MPN | Tumor

Artist Uses Talents to Illustrate Stories of Those with Myeloproliferative Neoplasms

March 10th 2020, 10:00pm

Article

Jeffrey Glen Jones – an American illustrator who started doing comic books about 25 years ago – is using his creative talents to illustrate the stories of those impacted by MPNs, as part of a campaign called Rare Reflections: MPNs Unmasked.

Being an Everyday Hero For Patients With MPN

March 10th 2020, 5:00pm

Article

In the 2020 Hematology 1 special edition of CURE magazine, we highlight what it means to be an everyday hero by living with MPN or helping patients with the disease cope with it.

Addressing the Symptom Burden of Patients With MPN

January 24th 2020, 12:00am

Video

The expert who created an assessment tool to help patients with myeloproliferative neoplasms explain their symptoms to their care ream shares how the idea came to fruition.

MPN Hero Advocates For Patients Enrolled In Clinical Trials

January 23rd 2020, 1:26am

Video

Kurt Schroeder, a research nurse, pushes for a patient-first mentality, especially as they participate in a clinical trial.

Advocating for Education of Myeloproliferative Neoplasms

January 22nd 2020, 3:00am

Video

Ann McMullin fought for her son to be properly diagnosed and is advocating for more education among medical professionals of rare diseases like her son’s essential thrombocythemia.

How Translational Research Brings Research Outcomes To The Bedside

January 20th 2020, 9:28pm

Video

As a guest speaker at the 2019 MPN Heroes ® Recognition Ceremony, Dr. David C. Fajenbaum had the chance to discuss how translational research is a vital part of getting the right treatment to patients with cancer.

MPN Hero Discusses Providing Immediate Cancer Care By Circumventing The Emergency Room

January 17th 2020, 12:00am

Video

Emergency room visits are costly and take a lot of time patients with cancer don’t have, which is why the creation of a 24-hour clinic to address cancer related symptoms and treatment side effects could prove vital for patients.

Eleven-Year-Old MPN Hero Remains Positive in the Face of Uncertainty

January 14th 2020, 7:01pm

Video

Cannon McMullin was diagnosed with essential thrombocythemia at 8 years old and has remained positive through years of treatment by focusing on the things he likes to do.

MPN Hero Advocates for Her Daughter Until The Right Diagnosis Is Made

January 14th 2020, 12:37am

Video

For Natalie Catalano, caregiving for her daughter with essential thrombocythemia included not only being a rock of support, but also being a vocal advocate for her daughter’s care team to make the right diagnosis.

MPN Hero Bridges the Care Gap to Address Mental Health Issues in Patients with MPNs

January 11th 2020, 3:00am

Video

Madeleine Henriquez noticed that the mental health care of patients with MPN was being overlooked and took action in a way that has changed her community for the better.