MPN

Speaking Out About MPNs

August 13th 2020, 3:00pm

Article

In this episode of the “CURE Talks Cancer” podcast, we spoke with Dr. Ruben Mesa about understanding a myeloproliferative neoplasm diagnosis.

Recognizing a Rare Cancer: Myeloproliferative Neoplasms

June 30th 2020, 12:03am

Video

Survey Highlights the Unique Challenges Faced by Patients with MPNs

June 13th 2020, 1:00am

Article

Individuals living with myeloproliferative neoplasm (MPN) often face a markedly different experience compared to those patients with other types of blood cancer. Unfortunately, there tends to be less known about this population due to its smaller size. But tools like the recently published “Blood Cancer in America” 2020 survey aim to help highlight the disparities faced by the MPN community and give a voice to those who may feel unheard.

Attending Education Events is Beneficial to Patients and Clinicians

April 16th 2020, 7:29pm

Video

MPN Hero Dr. Irum Khan discusses how education events for patients with cancer are helpful to both the patient and the clinician.

Patient-Doctor Duo: The Basics of Myeloproliferative Neoplasms

April 14th 2020, 2:05am

Podcast

In this special edition of the “CURE Talks Cancer” podcast, we teamed up with our sister publication “OncLive on Air” to speak with a patient-doctor duo on myeloproliferative neoplasms.

Artist Uses Talents to Illustrate Stories of Those with Myeloproliferative Neoplasms

March 10th 2020, 10:00pm

Article

Jeffrey Glen Jones – an American illustrator who started doing comic books about 25 years ago – is using his creative talents to illustrate the stories of those impacted by MPNs, as part of a campaign called Rare Reflections: MPNs Unmasked.

Being an Everyday Hero For Patients With MPN

March 10th 2020, 5:00pm

Article

In the 2020 Hematology 1 special edition of CURE magazine, we highlight what it means to be an everyday hero by living with MPN or helping patients with the disease cope with it.

Addressing the Symptom Burden of Patients With MPN

January 24th 2020, 12:00am

Video

The expert who created an assessment tool to help patients with myeloproliferative neoplasms explain their symptoms to their care ream shares how the idea came to fruition.

MPN Hero Advocates For Patients Enrolled In Clinical Trials

January 23rd 2020, 1:26am

Video

Kurt Schroeder, a research nurse, pushes for a patient-first mentality, especially as they participate in a clinical trial.

Advocating for Education of Myeloproliferative Neoplasms

January 22nd 2020, 3:00am

Video

Ann McMullin fought for her son to be properly diagnosed and is advocating for more education among medical professionals of rare diseases like her son’s essential thrombocythemia.

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