network (NCCN)
215-690-0300
www.nccn.org
A
non-profit alliance of 20 of the world's leading cancer centers,
dedicated to improving the quality and effectiveness of care provided
to cancer patients. NCCN develops resources that present valuable
information to the numerous stakeholders in the health care delivery
system. The primary goal of all NCCN initiatives is to improve the
quality, effectiveness and efficiency of oncology practice. To order
patient guidelines call 888-909-NCCN (6226).
N.W. Andrology
& Cryobank
www.NWCryoBank.com
Sperm donor bank which
lists profiles of donors and samples for infertility treatment.
OncoLink
www.oncolink.com
Resources for
patients, families and health care workers that is written by doctors,
nurses, other health professionals and survivors.
Cancer.Net (formerly People Living With Cancer)
703-797-1914
www.cancer.net/patient/About+Us
Links all ASCO information and materials in addition to giving other
communication access to people with all kinds of cancer. S
Planet Cancer
www.planetcancer.org
Website for young adults with cancer. A place to share insights,
explore fears, or laugh with others.
Pine Street Foundation
415-455-5878
www.pinestreetfoundation.org
Website that provides information
on evidence-based research on integrative care. Publishes a quarterly
newsletter called Avenues.
Pregnant with Cancer Network
800-743-4471
www.pregnantwithcancer.org
Connects women who have been diagnosed
with cancer during preganancy with other women who have been through
a similar situation.
R. A. Bloch Cancer Foundation Inc.
800-433-0464
www.blochcancer.org
The foundation matches newly diagnosed
cancer patients with trained home-based volunteers who have
been treated for the same type of cancer. Informational materials
and a list of institutions that offer second opinions also available.
RTSupportDoc.com
www.RTSupportDoc.com
This website is dedicated
to helping people undergoing radiation therapy, where you'll learn
more about cancer, radiation therapy and can sign up for a monthy
newsletter.
I'm Too Young For This!
www.ImTooYoungForThis.org
877-735-4673
I'm Too Young For This is a
global support community for young adults affected by cancer who get busy
living and rock on. We use music to make it hip to be a survivor and talk
about stupid cancer by providing 'one-stop' access to hard to find
resources, peer support and social networks.
Strength
for Caring
www.strengthforcaring.com
The first national program
for cancer caregivers to address both the physical and psychosocial
health needs of the patient and caregiver. Free workshops which
are facilitated by trained nurses and social workers are held
at health care facilities and advocacy organizations across the
United States. The website includes caregiving tips and resources,
information about cancer side effects, caregiving training videos
and an updated listing of Strength for Caring programs in local
communities.
Team
Survivor
www.teamsurvivor.org
Team Survivor provides
free exercise and health education programs for women with a past
or present diagnosis of cancer. Our fun and supportive programs
offer women the opportunity to reclaim their fitness, gain a sense
of accomplishment, build a social support system and achieve renewed
comfort with their bodies and their health. Our programs are open
to women of all ages and fitness levels, in all stages of cancer
treatment and recovery.
There With Care
303-447-CARE (2273)
www.therewithcare.org
There With Care is a non-profit organization that provides a range of services for families facing critical illness in order to ease the burden of life's day-to-day obligations during a medical crisis.
Ulman
Cancer Fund for Young Adults
888-393-FUND
(3863)
www.ulmanfund.org
Provides
support programs, education and resources to young adults, and their
families and friends, who are affected by cancer and to promote
awareness and prevention of cancer.
Vital Options and The Group Room
Cancer Radio Talk Show
800-GRP-ROOM (800-477-7666)
www.vitaloptions.org
Sponsors
a weekly syndicated call-in cancer radio talk show called The
Group Room. Listeners can participate in the show during its
broadcast every Sunday from 4 p.m.-6 p.m. EST. A live web
simulcast available on the website.
The Wellness Community
888-793-WELL (888-793-9355)
www.thewellnesscommunity.org
Provides
free psychological and emotional support to cancer patients and
their families. They offer support
groups on stress reduction and cancer education workshops, nutrition
guidance, exercise sessions,
and social events.
Women's Cancer
Network (WCN)
www.wcn.org
The WCN is an interactive
web site dedicated to informing women around the world about gynecologic
cancer. Their goal is to assist women who have developed cancer,
as well as their families, to understand more about the disease,
learn about treatment options, and gain access to new or experimental
therapies. WCN provides news updates, a risk assessment survey,
a doctor finder tool, information on various cancers affecting women
and more.
