Here’s Where Some People First Looked for Information After Their Cancer Diagnosis

April 12, 2021
Ryan McDonald

On social media, CURE® recently asked its readers to share where they first turned to for information after they received their cancer diagnosis. Here’s what some of them said.

Each week on FacebookTwitter and InstagramCURE® asks its readers to share their thoughts with a #CureConnect discussion question.

This past week, we asked: “Where did you first look for information after your diagnosis?”

Here’s what some of our readers shared:

  • “I looked on internet, talked to my PCP, called my hospital, went to cancer meetings and talked with my oncologist and got great tips from that. And, I talked to people with cancer.” – B.S.
  • “My mother, as she lost her mom when she was 10, and I was diagnosed at the same age her mom was diagnosed. Times and knowledge change. I'm a 14-plus year cancer alumni.” – K.G-R.
  • “I asked other patients who were open to talking because doctors can guess, but other patients could tell me what I was most likely going to go through.” – M.S-Y.
  • “The American Cancer Society. My oncologist sent me to a class called Cancer 101, and an online group called Smart Patient. The great nurses at Seattle Cancer Care Alliance also clued me into Chemocare.com.” – T.W.
  • “I took out every single book in the library on the subject. Then, I used the references for online sources that were in those books.” – J.R.
  • “I listened to my doctors. I didn’t want to look anything up online because I didn’t know if it would be true. And so many cases vary … they know what’s best for me. I did look at the websites they suggested, though.” – B.D.
  • “The American Cancer Society and the National Cancer Institute. There’s not much out there for men with breast cancer.” – E.S.
  • “I tried to absorb as much information as I could, with telling myself to listen to my doctor at the same time. I knew nothing about cervical cancer and wanted to educate myself the day before staging. I guessed my staging and was right. I was all over the internet on ONLY reputable sites. The three websites I do remember going to first was: The Ohio State University James Comprehensive Cancer Center, the National Cervical Cancer Coalition and Mayo Clinic. I did get my treatment at The James.” – J.O-C.

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