While blood cancers, myeloproliferative neoplasms in particular, can be confusing, and an emotional experience as most cancers are, it is key for patients to learn about their disease, as they will live with it for the rest of their lives.

To assist in this journey, patients should find a myeloproliferative neoplasm specialist, maintain all medical information and learn more about clinical trials in the space. Moreover, support and hearing from other patients can help.