Childhood
Cancer
Bear Necessities Pediatric Cancer Foundation
312-836-2327
www.bearnecessities.org
Bear Necessities Pediatric Cancer Foundation is a national organization whose mission is to provide hope and support to those who are touched by pediatric cancer. It provides research funding, family support programs and educational pamphlets.
Cancer Warriors, Inc.
www.cancerwarriors.org
The
mission of Cancer Warriors, Inc. is to encourage and support children,
siblings and caregivers during treatment for childhood cancer. This
organization raises funds for childhood cancer research while also
promoting awareness and education about the devastating diagnosis
of childhood cancer.
CancerCare
for Kids
800-813-HOPE (800-813-4673 )
www.cancercareforkids.org
Cancer
Care for Kids helps families throughout the United States through
its online and telephone support groups, telephone education workshops
and through the information available on its website. Counseling
and educational programs are offered at Cancer Care locations in
New York City, New Jersey, Long Island and Connecticut.
Candlelighters
Childhood Cancer Foundation (CCCF)
800-366-CCCF (800-366-2223)
www.candlelighters.org
A nonprofit organization that provides
information peer support and advocacy. A financial aid
list has organizations to which eligible families may apply for
assistance.
Childrens Brain Tumor Foundation
(CBTF)
866-228-4673
www.cbtf.org
Comprehensive site offering educational information, tips for hospital
stays and going home, school issues, summer camps and more.
Children's Cause for Cancer Advocacy (CCCA)
301-562-2765
www.childrenscause.org
CCCA works as a national catalyst to stimulate drug discovery and development for childhood cancers, to expand resources for research and treatment, and to address the needs and concerns of survivors.
Children's Oncology Camping Association International (C.O.C.A)
515-491-4999
www.coca-intl.org
C.O.C.A. International consists of more than 65 member camps in the U.S. as well as several camps outside of the U.S. such as Canada, Australia, New Zealand, and Europe. The goal is to enhance the lives of children with cancer and to have a forum for for member camps to share their experiences and ideas.
Curing Kids'
Cancer Inc.
866-933-CURE (2873)
www.curingkidscancer.org
At the end of a sports
season, team parents typically chip in money for a coach's gift.
Instead, donate those funds to Coaches Curing Kids Cancer to help
support pediatric cancer research. This is a wonderful new way for
children to help other children while honoring their coaches.
CureSearch
800-458-6223
www.curesearch.org
A collaboration of the
largest childhood cancer research organization, the Children's Oncology
Group and the National Childhood Cancer Foundation. The organization
supports research conducted by a network of institutions on the
cancers of infants, children, and young adults. S
Eagle
Mount
www.eaglemount.org
Eagle
Mount offers a therapeutic recreation program, which includes golf,
swimming, skiing and other activities, including camps for children
with cancer.
Hope Street Kids
800-227-2732
www.hopestreetkids.org
Hope Street Kids' mission is to eliminate childhood cancer through
research, advocacy and education. The organization was founded in
1999 by Congresswoman Deborah Pryce and Randy Walker after they
lost their 9-year-old daughter, Caroline, to neuroblastoma.
Kids Konnected
800-899-2866
www.kidskonnected.org
Offers a variety of support services free to children, ages 3-18,
who have a parent with cancer or who have lost a parent to cancer.
Pediatric Brain Tumor Foundation (PBTF)
800-253-6530
www.pbtfus.org
The mission of the PBTF is to increase public awareness, aid in early detection and treatment, provide educational and emotional support to patients and families and find the cause and cure of pediatric brain tumors by supporting research.
Starlight Starbright Children's Foundation
310-479-1212
www.starlight.org
The foundation is dedicated to improving the quality of life of seriously ill children by providing educational and entertaining family activities and creating programs that inspire seriously ill children, helping them cope with a prolonged illness.
Wonders &
Worries
512-329-5757
www.wondersandworries.org
Provides therapeutic programs
for children and their families coping with chronic or life-threatening
illness. S
The Childhood Brain Tumor Foundation
877-217-4166
www.childhoodbraintumor.org
Provides informational materials on childhood brain tumors including news articles, upcoming educational events, webcasts and presentations, newsletters and a resource list.
The National Children's Cancer Society
314-241-1600
www.children-cancer.com
The mission of the National Children's Cancer Society is to improve the quality of life for children with cancer and their families by providing financial and in-kind assistance, advocacy, support services and education.
