Another birthday

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Tomorrow is Suzanne Lindley's 44th birthday, which makes me smile in a way that no other birthday does. I met Suzanne in early 2010 when I interviewed her for a story on metastatic cancer survivors that appeared in our summer magazine. She was diagnosed with metastatic colon cancer when she was 31 in 1998, and more than once she has been told that it was time to put her affairs in order. Instead Suzanne got online and began researching any and all ways to stay alive. She became a huge proponent of radioembolization, which places tiny microspheres of radiation into the liver to kill the cancer. They worked really well for her and she founded a nonprofit called Beat Liver Tumors to reach out to others dealing with liver tumors. In the cancer world, I have known many survivors who turned their energy toward advocacy: They have started organizations that have made a real and tangible difference in the lives of others. Suzanne is one of those. She never draws attention to herself, but uses any platform to talk about radioembolization and how to be an empowered patient. It's been far from easy for her with ongoing chemo. But Suzanne is one of those metastatic patients who lives in a place called hopeful reality. She keeps doing what she loves while hitchhiking from one drug to another, fitting chemo into her busy schedule. In the past few years she has become a popular speaker at medical events, which has given her and husband Ronnie a chance to travel to Europe and other parts of the world. When she is home in the rural town of Canton, Texas, she spends time with her two daughters, Karlie and Katie, now in both in their 20s. She also has a third daughter, 4-year-old Chloe. Ronnie and Suzanne were foster parents to Chloe as a baby and didn't even blink before agreeing to adopt her last year when they had the chance. It's a family that loves and supports each other. Since getting to know Suzanne for the story, I have kept in touch, trying to grab a few minutes at meetings we were both attending or chatting on Facebook or by phone. Suzanne always keeps her medical condition light in conversations because it takes so much energy to repeat it over and over. When she has set backs, as she has with spinal issues lately, she just mentions that it's been challenging. I have to pry information out of her. She would just rather focus on the next trip or event – or talk about Chloe. I don't know why Suzanne has beaten the odds and neither does she. But I think she had a job to do for others and still isn't finished. I certainly hope not. Send Suzanne good thoughts today – or better yet, go on Facebook and say happy birthday.

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For patients with cancer, the ongoing chemotherapy shortage may cause some anxiety as they wonder how they will receive their drugs. However, measuring drugs “down to the minutiae of the milligrams” helped patients receive the drugs they needed, said Alison Tray. Tray is an advanced oncology certified nurse practitioner and current vice president of ambulatory operations at Rutgers Cancer Institute in New Jersey.  If patients are concerned about getting their cancer drugs, Tray noted that having “an open conversation” between patients and providers is key.  “As a provider and a nurse myself, having that conversation, that reassurance and sharing the information is a two-way conversation,” she said. “So just knowing that we're taking care of you, we're going to make sure that you receive the care that you need is the key takeaway.” In June 2023, many patients were unable to receive certain chemotherapy drugs, such as carboplatin and cisplatin because of an ongoing shortage. By October 2023, experts saw an improvement, although the “ongoing crisis” remained.  READ MORE: Patients With Lung Cancer Face Unmet Needs During Drug Shortages “We’re really proud of the work that we could do and achieve that through a critical drug shortage,” Tray said. “None of our patients missed a dose of chemotherapy and we were able to provide that for them.” Tray sat down with CURE® during the 49th Annual Oncology Nursing Society Annual Congress to discuss the ongoing chemo shortage and how patients and care teams approached these challenges. Transcript: Particularly at Hartford HealthCare, when we established this infrastructure, our goal was to make sure that every patient would get the treatment that they need and require, utilizing the data that we have from ASCO guidelines to ensure that we're getting the optimal high-quality standard of care in a timely fashion that we didn't have to delay therapies. So, we were able to do that by going down to the minutiae of the milligrams on hand, particularly when we had a lot of critical drug shortages. So it was really creating that process to really ensure that every patient would get the treatment that they needed. For more news on cancer updates, research and education, don’t forget to subscribe to CURE®’s newsletters here.
Yuliya P.L Linhares, MD, an expert on CLL
Yuliya P.L Linhares, MD, and Josie Montegaard, MSN, AGPCNP-BC, experts on CLL