Here’s Where Some People First Looked for Information After Their Cancer Diagnosis

Each week on Facebook, Twitter and Instagram, CURE® asks its readers to share their thoughts with a #CureConnect discussion question.

This past week, we asked: “Where did you first look for information after your diagnosis?”

Here’s what some of our readers shared:

• “I looked on internet, talked to my PCP, called my hospital, went to cancer meetings and talked with my oncologist and got great tips from that. And, I talked to people with cancer.” – B.S.
• “My mother, as she lost her mom when she was 10, and I was diagnosed at the same age her mom was diagnosed. Times and knowledge change. I'm a 14-plus year cancer alumni.” – K.G-R.
• “I asked other patients who were open to talking because doctors can guess, but other patients could tell me what I was most likely going to go through.” – M.S-Y.
• “The American Cancer Society. My oncologist sent me to a class called Cancer 101, and an online group called Smart Patient. The great nurses at Seattle Cancer Care Alliance also clued me into Chemocare.com.” – T.W.
• “I took out every single book in the library on the subject. Then, I used the references for online sources that were in those books.” – J.R.
• “I listened to my doctors. I didn’t want to look anything up online because I didn’t know if it would be true. And so many cases vary … they know what’s best for me. I did look at the websites they suggested, though.” – B.D.
• “The American Cancer Society and the National Cancer Institute. There’s not much out there for men with breast cancer.” – E.S.
• “I tried to absorb as much information as I could, with telling myself to listen to my doctor at the same time. I knew nothing about cervical cancer and wanted to educate myself the day before staging. I guessed my staging and was right. I was all over the internet on ONLY reputable sites. The three websites I do remember going to first was: The Ohio State University James Comprehensive Cancer Center, the National Cervical Cancer Coalition and Mayo Clinic. I did get my treatment at The James.” – J.O-C.

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