Complementary
Therapies
Annie Appleseed Project
www.annieappleseedproject.org
A nonprofit corporation that provides information, education, advocacy and awareness for people with cancer, family and friends interested in complementary and alternative medicine (CAM) and natural therapies from the patient perspective.
About Herbs, Botanicals & Other Products
www.mskcc.org/mskcc/html/11570.cfm
Web site led by an oncology-trained pharmacist that provides information
about herbs and other products, including a clinical summary for
each agent and details about adverse side effects, interactions
and potential benefits or problems.
Center for Mind-Body
Medicine
202-966-7338
www.cmbm.org
Combines modern science with ancient healing. Addresses the mental,
emotional, social, physical and spiritual sides of health and illness.
National Center for Complementary and Alternative Medicine (NCCAM)
888-644-6226
www.nccam.nih.gov
Provides the latest news, research, events and clinical trials in
complementary medicine.
Smith Farm Center
for Healing and the Arts
202-483-8600
www.SmithFarm.com
Provides free and financially
assisted retreats, workshops, support groups and nutrition programs
for adults living with cancer, their caregivers and the healthcare
professionals who serve them.
Drug
and Medication Assistance
National
Council on the Aging
www.benefitscheckup.org
Finds programs that may pay the cost of prescriptions and healthcare
services for people age 55 and older.
NeedyMeds and Pediatrics for Parents www.needymeds.com
Information on patient-assistance programs designed to help those
who cant afford their medicines.
Pharmaceutical Research
and Manufacturers of America (PhRMA)
202-835-3400
www.phrma.org
www.innovation.org
Directory of patient-assistance programs offered by pharmaceutical
companies.
Hospice & Palliative Care
Center to Advance Palliative Care (CAPC)
www.getpalliativecare.org
Valuable information for patients and families coping with serious, complex illness including a palliative care provider directory, a definition and detailed description of what palliative care is, direct links to palliative care-related organizations and more.
Hospice Education Institute
800-331-1620
www.hospiceworld.org
Helps
patients and their families find support services in their communities.
They offer information about hospice and palliative care and can
refer cancer patients and their families to local hospice and palliative
care programs.
National Association
for Home Care
202-547-7424
www.nahc.org
Provides information on how to choose home care and hospice care
providers.
National
Hospice and Palliative Care Organization (NHPCO)
800-658-8898
www.caringinfo.org
The
NHPCO is an association of programs that provide hospice and palliative
care. S
Pain
Alliance of State Pain Initiatives
608-265-4013
http://aspi.wisc.edu
Provides leadership and advocacy for state and regional pain initiatives.
American Pain Foundation
888-615-7246 www.painfoundation.org
Features a Pain Action Guide and offers informational material, support
and advocacy.
Partners Against Pain www.partnersagainstpain.com
Includes news updates, pain control guides for patients, support groups,
resources and additional information for healthcare professionals.
Patient
Advocacy
Cancer Legal Resource Center
213-THE-CLRC (743-2572) www.disabilityrightslegalcenter.org/about/cancerlegalresource.cfm
Provides information on cancer-related legal issues for cancer survivors, their
families, and others impacted by the disease.
Legal Resource Guide for Cancer Patients
www.tyla.org/cancer_guide
The Guide covers legal issues concerning privacy, informed consent, insurance, clinical trials, employment law, disability, liability, guardianship, estate planning, and end of life decisions. This Guide is intended to be an informative resource upon which cancer patients and their family members and friends can rely to answer legal questions.
National
Asian Womens Health Organization (NAWHO)
415-989-9747
www.nawho.org
NAWHO
is working to improve the health status of Asian women and families
through research education leadership and public policy
programs. Resources for Asian women in English Cantonese
Laotian Vietnamese and Korean.
Patient Advocate Foundation (PAF)
800-532-5274
www.patientadvocate.org
The PAF provides education legal counseling
and referrals to cancer patients and survivors concerning managed
care insurance financial issues job discrimination
and debt crisis matters.
