Celebrating Life

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On June 5, thousands of the estimated 12 million cancer survivors in the country came together to celebrate National Cancer Survivors Day. Across the country they took part in all kinds of events: They planted trees, they flash danced in malls, celebrated Christmas early or had picnics at their cancer center with doctors and nurses in attendance. I was honored to speak at one of these events in Freehold, New Jeresy, where some 200 survivors, family members and hospital staff gathered for lunch at Centrastate Medical Center. As I stood in front of the crowd doing my one-woman show "One Mutant Cell," it hit me that the cancer survivors in New Jersey are the same as those in Texas or California or Florida or Washington, all places I have spoken in the past few years. We have the same scars from the same procedures and have endured the same treatments. We also have the same hopes for a future free of cancer. This coming together of survivors also serves to help the newly diagnosed see those who have been through cancer and are moving on with their lives, an important reminder for all of us. There is life after treatment. I was impressed with the celebration at Centrastate for a number of reasons. Physicians were present as were their nurses and radiation technicians. There were lots of hugs and casual chatting that I like to see between docs and patients. The physician who introduced me, Dr. Edward Soffen, a radiation oncologist at Centrastate, began by saying he had been asked repeatedly if he was going to sing again this year. So, he gave in and did a grand rendition of Day-O, encouraging the crowd to join in on the chorus, "Daylight come and me wan' go home."He was having fun and so were his patients. It's the kind of connection I love to see between doctors and their patients but don't very often.

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For patients with cancer, the ongoing chemotherapy shortage may cause some anxiety as they wonder how they will receive their drugs. However, measuring drugs “down to the minutiae of the milligrams” helped patients receive the drugs they needed, said Alison Tray. Tray is an advanced oncology certified nurse practitioner and current vice president of ambulatory operations at Rutgers Cancer Institute in New Jersey.  If patients are concerned about getting their cancer drugs, Tray noted that having “an open conversation” between patients and providers is key.  “As a provider and a nurse myself, having that conversation, that reassurance and sharing the information is a two-way conversation,” she said. “So just knowing that we're taking care of you, we're going to make sure that you receive the care that you need is the key takeaway.” In June 2023, many patients were unable to receive certain chemotherapy drugs, such as carboplatin and cisplatin because of an ongoing shortage. By October 2023, experts saw an improvement, although the “ongoing crisis” remained.  READ MORE: Patients With Lung Cancer Face Unmet Needs During Drug Shortages “We’re really proud of the work that we could do and achieve that through a critical drug shortage,” Tray said. “None of our patients missed a dose of chemotherapy and we were able to provide that for them.” Tray sat down with CURE® during the 49th Annual Oncology Nursing Society Annual Congress to discuss the ongoing chemo shortage and how patients and care teams approached these challenges. Transcript: Particularly at Hartford HealthCare, when we established this infrastructure, our goal was to make sure that every patient would get the treatment that they need and require, utilizing the data that we have from ASCO guidelines to ensure that we're getting the optimal high-quality standard of care in a timely fashion that we didn't have to delay therapies. So, we were able to do that by going down to the minutiae of the milligrams on hand, particularly when we had a lot of critical drug shortages. So it was really creating that process to really ensure that every patient would get the treatment that they needed. For more news on cancer updates, research and education, don’t forget to subscribe to CURE®’s newsletters here.
Yuliya P.L Linhares, MD, an expert on CLL
Yuliya P.L Linhares, MD, and Josie Montegaard, MSN, AGPCNP-BC, experts on CLL
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