Rare Cancers | Tumor

CURE’s rare cancers page is a go-to resource for oncology news and updates in the world of rare cancers Here, readers will find cancer articles, videos, podcasts, and more with expert insight into the latest treatments and research in rare cancers.

'A Village of People’ May Help Cancer Caregivers Balance Everyday Life

November 23rd 2022

A woman whose husband was diagnosed with ocular melanoma at 28 years old opens up about her experiences navigating the cancer world and her search for a supportive community.

Clinical Trial Kicks Off Evaluating a New Drug for a Group of Solid Cancers

November 4th 2022

A novel drug, MRT-2359, will be studied in a phase 1/2 trial for patients with MYC-driven cancers.

Cancer Survivor Throws Out World Series First Pitch, Dwayne ‘The Rock’ Johnson Sends Best Wishes to Child With Brain Cancer and More

November 4th 2022

From a childhood cancer survivor throwing out the first pitch at Game 4 of the World Series to former WWE champion and actor Dwayne “The Rock” Johnson recording a message for a child with brain cancer, here’s what’s happening in the cancer space this week.

Ocular Melanoma Advocacy Groups Provide Wealth of Information to Patients, Caregivers on This Rare Cancer

October 26th 2022

Advocacy groups helped one patient with ocular melanoma — and many others — learn more about their disease and treatment, as well as a place to connect about their experiences.

What It’s Like to Navigate Vaginal Cancer, a Rare Type of Gynecological Cancer

October 24th 2022

Vaginal cancer is amongst the rarest of gynecologic cancer, it is important those patients with a rare cancer advocate for themselves and find doctors who are experts in treating it.

Multi-Chemotherapy Regimen Elicits Improved Outcomes in Rare Form of Pediatric Lung Cancer, But More Research is Needed

October 6th 2022

The use of a multi-agent chemotherapy regimen resulted in improved outcomes in a group of children with pleuropulmonary blastoma, a rare form of lung cancer, when compared with other regimens.

Many Survivors of GISTs, a Rare Cancer, May Experience Cancer-Related Cognitive Impairments After Treatment

October 5th 2022

Nearly two thirds of patients with GISTs — a rare type of cancer that often begins in the digestive system — indicated that their overall quality of life after treatment had been affected by cancer-related cognitive impairments, also referred to as “chemo brain,” according to analysis of survey data.

Bringing Clarity to Ocular Melanoma: Patient Advocate Offers Ways Support Can Help Patients, Loved Ones

September 30th 2022

Melody Burchett, of A Cure In Sight, discussed the value of seeking support after an ocular melanoma diagnosis, and how such help can be found in others with the same diagnosis.

FDA Approves Lytgobi for Advanced Cholangiocarcinoma

September 30th 2022

The Food and Drug Administration approved Lytgobi for patients with previously treated advanced cholangiocarcinoma with FGFR2 gene rearrangements.

Adding a Certain Immunotherapy Drug to Chemotherapy May Benefit Patients With Thymoma, a Type of Rare Cancer

September 26th 2022

The addition of Bavencio to an Inlyta regimen may help stabilize disease in some patients with thymic carcinoma, but one expert stressed that checkpoint inhibitors are “problematic” for patients diagnosed with thymoma, a type of rare cancer.

Uveal and Skin Melanoma Share a Common Name, But That’s The Only Similarity, Says Expert

September 21st 2022

Melanoma of the skin has been shown to be greatly associated with exposure to sunlight, whereas uveal melanoma — commonly known as cancer of the eye — is not.

FDA Issues Statement on New Cases of Rare Breast Implant-Related Cancers

September 9th 2022

The Food and Drug Administration issued a statement about the incidence of new cases of rare cancers that have occurred in the scar tissue around breast implants.

Treatment for a Rare Form of Eye Cancer Has Shifted From Removing the Eye to Preserving Vision and Extending Lives, Says Expert

September 1st 2022

An expert provides insight on how primary uveal melanoma is often treated and sheds some light on an unmet need in treating the eye cancer.

Early Findings of Novel Agent Show Promise in Treating Rare Blood Cancer

August 31st 2022

Patients with blastic plasmacytoid dendritic cell neoplasms can enroll in the ongoing CADENZA trial, which is investigating the safety and efficacy of the novel agent pivekimab sunirine in patients with the rare blood cancer.