Survivorship Clinics
Abramson Cancer Center of the University of Pennsylvania
800-789-7366
www.penncancer.org
Dana-Farber Cancer Institute
617-632-5100
www.dana-farber.org/pat/surviving/adult-onset
Fred Hutchinson Cancer Research Center
206-667-2814
www.fhcrc.org/patient/support/survivorship
Memorial Sloan-Kettering Cancer Center
212-639-2581
www.mskcc.org/mskcc/html/64918.cfm
Ohio State University Comprehensive Cancer Center
800-293-5066
www.jamesline.com
UCLA’s Jonsson Comprehensive Cancer Center
310-825-9781
www.cancer.ucla.edu
University of Colorado Cancer Center
303-239-3397
www.uccc.info
Travel
and Housing
Air Charity Network
800-446-1231
www.angelflightamerica.org
Network of 5,000 pilots
who provide transportation to patients traveling for treatment.
Corporate Angel Network,
Inc.
866-328-1313
www.corpangelnetwork.org
CAN finds free air transportation (on corporate planes) for cancer
patients who need medical treatment. Patients must be ambulatory.
Joe's House
877-JOES HOUSE (563-7468).
www.joeshouse.org
A nationwide housing
guide for patients and families when they travel for treatment.
Directories of various places to stay near cancer treatment centers
is available via the website or toll-free number.
National Association
of Hospital Hospitality Houses
800-542-9730
www.nahhh.org
Provides accommodations for families and patients receiving medical
treatment away from home. Rates typically range from $5-$15 per
day (sometimes free).
National Patient Travel
Helpline
800-296-1217
www.patienttravel.org
Locates the best available travel options for patients. Help available
24 hours.
Bladder
Bladder Cancer Webcafé
www.blcwebcafe.org
Dedicated to the latest in bladder cancer treatments, clinical trials
and alternatives. Includes e-mail support.
Bladder Cancer Advocacy Network
888-901-BCAN (888-901-2226)
www.bcan.org
BCAN, the Bladder Cancer
Advocacy Network, is the first national advocacy organization dedicated
to improving public awareness of bladder cancer, and increasing
research directed towards the diagnosis, treatment and cure
of the disease. Founded in May 2005, BCAN is a cooperative effort
among bladder cancer survivors, their families and caregivers, and
the medical community.
Brain
Tumors
American Brain Tumor
Association
800-886-2282
www.abta.org
Offers free publications, educational programs, support group lists,
physician list, pen pal program and social service consultations
by telephone.
BrainSurgery
health.groups.yahoo.com/group/Brainsurgery
Website
and mail list that provide a place for patients with brain tumors
and related conditions to communicate. The site also helps to raise
awareness, provides educational resources and raises funds for research.
The Brain Tumor
Foundation
www.braintumorfoundation.org
Raises awareness about
the importance of early detection and offers peer support groups,
a worldwide referral network for treatment, conferences, seminars
and outreach events.
The Brain Tumor Society
800-770 8287
www.tbts.org
Provides supportive services, educational resources, news, events
and clinical trial information for patients, families and healthcare
providers.
National Brain Tumor Foundation (NBTF)
800-934-CURE (800-934-2873)
www.braintumor.org
Provides
patients and their families with information on how to cope with
their brain tumors. S
Bone
Marrow Transplants and Donors
Blood & Marrow
Transplant Resources
414-352-3219
www.bmtresources.org
Provides resources, educational
material and support for those having or considering a bone marrow
or stem cell transplant.
National
Bone Marrow Transplant Link
800-LINK-BMT (800-546-5268)
www.nbmtlink.org
Operates
a 24-hour toll-free number and provides
peer support to bone marrow transplant (BMT) patients and their
families. It serves as an information center for prospective BMT
patients as well as a resource for
health professionals. S
National Marrow Donor Program® (NMDP)
800-MARROW-2 (800-627-7692)
www.marrow.org
Funded by the federal
government to improve the effectiveness of the search for bone marrow
donors. It keeps a registry of potential bone marrow donors and
provides free information on bone marrow transplantation. It also
provides patient advocacy aid by helping patients and families with
information on insurance and other financial matters, identifying
groups and resources for housing and transportation needs and free
patient education materials.
Breast
Cancer
1in9: The Long Island Breast Cancer Action Coalition
516-374-3190
www.1in9.org
Hewlett House is a project of 1 in 9. It is a comprehensive, non-residential, independent, community learning resource center for cancer concerns, providing emotional and psychosocial support, outreach, and education and information services to people with cancer, their families and friends. Support Groups and Classes are offered at no cost.
