Rare Cancers | Tumor

CURE’s rare cancers page is a go-to resource for oncology news and updates in the world of rare cancers Here, readers will find cancer articles, videos, podcasts, and more with expert insight into the latest treatments and research in rare cancers.

I Was Blindsided by a Cancer I’ve Never Heard Of

May 24th 2022

I was told that I would miscarry my pregnancy, but continued to feel more pregnant, leading to my molar pregnancy diagnosis — a condition I’ve never heard of before. 

‘Today Show’ Anchor Hoda Kotb Discusses Fertility Issues Following Cancer Diagnosis, Pfizer Pulls Blood Pressure Drugs Due to Cancer Concerns and More

March 25th 2022

From Pfizer issuing a voluntary recall of three blood pressure drugs due to a high level of a cancer-causing chemical to “Today Show” co-ancho Hoda Kotb discussing her struggles with fertility after receiving a diagnosis of breast cancer, here’s what’s happening in the cancer space this week.

Cancer Advocacy Helps Ease Nerves and Uncertainty, Says One Patient

March 14th 2022

A patient’s experience with polycythemia vera — a rare blood cancer — led to her becoming an advocate for others to help ease all the nerves and uncertainty that many patients face when they hear they have cancer.

Trial to Assess Safety and Efficacy of Novel Drug for Extremely Rare Cancer Begins Enrolling Patients

March 10th 2022

The rare cancer, known as adenoid cystic carcinoma, is diagnosed in fewer than 1,500 people in the United States each year and is often found in the salivary glands, a part of the body associated with helping a person swallow and digest food.

Novel Monoclonal Antibody Injection May Address Significant Unmet Need in Patients With Rare Tumor

March 7th 2022

As surgery is the current standard of care for patients with tenosynovial giant cell tumor, the potential to add another treatment option with fewer complications may dramatically help patients with this rare tumor.

Leptomeningeal Disease: A Rare Cancer Metastasis

March 2nd 2022

The number of people developing leptomeningeal disease is increasing for the same reason that diagnoses of brain metastases are on the rise: People are living longer, giving cancer more time to spread.

My Only Gift From Cancer: a New View on Life

February 28th 2022

When I was diagnosed with cancer, I thought of only two things: my loved ones and how much time I had left with them.

Louis Vuitton Designer Virgil Abloh Died of a Rare Cancer

November 29th 2021

Virgil Abloh, founder of Off-White and Louis Vuitton’s first Black creative director, died of cardiac angiosarcoma this Sunday.

Pregnancy During Cancer: Treating Two Patients, Not One

October 19th 2021

Oncologists are learning that cancer can be treated during pregnancy with relative safety in the second and third trimester.

The Importance of Genomic Testing: How One Survivor Became Cancer-Free After Being Given Four Weeks to Live

October 7th 2021

One survivor explains how joining a clinical trial for an experimental drug saved his life after he was informed that he only had four weeks to live. Keith Taggart shares his story in this episode of the “CURE® Talks Cancer” podcast.

You Can’t Turn Off Cancer Survivors’ Guilt

September 20th 2021

People without cancer may not understand the guilt survivors feel when their disease improves and others take a turn for the worse.

Reevaluating Treatment for Penile Cancer to Avoid Surgery

September 16th 2021

A first-of-its-kind trial underway in patients with penile cancer may lead to a more effective therapy sequence, potentially avoiding unnecessary surgery.

Looking Forward: Patients With Genetic Mutations Are Empowered to Make Plans

August 6th 2021

Knowing they’ve inherited a genetic mutation for stomach or breast cancer gives patients the power to plan ahead.

Never Back Down: Lymphoma Survivor Stays Positive

August 6th 2021

In his new memoir, a patient with central nervous system lymphoma emphasizes the importance of a positive mindset and a strong support system.

Social Media and Rare Cancers: Stay Informed, But Tread With Caution

August 5th 2021

Social media and the internet as a whole can offer a wealth of information and connections for patients with cancer, especially those with rarer diseases. However, patients should always bring the online advice to their health care team, says Dr. Naveen Pemmaraju.

Exploring Potential Treatment Options for Rare Cancers

August 4th 2021

Read more about the current research for the disease, as well as how these advances impact the patients diagnosed with it.

Life With von Hippel-Lindau Disease

August 3rd 2021

Patients with this rare genetic condition develop tumors in various parts of their body, throughout their lifetime, requiring a multidisciplinary care team and constant screening and management.

Molar Pregnancy Survivor Shares Her Rare Cancer Story

July 29th 2021

It wasn’t just a miscarriage, it was a rare type of cancer called choriocarcinoma.

Novel App Informs Patients With Cancer of Unknown Primary

July 27th 2021

An online tool developed by oncologists for this rare diagnosis individualizes survival estimates, resulting in candid discussions and better decision-making.

Giving Hope: Research on Rare Head and Neck Cancer Treatment Options

July 27th 2021

Study findings from China show that a new treatment option improves survival outcomes in nasopharyngeal carcinoma, but can U.S. populations expect similar results?

From Tested to Transformed

June 1st 2021

A survivor of fibrosarcoma shares his journey through treatment and how he learned to build strength and confidence after the ordeal physically changed his face.

Patients with Rare Cancers Offer Others Who May Be Facing a Similar Diagnosis Advice

May 10th 2021

On social media, CURE® recently asked its readers with rare cancers what advice they would offer to fellow patients with a similar diagnosis. Here’s what they shared.

No One Ever Sees a Cancer Diagnosis Coming, Especially When it Involves Their Penis

January 26th 2021

A cancer survivor writes about how he, like many, was blindsided by his diagnosis and what it was like to receive treatment for a rare disease: penile cancer.

Opdivo-Yervoy Combo Effective in Some Patients with Rare Genitourinary Cancers

December 16th 2020

After a median follow-up of 9.9 months, 38% of the trial participants experienced some degree of tumor shrinkage after receiving Opdivo in combination with Yervoy.

Trial Studying Penile Cancer May Offer Patients Hope

October 2nd 2020

New treatments are needed for penile cancer, but it’s difficult to test drugs in clinical trials because the disease is so uncommon.

While Penile Cancer is Rare, Men Should Be Aware

September 29th 2020

A woman shares her late husband’s journey with advanced penile cancer to help others receive a diagnosis early, when the disease is still highly treatable and even curable.

Pulling Back the Layers of Penile Cancer

September 17th 2020

In this episode of the “CURE Talks Cancer” podcast, we spoke with an expert about some of the possible causes of penile cancer, as well as why research in the field is severely lacking and why it’s so important to inform the public about what to look for in terms of signs and symptoms of this disease.

The Basics of Retroperitoneal Sarcoma

August 27th 2020

In this week’s episode of the CURE® Talks Cancer podcast, surgical oncologist Dr. Margo Shoup sits down with CURE® to shed some light on retroperitoneal sarcoma and shares her thoughts on what patients need to know about its diagnosis and treatment.

Salivary Gland Cancer: As Rare As It Is Diverse

August 26th 2020

Salivary cancer is a rare disease that has some of the greatest variances of all types of cancer.

A Revolution in the Treatment of Neuroendocrine Tumors

August 9th 2017

Patients with neuroendocrine tumors have more treatment options than ever before.