Imfinzi-Novel Drug Combination Elicits Effective Responses in a Group of Patients With Metastatic Sarcomas

August 10th 2022

Treatment with a combination of Imfinzi and the novel drug tremelimumab demonstrated promising results in certain patients with advanced or metastatic sarcoma, which are rare cancers of the bone and soft tissue.

What Is Uveal Melanoma?

July 27th 2022

Here is a breakdown of some of the important information surrounding uveal melanoma, an extremely rare form of cancer.

Sarcoma Deserves More Attention in the Spotlight

July 20th 2022

Even in the public health shadows of the more common cancers like breast cancer, for the few but strong patients with a sarcoma diagnosis, we are obligated to spread awareness, restore hope and with specialist care, ensure the best possible outcomes.

Trial Launched to Investigate Novel Triplet Therapy in Treatment of Rare Gastric or Esophageal Cancer

July 13th 2022

The manufacturer of one of the cancer treatments announced that it is also participating in clinical trials assessing the safety and efficacy of their product in colorectal and endometrial cancer.

I Was Blindsided by a Cancer I’ve Never Heard Of

May 24th 2022

I was told that I would miscarry my pregnancy, but continued to feel more pregnant, leading to my molar pregnancy diagnosis — a condition I’ve never heard of before. 

‘Today Show’ Anchor Hoda Kotb Discusses Fertility Issues Following Cancer Diagnosis, Pfizer Pulls Blood Pressure Drugs Due to Cancer Concerns and More

March 25th 2022

From Pfizer issuing a voluntary recall of three blood pressure drugs due to a high level of a cancer-causing chemical to “Today Show” co-ancho Hoda Kotb discussing her struggles with fertility after receiving a diagnosis of breast cancer, here’s what’s happening in the cancer space this week.

Cancer Advocacy Helps Ease Nerves and Uncertainty, Says One Patient

March 14th 2022

A patient’s experience with polycythemia vera — a rare blood cancer — led to her becoming an advocate for others to help ease all the nerves and uncertainty that many patients face when they hear they have cancer.

Trial to Assess Safety and Efficacy of Novel Drug for Extremely Rare Cancer Begins Enrolling Patients

March 10th 2022

The rare cancer, known as adenoid cystic carcinoma, is diagnosed in fewer than 1,500 people in the United States each year and is often found in the salivary glands, a part of the body associated with helping a person swallow and digest food.

Novel Monoclonal Antibody Injection May Address Significant Unmet Need in Patients With Rare Tumor

March 7th 2022

As surgery is the current standard of care for patients with tenosynovial giant cell tumor, the potential to add another treatment option with fewer complications may dramatically help patients with this rare tumor.

Leptomeningeal Disease: A Rare Cancer Metastasis

March 2nd 2022

The number of people developing leptomeningeal disease is increasing for the same reason that diagnoses of brain metastases are on the rise: People are living longer, giving cancer more time to spread.

My Only Gift From Cancer: a New View on Life

February 28th 2022

When I was diagnosed with cancer, I thought of only two things: my loved ones and how much time I had left with them.

Louis Vuitton Designer Virgil Abloh Died of a Rare Cancer

November 29th 2021

Virgil Abloh, founder of Off-White and Louis Vuitton’s first Black creative director, died of cardiac angiosarcoma this Sunday.

Pregnancy During Cancer: Treating Two Patients, Not One

October 19th 2021

Oncologists are learning that cancer can be treated during pregnancy with relative safety in the second and third trimester.

The Importance of Genomic Testing: How One Survivor Became Cancer-Free After Being Given Four Weeks to Live

October 7th 2021

One survivor explains how joining a clinical trial for an experimental drug saved his life after he was informed that he only had four weeks to live. Keith Taggart shares his story in this episode of the “CURE® Talks Cancer” podcast.

You Can’t Turn Off Cancer Survivors’ Guilt

September 20th 2021

People without cancer may not understand the guilt survivors feel when their disease improves and others take a turn for the worse.

Reevaluating Treatment for Penile Cancer to Avoid Surgery

September 16th 2021

A first-of-its-kind trial underway in patients with penile cancer may lead to a more effective therapy sequence, potentially avoiding unnecessary surgery.

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