AndreCenter
303-388-2441
www.andrecenter.org
Its primary goal is to offer credible information on treatment options, coaching help with decisions, assistance with navigating the healthcare system and connections to needed resources. We also act as a resource to referring physicians and the treatment team by supporting effective communication between providers.
Breastcancer.org
www.breastcancer.org
A nonprofit website dedicated to providing the most reliable and
complete information available.
Circus of Cancer
www.circusofcancer.org
Provides ideas for how friends and family can show concern and encouragement
for someone dealing with breast cancer.
FORCE: Facing Our Risk of Cancer
Empowered
866-824-RISK (7475)
www.facingourrisk.org
Provides support, information, and resources for women at high risk
for breast and ovarian cancer.
Health and Human Services
877-696-6775
www.hhs.gov/breastcancer
Provides educational
information on breast cancer.
HER2Support.org
760-602-9178
www.her2support.org
Resource for women who have been diagnosed with HER2-positive
breast cancer.
Inflammatory Breast Cancer Research Foundation
877-786-7422
www.ibcresearch.org
Provides education, background, active participation in research
and links to clinical trial information.
JACOB International
(Jews Against Cancer of the Breast)
561-394-9100
www.jacobintl.org
Provides awareness of the high risk of hereditary breast and
ovarian cancer among Ashkenazi Jewish women and the benefits
of genetic testing. The site offers information about BRCA 1
and 2 mutations and genetic testing, medical and spiritual resources
and tools to assess one’s risk through their family medical
history.
Living Beyond Breast Cancer
610-645-4567
www.lbbc.org
Provides educational materials, a calendar of events, a quarterly
newsletter, a
Young Survivors Network, and a toll-free helpline at 800-753-5222.
Living With It
www.livingwithit.org
Designed as a support program for women with breast cancer and provides
education, diet and exercise tips, personal stories, financial advice
and more.
Men Against Breast Cancer
866-547-6222
www.menagainstbreastcancer.org
Targets and mobilizes men to be active
participants in the fight to eradicate breast cancer and to provide
support to men whose families are impacted by breast cancer.
Pink-Link
310-995-5204
www.pink-link.org
Includes an online searchable
database of women affected by breast cancer, as well as friends
and co-survivors; a tribute page, educational resources, a forum
and a personal journal you can keep private or show with other members.
REACH Global
www.reachglobal.org
561-394-9100
Provides awareness of the risk of hereditary breast and ovarian
cancer among women and the benefits of genetic testing. The site
offers information about BRCA 1 and 2 mutations and genetic testing,
medical and spiritual resources and tools to assess one’s
risk through their family medical history.
Sharsheret
866-474-2774
www.sharsheret.org
Connects young Jewish women recently diagnosed with breast cancer
with volunteers.
Sisters Network Inc.
866-781-1808
www.sistersnetworkinc.org
Seeks to increase local and national attention to the impact
that breast cancer has in the African-American community. All chapters
are run by breast cancer survivors and receive volunteer assistance.
Susan
G. Komen Breast Cancer Foundation
800-IM AWARE (800-462-9273) www.komen.org
A toll-free breast cancer helpline (1-800-IM
AWARE®) is answered by trained volunteers whose
lives have been personally touched by breast
cancer. Breast health and breast cancer
materials
are available.S
Breast Cancer Network of Strength
(formerly Y-ME National Breast Cancer Organization Inc.)
800-221-2141 (English)
800-986-9505 (Spanish)
www.networkofstrength.org
Breast Cancer Network of Strength serves women with breast cancer and their families through
their national hotline (available 24 hours a day) open-door
groups early detection workshops and support programs.
S
Young Survival Coalition
877-972-1011
www.youngsurvival.org
The
only international network of breast cancer survivors and supporters
dedicated to the issues of women under 40 who are diagnosed
with breast cancer.
Carcinoid
Cancer
Carcinoid Cancer Foundation,
Inc.
888-722-3132
www.carcinoid.org
Provides education, support groups, transcripts of lectures and
nutrition resources.
Caring for Carcinoid
Foundation
www.caringforcarcinoid.org
(857)
222-5492
Dedicated to finding a
cure for carcinoid cancer by funding leading scientists to unlock
the genetic causes of carcinoid and develop novel, targeted therapies.
Colorectal
Cancer
C3: Colorectal Cancer Coalition
202-244-2906
www.c-three.org
A national organization
whose mission is to eliminate suffering and death due to colorectal
cancer. C3 pushes for research to improve screening, diagnosis and
treatment of colorectal cancer; for policy decisions that make the
most effective colorectal cancer prevention and treatment available
to all; and for increased awareness that colorectal cancer is preventable,
treatable and beatable.
