Rare Cancers | Tumor

CURE’s rare cancers page is a go-to resource for oncology news and updates in the world of rare cancers Here, readers will find cancer articles, videos, podcasts, and more with expert insight into the latest treatments and research in rare cancers.

Louis Vuitton Designer Virgil Abloh Died of a Rare Cancer

November 29th 2021

Virgil Abloh, founder of Off-White and Louis Vuitton’s first Black creative director, died of cardiac angiosarcoma this Sunday.

Pregnancy During Cancer: Treating Two Patients, Not One

October 19th 2021

Oncologists are learning that cancer can be treated during pregnancy with relative safety in the second and third trimester.

The Importance of Genomic Testing: How One Survivor Became Cancer-Free After Being Given Four Weeks to Live

October 7th 2021

One survivor explains how joining a clinical trial for an experimental drug saved his life after he was informed that he only had four weeks to live. Keith Taggart shares his story in this episode of the “CURE® Talks Cancer” podcast.

You Can’t Turn Off Cancer Survivors’ Guilt

September 20th 2021

People without cancer may not understand the guilt survivors feel when their disease improves and others take a turn for the worse.

Reevaluating Treatment for Penile Cancer to Avoid Surgery

September 16th 2021

A first-of-its-kind trial underway in patients with penile cancer may lead to a more effective therapy sequence, potentially avoiding unnecessary surgery.

Looking Forward: Patients With Genetic Mutations Are Empowered to Make Plans

August 6th 2021

Knowing they’ve inherited a genetic mutation for stomach or breast cancer gives patients the power to plan ahead.

Never Back Down: Lymphoma Survivor Stays Positive

August 6th 2021

In his new memoir, a patient with central nervous system lymphoma emphasizes the importance of a positive mindset and a strong support system.

Social Media and Rare Cancers: Stay Informed, But Tread With Caution

August 5th 2021

Social media and the internet as a whole can offer a wealth of information and connections for patients with cancer, especially those with rarer diseases. However, patients should always bring the online advice to their health care team, says Dr. Naveen Pemmaraju.

Exploring Potential Treatment Options for Rare Cancers

August 4th 2021

Read more about the current research for the disease, as well as how these advances impact the patients diagnosed with it.

Life With von Hippel-Lindau Disease

August 3rd 2021

Patients with this rare genetic condition develop tumors in various parts of their body, throughout their lifetime, requiring a multidisciplinary care team and constant screening and management.

Molar Pregnancy Survivor Shares Her Rare Cancer Story

July 29th 2021

It wasn’t just a miscarriage, it was a rare type of cancer called choriocarcinoma.

Novel App Informs Patients With Cancer of Unknown Primary

July 27th 2021

An online tool developed by oncologists for this rare diagnosis individualizes survival estimates, resulting in candid discussions and better decision-making.

Giving Hope: Research on Rare Head and Neck Cancer Treatment Options

July 27th 2021

Study findings from China show that a new treatment option improves survival outcomes in nasopharyngeal carcinoma, but can U.S. populations expect similar results?

From Tested to Transformed

June 1st 2021

A survivor of fibrosarcoma shares his journey through treatment and how he learned to build strength and confidence after the ordeal physically changed his face.

Patients with Rare Cancers Offer Others Who May Be Facing a Similar Diagnosis Advice

May 10th 2021

On social media, CURE® recently asked its readers with rare cancers what advice they would offer to fellow patients with a similar diagnosis. Here’s what they shared.

No One Ever Sees a Cancer Diagnosis Coming, Especially When it Involves Their Penis

January 26th 2021

A cancer survivor writes about how he, like many, was blindsided by his diagnosis and what it was like to receive treatment for a rare disease: penile cancer.

Opdivo-Yervoy Combo Effective in Some Patients with Rare Genitourinary Cancers

December 16th 2020

After a median follow-up of 9.9 months, 38% of the trial participants experienced some degree of tumor shrinkage after receiving Opdivo in combination with Yervoy.

Trial Studying Penile Cancer May Offer Patients Hope

October 2nd 2020

New treatments are needed for penile cancer, but it’s difficult to test drugs in clinical trials because the disease is so uncommon.

While Penile Cancer is Rare, Men Should Be Aware

September 29th 2020

A woman shares her late husband’s journey with advanced penile cancer to help others receive a diagnosis early, when the disease is still highly treatable and even curable.

Pulling Back the Layers of Penile Cancer

September 17th 2020

In this episode of the “CURE Talks Cancer” podcast, we spoke with an expert about some of the possible causes of penile cancer, as well as why research in the field is severely lacking and why it’s so important to inform the public about what to look for in terms of signs and symptoms of this disease.

The Basics of Retroperitoneal Sarcoma

August 27th 2020

In this week’s episode of the CURE® Talks Cancer podcast, surgical oncologist Dr. Margo Shoup sits down with CURE® to shed some light on retroperitoneal sarcoma and shares her thoughts on what patients need to know about its diagnosis and treatment.

Salivary Gland Cancer: As Rare As It Is Diverse

August 26th 2020

Salivary cancer is a rare disease that has some of the greatest variances of all types of cancer.

A Revolution in the Treatment of Neuroendocrine Tumors

August 9th 2017

Patients with neuroendocrine tumors have more treatment options than ever before.