Education and Teamwork Are Key in the Treatment of MPNs

Video

At the 2019 MPN Heroes® event Tammy Matuska, B.S.N., RN, known as the "lifeline to patients," was honored for her outstanding work for patients with MPN.

One of the nine honorees at the 2019 MPN Heroes® event, Tammy Matuska, B.S.N., RN, is known as “a lifeline to patients.” While she spends her days as a nurse coordinator at the Washington University School of Medicine in St. Louis, Missouri, Matuska strives to find new treatments and provide education, emotional aid and care for patients with a rare group of blood cancers known as myeloproliferative neoplasms, or MPNs: polycythemia vera, essential thrombocythemia, and myelofibrosis.

In addition to helping her patients with scheduling and paperwork, Matuska works after hours to ensure that her patients have access to proper care. She’s even spearheaded the organization of an informational dinner for patients and their families and is in the process of creating a support group for people with MPNs.

In an interview at CURE® magazine’s seventh annual event on Dec. 6 in Orlando, Florida, Matuska explained why education and teamwork are key to caring for those in the MPN community.

“I’m part of a team. It takes a lot of people to take care of these patients. We have research coordinators, clinic nurse coordinators, lab researchers; we all work as a team together on a cure for these MPNs and to take care of these patients,” Matuska said.

“Our community is very small. I like to raise awareness with other individuals that I work with, peers that don’t know what an MPN is. I’m constantly getting that: “What’s an MPN?”, so I love to educate other coworkers and also patients and family members on what MPNs are.”

Related Videos
For patients with cancer, the ongoing chemotherapy shortage may cause some anxiety as they wonder how they will receive their drugs. However, measuring drugs “down to the minutiae of the milligrams” helped patients receive the drugs they needed, said Alison Tray. Tray is an advanced oncology certified nurse practitioner and current vice president of ambulatory operations at Rutgers Cancer Institute in New Jersey.  If patients are concerned about getting their cancer drugs, Tray noted that having “an open conversation” between patients and providers is key.  “As a provider and a nurse myself, having that conversation, that reassurance and sharing the information is a two-way conversation,” she said. “So just knowing that we're taking care of you, we're going to make sure that you receive the care that you need is the key takeaway.” In June 2023, many patients were unable to receive certain chemotherapy drugs, such as carboplatin and cisplatin because of an ongoing shortage. By October 2023, experts saw an improvement, although the “ongoing crisis” remained.  READ MORE: Patients With Lung Cancer Face Unmet Needs During Drug Shortages “We’re really proud of the work that we could do and achieve that through a critical drug shortage,” Tray said. “None of our patients missed a dose of chemotherapy and we were able to provide that for them.” Tray sat down with CURE® during the 49th Annual Oncology Nursing Society Annual Congress to discuss the ongoing chemo shortage and how patients and care teams approached these challenges. Transcript: Particularly at Hartford HealthCare, when we established this infrastructure, our goal was to make sure that every patient would get the treatment that they need and require, utilizing the data that we have from ASCO guidelines to ensure that we're getting the optimal high-quality standard of care in a timely fashion that we didn't have to delay therapies. So, we were able to do that by going down to the minutiae of the milligrams on hand, particularly when we had a lot of critical drug shortages. So it was really creating that process to really ensure that every patient would get the treatment that they needed. For more news on cancer updates, research and education, don’t forget to subscribe to CURE®’s newsletters here.
A man with a dark gray button-up shirt with glasses and cropped brown hair.
Dr. Andrea Apolo in an interview with CURE
Dr. Kim in an interview with CURE
Dr. Nguyen, from Stanford Health, in an interview with CURE
Dr. Barzi in an interview with CURE
Sue Friedman in an interview with CURE