Colorectal CareLine
Sponsored by Patient Advocate Foundation and Amgen Oncology
866-657-8634
www.colorectalcareline.org
National toll-free telephone hotline designed to offer assistance to colorectal cancer patients and healthcare providers seeking educational resources, direct assistance with access to care issues and/or financial aid for select patient needs, including lodging, transportation, childcare and other expenses associated with out-of-town treatment.
Colon
Cancer Alliance
877-422-2030
www.ccalliance.org
Offers patient support, a resource center, news, research, advocacy
and events.
United Ostomy Association Inc.
800-826-0826
www.uoa.org Helps
ostomy patients through mutual aid and emotional support. It provides
information to patients and the public and
sends volunteers to visit with new ostomy patients.
Esophageal
Cancer
Esophageal Cancer
Awareness Association
www.ECaware.org
Esophageal Cancer Awareness
Association, Inc. is an organization promoting worldwide understanding
and support for esophageal cancer patients and caregivers.
GIST
GIST Support International
www.gistsupport.org
This organization is dedicated to the support of GIST patients,
families and friends and the ongoing research required to treat
and cure gastrointestinal stromal tumors.
The Life Raft
Group
www.liferaftgroup.org
The Life Raft Group is a non-profit, Internet-based organization
providing support through education and research to patients with
gastrointestinal stromal tumors.
Gynecological
Cancers
Gynecologic Cancer
Foundation
www.thegcf.org
Encourages public awareness
of gynecologic cancer prevention, early diagnosis and proper treatment
as well as supports research and training related to gynecologic
cancers such as ovarian, uterine, vaginal, vulvar, endometrial,
fallopian tube and cervical cancers.
Sandy Rollman Ovarian Cancer Foundation
877-730-1100
www.sandyovarian.org
A non-profit organization that is committed to finding an early detection test for ovarian cancer, to funding improved treatments for the disease, and to developing educational programs to educate the public and physicians about ovarian cancer.
Vulva Awareness
Cancer Organization
www.vaco.co.uk
carolvaco2003@yahoo.co.uk
Organization provides
a community listserv, educational resources, support and assistance
for women who have been through vulval cancer, radical vulvectomy
and groin node dissecton, VIN, vaginal cancer, Pagets disease of
the vulva, HPV and vulval surgery.
Head
and Neck Cancer
Support for People With Oral and Head and Neck Cancer
800-377-0928
www.spohnc.org
Provides education, support, a Survivor to Survivor network, clinical trials and a newsletter.
The Yul Brynner
Head and Neck Cancer Foundation
843-792-6624
www.headandneck.org
Provides resources, education
and support for patients with head and neck cancers. Includes a
discussion forum and information on clinical trials with study listings.
Kidney
Cancer
Kidney
Cancer Association
800-850-9132
www.kidneycancerassociation.org
Supports research offers printed materials
about the diagnosis and treatment of kidney cancer sponsors
support groups and provides physician referral information.
Lung
Cancer
Lung
Cancer Alliance
800-298-2436
www.lungcanceralliance.org
The
Lung Cancer Alliance offers programs designed to help improve the
quality of life of people with lung cancer and their families. Programs
include education about the disease psychosocial support
and advocacy about issues that concern lung cancer survivors.
Lung Cancer Caring
Ambassadors Program (LCCAP)
www.lungcancercap.org
770-451-4749
Provides information
and encouragement for people living with lung cancer and raises
lung cancer awareness.
Lung
Cancer Support Community
866-392-7328
lchelp.org
Offers
an online community via message boards and live chats, provides
educational resources and promotes the BreatheDEEP! Campaign, which
raises awareness and funds for lung cancer research.
Its
Time to Focus on Lung Cancer
877-646-5864
www.lungcancer.org
Offers education, resources, clinical trial information, support
groups, teleconferences, quarterly e-newsletter, personal stories
and news updates.
The LUNGevity
Foundation
773-769-6060
www.lungevity.org
The LUNGevity Foundation
partners with the world's foremost physicians and research scientists
to fund innovative research designed to detect, treat and cure lung
cancer.
Melanoma
Melanoma International Foundation
866-463-6663
www.melanomaintl.org
Educates public on prevention and early detection of melanoma, coordinates
local screening and education programs and serves patients and their
families by operating a toll-free patient/family hotline for those
battling melanoma.
