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CURE Media Group.
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MPN

Kristie L. Kahl
Survival among patients with myelofibrosis who discontinued treatment with Jakafi appeared to have poorer survival, which was most prominent in those who stopped during the blast phase of treatment.
Robyn Scherber, M.D., M.P.H.
The expert who created an assessment tool to help patients with myeloproliferative neoplasms explain their symptoms to their care ream shares how the idea came to fruition.
Kurt Schroeder, RN
Kurt Schroeder, a research nurse, pushes for a patient-first mentality, especially as they participate in a clinical trial.
Ann McMullin
Ann McMullin fought for her son to be properly diagnosed and is advocating for more education among medical professionals of rare diseases like her son’s essential thrombocythemia.
Dr. David C. Fajenbaum
As a guest speaker at the 2019 MPN Heroes ® Recognition Ceremony, Dr. David C. Fajenbaum had the chance to discuss how translational research is a vital part of getting the right treatment to patients with cancer.
Laura Michaelis, MD
Emergency room visits are costly and take a lot of time patients with cancer don’t have, which is why the creation of a 24-hour clinic to address cancer related symptoms and treatment side effects could prove vital for patients.
Cannon McMullin
Cannon McMullin was diagnosed with essential thrombocythemia at 8 years old and has remained positive through years of treatment by focusing on the things he likes to do.
Natalie Catalano
For Natalie Catalano, caregiving for her daughter with essential thrombocythemia included not only being a rock of support, but also being a vocal advocate for her daughter’s care team to make the right diagnosis.
 
Madeleine Henriquez, PA-C
Madeleine Henriquez noticed that the mental health care of patients with MPN was being overlooked and took action in a way that has changed her community for the better.
 
Dr. Irum Khan
Patients with rare blood cancers are not all the same, and this understanding has helped Dr. Irum Khan become an advocate for people with these conditions — and an MPN Hero.
 
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