Rare Cancers

When I sit down with my paint brush, despite my cancer history, I don’t feel different anymore.

On multiple occasions, doctors told me not to worry, but I ended up being diagnosed with a rare cancer called leiomyosarcoma.

A phase 2 study will investigate the efficacy of darovasertib for patients with uveal melanoma and whether the drug can potentially result in lower radiation doses or fewer eye removal surgeries.

Lytgobi was approved for pretreated cholangiocarcinoma in September, and updated study findings support the drug’s continued approval.

From eye removal to radiation damage, patients with uveal melanoma may face complications after treatment, although continued and new therapies may address these issues, an expert said.

Tecentriq was approved by the FDA for adults and children aged two years and older with advanced alveolar soft part sarcoma, a disease typically diagnosed in approximately 80 patients per year in the U.S.

A woman whose husband was diagnosed with ocular melanoma at 28 years old opens up about her experiences navigating the cancer world and her search for a supportive community.

A novel drug, MRT-2359, will be studied in a phase 1/2 trial for patients with MYC-driven cancers.

From a childhood cancer survivor throwing out the first pitch at Game 4 of the World Series to former WWE champion and actor Dwayne “The Rock” Johnson recording a message for a child with brain cancer, here’s what’s happening in the cancer space this week.

Advocacy groups helped one patient with ocular melanoma — and many others — learn more about their disease and treatment, as well as a place to connect about their experiences.

Vaginal cancer is amongst the rarest of gynecologic cancer, it is important those patients with a rare cancer advocate for themselves and find doctors who are experts in treating it.

The use of a multi-agent chemotherapy regimen resulted in improved outcomes in a group of children with pleuropulmonary blastoma, a rare form of lung cancer, when compared with other regimens.

Nearly two thirds of patients with GISTs — a rare type of cancer that often begins in the digestive system — indicated that their overall quality of life after treatment had been affected by cancer-related cognitive impairments, also referred to as “chemo brain,” according to analysis of survey data.

Melody Burchett, of A Cure In Sight, discussed the value of seeking support after an ocular melanoma diagnosis, and how such help can be found in others with the same diagnosis.

The Food and Drug Administration approved Lytgobi for patients with previously treated advanced cholangiocarcinoma with FGFR2 gene rearrangements.

The addition of Bavencio to an Inlyta regimen may help stabilize disease in some patients with thymic carcinoma, but one expert stressed that checkpoint inhibitors are “problematic” for patients diagnosed with thymoma, a type of rare cancer.

The Food and Drug Administration issued a statement about the incidence of new cases of rare cancers that have occurred in the scar tissue around breast implants.

An expert provides insight on how primary uveal melanoma is often treated and sheds some light on an unmet need in treating the eye cancer.

Patients with blastic plasmacytoid dendritic cell neoplasms can enroll in the ongoing CADENZA trial, which is investigating the safety and efficacy of the novel agent pivekimab sunirine in patients with the rare blood cancer.

Treatment with a combination of Imfinzi and the novel drug tremelimumab demonstrated promising results in certain patients with advanced or metastatic sarcoma, which are rare cancers of the bone and soft tissue.

Here is a breakdown of some of the important information surrounding uveal melanoma, an extremely rare form of cancer.

Even in the public health shadows of the more common cancers like breast cancer, for the few but strong patients with a sarcoma diagnosis, we are obligated to spread awareness, restore hope and with specialist care, ensure the best possible outcomes.

The manufacturer of one of the cancer treatments announced that it is also participating in clinical trials assessing the safety and efficacy of their product in colorectal and endometrial cancer.

I was told that I would miscarry my pregnancy, but continued to feel more pregnant, leading to my molar pregnancy diagnosis — a condition I’ve never heard of before. 

From Pfizer issuing a voluntary recall of three blood pressure drugs due to a high level of a cancer-causing chemical to “Today Show” co-ancho Hoda Kotb discussing her struggles with fertility after receiving a diagnosis of breast cancer, here’s what’s happening in the cancer space this week.

A patient’s experience with polycythemia vera — a rare blood cancer — led to her becoming an advocate for others to help ease all the nerves and uncertainty that many patients face when they hear they have cancer.

The rare cancer, known as adenoid cystic carcinoma, is diagnosed in fewer than 1,500 people in the United States each year and is often found in the salivary glands, a part of the body associated with helping a person swallow and digest food.

As surgery is the current standard of care for patients with tenosynovial giant cell tumor, the potential to add another treatment option with fewer complications may dramatically help patients with this rare tumor.

The number of people developing leptomeningeal disease is increasing for the same reason that diagnoses of brain metastases are on the rise: People are living longer, giving cancer more time to spread.

When I was diagnosed with cancer, I thought of only two things: my loved ones and how much time I had left with them.