Blogs
CATEGORIES [ SURVIVORSHIP ]

Cancer survivors sought for online study

BY LENA HUANG | SEPTEMBER 10, 2009

Researchers at Stanford University School of Medicine and The Cancer Research Center of Hawaii are recruiting participants for a study that hopes to improve the lives of cancer survivors.

"Cancer: Thriving & Surviving" is a six-week, Internet-based workshop to help cancer survivors adjust to life after cancer. Many survivors have unique issues after completing treatment; they may struggle with physical changes, late effects of treatment, emotional concerns, and/or the stress of recurrence.

Researchers hope this interactive workshop will help survivors through some of these issues. Each workshop will bring together about 25 survivors and will be facilitated by two trained moderators, one of whom is a cancer survivor. Participants will also have access to an online learning center and discussion boards, and will be asked to log in at their convenience two or three times for a total of about two hours a week during the six-week workshop.

This study will assess the effectiveness of this program. The workshop is based on Stanford's "Healthier Living with Chronic Conditions Self-Management Program," which showed in a similar study that participants who developed confidence in managing their own health required fewer medical interventions and were overall healthier.

Researchers are looking for about 400 survivors who have completed treatment to participate in this study. For more information and requirements, go to cancersurvivors.stanford.edu or email cancersurvivors@standford.edu.

RELATED POSTS

COMMENTS

I had ovarian cancer in March 2005 , no symptoms ,had a cyst that burst and underwent 2 major surgeries and 6 months of chemo . I now keep as fit as i can in case of re occurrence and activel raise funds for cancer research to put something back !

Julie
- Posted by Julie Knight 9/16/09 8:49 AM

I'd very much like to be a part of a workshop...as a two time cancer survivor (breast cancer, mastectomy, 11 nodes removed...1 positive in 1981...1 year of chemo (cfm)
and a hi grade sarcoma in right arm in 2007, metastacized to lungs, surgery on arm, 35 sessions of radiations, 6 weeks of in hospital chemo....and lots of aquatic therapy and water fitness ...
Great docs and treatment at UAMS (Univ. of AR Med Center) and I just passed 2 year anniversary....I'm ok.

My experience with aquatic therapy and exercise is foremost. This is what I do. (see www.maryessert.com)
I hope I can help other Senior survivors to keep on keeping on.
- Posted by mary essert 9/17/09 3:44 PM

I went for my yearly check up in 1995 and they found cancer in my right breast, and had 28 treatments of radiation. In 2005 the breast cancer returned in right hip, I had 30 treatments of radiation. Two years of Zometa injections and Arimidex for last five years.
- Posted by SANDRA CHILDERS 9/17/09 8:49 PM

I was Dx with stage 3A breast cancer in February 2006. Wow...what a shock after years of normal mammos...on my first call back to be Dx with BC. Bilat, chemo, rads, ooph, recon and continuing on AI's. My dream...that my daughters don't have to worry about hearing the dreaded words "you have breast cancer". A cure for cancer is due!...heck its over due....
- Posted by Karen Schottenstein 9/17/09 9:35 PM

Diagnosed with stage T2b Gleason 7 palpable tumor Prostate cancer at Cedars Sinai when I was there for hernia surgery, I underwent 6 months of Hormone Deprivation (Eligard depot and Zolodex depot) and 39 (78Gys) treatments of radiation at Cedars Sinai, LA, a very top notch Cancer Group, 2009.
When I got home July, 2009, i had elevated cholesterol 271,my Dr. was concerned about Cardiac issues, 100 glucose, or pre-diabetese issues. Maybe I missed it. My Dr. thought I was out of shape. I'm not. So I Googled "Hormone deprivation treatment and high cholesterol" lo and behold there were plenty medical articles advising caution in choosing HDT 6 month course prior to radiation for these reasons . I started lipid lowering Lopid, insult to injury, as causes some of the same negative effects as HDT. Perhaps I would have chosen radiation only, as some have in this same situation. So if you have similar specs to mine be sure to do better research than i on HDT risk factors. I may have done it anyway as it shrinks the tumor, shrinks the prostate, improves rx result, better chance of cure.
- Posted by Jim Hammond 9/17/09 10:03 PM

I was diagnosed with Padget's disease of the left breast. I had had a red, itchy and scratchy area on the flat part of the nipple for some time that would scab every day when I removed my bra. This went on for nearly 8 months during which time I saw a physician. We tried different creams, etc. It would go away and always returned. Eventually, I saw the Nurse practitioner and was informed I needed to see a general surgeon. After a biopsy I was told it was cancer, that it was somewhat rare, but that it was curable. After undergoing one surgery to remove the areaola and nipple; another surgery to remove more cancer I still had cancer in the margins. At that time, I had 6 notes removed which were negative. Radiation for 7 weeks followed, but thankfully, no chemo. I am now cured and am so thankful to my doctors. I have never seen an article on Padget's disease of the breast in CURE magazine. Perhaps sometime one can be done. My story seems rather insignificant compared to some of the stories I have read, but if I can help someone else I would be so happy to so do.
- Posted by Stella Willig 9/22/09 12:14 PM

At age 39 during routine physical, my doctor performed a FBOT (no family history of any cancer whatsoever)which was positive. I was sent to a general surgeon and had a colonoscopy which revealed one polyp which was removed. At my next yearly physical at age 40 once again she performed a FBOT which was again positive. I was sent back to the surgeon who I tried to talk out of having another colonoscopy. This time it showed Stage III with three positive lymph nodes rectal cancer. I had a port placed. Underwent a lower anterior resection. Did 6 weeks of continuous 5FU/Leuko while recieving 28 cycles of radiation. Then completed 24 more cycles of chemo 6 weeks on/1 off. At the end of this I developed hepatosplenic candidiasis which required hospitalization with IV Caspofungin X 2 weeks and 8 months of another antiboitic twice a day. I am now 6 years remission.
- Posted by Renee Garland 9/24/09 2:10 PM

I was diagnosed with inflammatory BC on my 50th birthday, 2-26-07. I had had a mammogram just nine months before that showed nothing. One day in the shower I felt a lump in my right breast and everything just snowballed from there. All of the women in my family have died from some form of breast cancer. I had another mammogram, biopsy, blood work, and more tests that I can't even remember because everything happened so fast. Anyway, 6 months of chemo, double mastectomy (no nodes were infected) then radiation. Its been 32 months and I still see the doctor every 3 months, but I'm healthy and no cancer.
- Posted by Maryanne Seiderer 10/9/09 2:05 PM

I had occult Malaginant melanoma lymph nodes July 2007. Only completed 1 treatment of Biochemo. and began the 2nd tx. when I went into a coma for 2 1/2 months with multiple organ failure. I am in remission now even tho no further tx was able to be given. I have multiple disabilities mental and physical since 07 but feel blessed just the same. I feel I could benefit from this study and maybe help someone in return.

Jeanette Brown
- Posted by Jeanette Brown 1/17/10 3:15 PM

I have chronic mylogenous leukeima - there is no end to the treatment for me. I will have to take chemo in the form of pills until there is a cure. But quality of life issues certainly are important to me...perhaps moreso than for someone whose chemo or radiation eventually ends. I am in remission but some people do relapse, even on the new leukemia drugs. I appreciate the articles in CURE and would be happy to participate in your study.
- Posted by Libby Scrivner 1/20/10 6:29 PM

ADD A COMMENT

Your comment will appear once approved by CURE staff:
* Required fields