Cancer: A Never-Ending Story

Article

This regular CURE contributor wonders why he never runs out of things to write about.

When I began to write for CURE on June 12, 2015 with a piece called "An Expedition through Cancer," I had a million things to talk about, or so it seemed. And I really needed to talk. The truth about male breast cancer is that many men are reluctant to accept that this rare cancer has invaded our lives. I was as surprised, as anybody with my own diagnosis was, but I quickly found positive resources through which I could express my thoughts and concerns.

Interestingly, in the first few months, most of the survivors I spoke to on various cancer websites were women with breast cancer. It took a while for me to unearth the men, and as a consequence, my early writing was simply about cancer, all kinds of cancer, and the issues that are common for all of us with the disease.

Being able to express my personal experiences with seasoned cancer survivors, and those who are newly diagnosed with the disease as well, has been a rich and rewarding "medicine" for me for these last four years. And I've learned a lot from other people's insights and stories.

Though cancer survivors often speak about the three great fears we face: the fear of dying, the fear of recurrence and the fear of being stigmatized, it's amazing how we each relate to our cancer in so many different ways. The best part about having so many personalized stories to hear is that within those stories, there is often a common thread that we can relate to. Cancer affects our lives in countless ways and because of that; there is something important to learn from each and every survivor.

A few years ago, I remember thinking to myself, "when will I run out of issues to write about?" Now that I’m a four-year survivor, the answer to that question has become quite clear to me:

Never.

There is both hope and horror in cancer. Its reach is so insidious that by virtue of its very magnitude (14 million people are afflicted every year worldwide) science and medicine are always on full alert, forced to find new methods of combating the disease. The hope of a cure is a powerful incentive for all of us. And that's where hope comes into play.

On the other hand, the numbers of lives that have been disrupted and terrorized by its far-reaching grasp is almost unthinkable. Unfortunately, as long as there is cancer in the world, there will always be another page to be written.

Each day that we wake up and start the process of acknowledging our disease, knowing that it will be with us as we eat breakfast, go to work, talk with our kids, pay our bills, see our doctors and carrying on with our lives as best we can, there is a story written in each of our actions.

Cancer, in often subtle ways, colors everything in our lives. Even when cancer is in remission or hibernation, it's never far from our thoughts.

And so, our stories go on, here at CURE and in countless conversations around the world. And though the stories are filled with personal anecdotes, humor, despair at times and even unpleasant and unfair things, they are all heartfelt moments in the life of a cancer survivor, printed on the pulp of our human experiences, perhaps to be recognized one day in the future as the billion thoughts that led to the cure.

www.BreastCancerSpeaker.com

Related Videos
For patients with cancer, the ongoing chemotherapy shortage may cause some anxiety as they wonder how they will receive their drugs. However, measuring drugs “down to the minutiae of the milligrams” helped patients receive the drugs they needed, said Alison Tray. Tray is an advanced oncology certified nurse practitioner and current vice president of ambulatory operations at Rutgers Cancer Institute in New Jersey.  If patients are concerned about getting their cancer drugs, Tray noted that having “an open conversation” between patients and providers is key.  “As a provider and a nurse myself, having that conversation, that reassurance and sharing the information is a two-way conversation,” she said. “So just knowing that we're taking care of you, we're going to make sure that you receive the care that you need is the key takeaway.” In June 2023, many patients were unable to receive certain chemotherapy drugs, such as carboplatin and cisplatin because of an ongoing shortage. By October 2023, experts saw an improvement, although the “ongoing crisis” remained.  READ MORE: Patients With Lung Cancer Face Unmet Needs During Drug Shortages “We’re really proud of the work that we could do and achieve that through a critical drug shortage,” Tray said. “None of our patients missed a dose of chemotherapy and we were able to provide that for them.” Tray sat down with CURE® during the 49th Annual Oncology Nursing Society Annual Congress to discuss the ongoing chemo shortage and how patients and care teams approached these challenges. Transcript: Particularly at Hartford HealthCare, when we established this infrastructure, our goal was to make sure that every patient would get the treatment that they need and require, utilizing the data that we have from ASCO guidelines to ensure that we're getting the optimal high-quality standard of care in a timely fashion that we didn't have to delay therapies. So, we were able to do that by going down to the minutiae of the milligrams on hand, particularly when we had a lot of critical drug shortages. So it was really creating that process to really ensure that every patient would get the treatment that they needed. For more news on cancer updates, research and education, don’t forget to subscribe to CURE®’s newsletters here.
Yuliya P.L Linhares, MD, an expert on CLL
Yuliya P.L Linhares, MD, and Josie Montegaard, MSN, AGPCNP-BC, experts on CLL
Image of a man with a beard.
Image of a man with gray facial hair and a navy blue suit with a light orange tie.
Image of a woman with black hair.
Related Content