‘The More I Talk, the Stronger I Feel,’ MPN Survivor Says


Mayra Andujar Delgado does not shy away from discussing her myelofibrosis diagnosis. In fact, the survivor becomes empowered by sharing her knowledge with others.

The more Mayra Andujar Delgado talks about her myelofibrosis diagnosis, the stronger she says she feels.

After being diagnosed with myelofibrosis, a type of myeloproliferative neoplasm (MPN), Delgado began learning about and speaking up about her disease through radio interviews and other opportunities, eventually coming to call herself, “Mayra with a purpose.”

The advocate was recognized at CURE®’s 10th Annual MPN Heroes® program in December, which honored eight people who went above and beyond to improve the lives of patients who have MPNs —group of cancers that start in the bone marrow. MPNs are rare, affecting approximately 2.17 per 100,000 individuals, according to the National Institutes of Health.

READ MORE: CURE® Salutes 8 Individuals’ Efforts During 10th Annual MPN Heroes® Program

While offering advice and support to others, Delgado also utilized the resources of those around her through the Cancer Support Community at the Orlando Health Cancer Institute, where she can continue to learn about MPNs and seek help when she needs it.

“So everything that I’m learning there, I’m spreading the word, so other patients can be a part of it and feel what I’m feeling,” Delgado said in an interview with CURE®.


I'm part of the Cancer Support Community (at) the Orlando Health Cancer Institute. And what I'm doing, I found their comfort, understanding and knowledge. So everything that I'm learning there, I'm spreading the word, so other patients can be a part of it and feel what I'm feeling.

I'm no longer feeling alone, confused (or) afraid. I know where to go, and where to go and ask questions. We have the doctor, the director of the Center, Dr. Robinson, I know to go to her when I when I need advice. I have mental counseling …

Like I said to … a radio station, (in) that interview I was talking about (my life) before (those supports) and after — how when I started the journey, I was confused, afraid, lost, and how I feel today. I'm in control. That's the word. I know where to go and I feel good about it. And the more I talk about it … the stronger I feel, inside and out.

For more news on cancer updates, research and education, don’t forget to subscribe to CURE®’s newsletters here.

Related Videos
Jessica McDade, B.S.N., RN, OCN, in an interview with CURE
For patients with cancer, the ongoing chemotherapy shortage may cause some anxiety as they wonder how they will receive their drugs. However, measuring drugs “down to the minutiae of the milligrams” helped patients receive the drugs they needed, said Alison Tray. Tray is an advanced oncology certified nurse practitioner and current vice president of ambulatory operations at Rutgers Cancer Institute in New Jersey.  If patients are concerned about getting their cancer drugs, Tray noted that having “an open conversation” between patients and providers is key.  “As a provider and a nurse myself, having that conversation, that reassurance and sharing the information is a two-way conversation,” she said. “So just knowing that we're taking care of you, we're going to make sure that you receive the care that you need is the key takeaway.” In June 2023, many patients were unable to receive certain chemotherapy drugs, such as carboplatin and cisplatin because of an ongoing shortage. By October 2023, experts saw an improvement, although the “ongoing crisis” remained.  READ MORE: Patients With Lung Cancer Face Unmet Needs During Drug Shortages “We’re really proud of the work that we could do and achieve that through a critical drug shortage,” Tray said. “None of our patients missed a dose of chemotherapy and we were able to provide that for them.” Tray sat down with CURE® during the 49th Annual Oncology Nursing Society Annual Congress to discuss the ongoing chemo shortage and how patients and care teams approached these challenges. Transcript: Particularly at Hartford HealthCare, when we established this infrastructure, our goal was to make sure that every patient would get the treatment that they need and require, utilizing the data that we have from ASCO guidelines to ensure that we're getting the optimal high-quality standard of care in a timely fashion that we didn't have to delay therapies. So, we were able to do that by going down to the minutiae of the milligrams on hand, particularly when we had a lot of critical drug shortages. So it was really creating that process to really ensure that every patient would get the treatment that they needed. For more news on cancer updates, research and education, don’t forget to subscribe to CURE®’s newsletters here.
A man with a dark gray button-up shirt with glasses and cropped brown hair.
Dr. Andrea Apolo in an interview with CURE
Dr. Kim in an interview with CURE
Dr. Nguyen, from Stanford Health, in an interview with CURE
Related Content