Melanoma Patients
Information Page
www.mpip.org
Features a community bulletin board, research links, and the latest
news in melanoma.
The Melanoma Research
Foundation (MRF)
800-MRF-1290
www.melanoma.org
A non-profit foundation
founded and maintained by melanoma patients, their families and
caregivers and friends whose mission is to promote research, education
and advocacy and to find a cure for melanoma.
The Skin Cancer Foundation
800-754-6490
www.skincancer.org
Works to increase public awareness and teach people how to recognize
the early signs of skin cancer. They conduct public and medical education
programs.
Myelodysplastic
Syndromes
Aplastic Anemia
& MDS International Foundation, Inc.
800-747-2820
www.aamds.org
As the oldest and largest patient
advocate and support organization for bone marrow diseases, it provides
free educational brochures on various topics including managing
treatment decisions, bone marrow failure disease, clinical trials
and iron chelation.
Myeloma Leukemia and
Lymphoma
Cutaneous Lymphoma
Foundation
248-644-9014
www.clfoundation.org
An independent, non-profit
patient advocacy organization dedicated to supporting patients with
cutaneous lymphomas by promoting awareness and education, advancing
patient care and facilitating research.
International
Myeloma Foundation (IMF)
800-452-CURE (800-452-2873)
www.myeloma.org
Supports
education treatment and research for multiple myeloma.
They provide a toll-free hotline seminars and educational
materials for patients and their families. S
The Leukemia and Lymphoma Society
800-955-4572
www.lls.org
The Leukemia & Lymphoma Society® is the world’s
largest voluntary health organization dedicated to funding blood
cancer research and providing education and patient services. The
Society’s mission is to cure leukemia, lymphoma, Hodgkin’s
disease and myeloma, and improve the quality of life of patients
and their families. The society provides patient financial aid
for specified treatment expenses and transportation family
support groups First Connection (a professionally supervised
peer support program) referrals and school re-entry materials.
The Society's Information Resource Center (IRC) provides patients,
families and healthcare professionals with the latest information
on leukemia, lymphoma and myeloma. S
Lymphoma Research Foundation (LRF)
800-500-9976
www.lymphoma.org
LRF provides a free information
helpline, up-to-date educational materials, peer support, educational
programs and financial assistance for patients. S
Patients Against
Lymphoma
800-500-9976
www.lymphomation.org
A non-profit foundation providing support and timely
access to evidence-based information about lymphomas and related
treatments. Helps patients and physicians locate
clinical trials for lymphoma, and provide query tools to assist
in locating published articles on outcomes, safety and mechanisms
for investigational agents. Also includes a free information helpline,
up-to-date educational materials, peer support, educational programs
and financial
assistance.
Multiple Myeloma Research Foundation (MMRF)
203-972-1250
www.multiplemyeloma.org
Supports research grants and professional
and patient symposia on multiple myeloma and related blood cancers.
MMRF publishes a quarterly newsletter and provides referrals
and information packets free of charge to patients and family members.
Also includes the Multiple Myleoma Research Line in collaboration
with the National Comprehensive Cancer Network (NCCN), which provides
physicians access to NCCN expert faculty to answer questions on
specific clinical issues related to the management of multiple myeloma
at 866-528-NCCN (6226) or through e-mail at multiplemyeloma@nccn.org.
Ovarian Cancer
National
Ovarian Cancer Coalition (NOCC)
888-OVARIAN (888-682-7426)
www.ovarian.org
NOCC
raises awareness about ovarian cancer and promotes education about
the disease. They also offer support groups a database of
gynecologic oncologists searchable by state and educational materials.
S
Ovarian Cancer National Alliance (OCNA)
202-331-1332
www.ovariancancer.org
Works
to increase public and professional understanding
of ovarian cancer and to advocate for
research. The Alliance distributes materials and
sponsors an annual advocacy conference for survivors
and families.
S
REACH Global
www.reachglobal.org
561-394-9100
Provides awareness of the risk of hereditary breast and ovarian
cancer among women and the benefits of genetic testing. The site
offers information about BRCA 1 and 2 mutations and genetic testing,
medical and spiritual resources and tools to assess one’s
risk through their family medical history.
SHARE: Self-help for
Women with Breast or Ovarian Cancer
866-891-2392
|